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Wooziness and MGUS

Blood Cancers & Disorders | Last Active: Sep 6, 2023 | Replies (13)

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@debby090

I came here today to see if anyone else has this. I too have wooziness. I feel like I’m drunk. I was worried that I was gonna fall and then it happened today. My oncologist said he isn’t sure so he referred me to other specialists. it could be from Mgus but it could be something else. I do know at one point before my dads Mgus turned into multiple myeloma (he passed from it) he was also having the same symptoms. My pcp says there are no symptoms with Mgus but tests me cause of my inflammation, bone and joint pain. Due to my Dad and his sister passing from multiple myeloma. That’s how they found my igg kappa Mgus. I did find this tho through my hours of research . MGUS have problems with their balance, or numbness or tingling in their hands and feet. Not much but something hope it helps.

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Replies to "I came here today to see if anyone else has this. I too have wooziness. I..."

Hi Debby. I too have had this feeling of drunkenness when I sit or stand. It started about 16 months ago and has progressively worsened. It goes away when I lie down. It is not vertigo. I finally saw my ENT and it looks like my symptoms are from a condition related to aging (I am 76) called Presbystasis. It is common and incurable but treatable. Treatment consists of balance training mostly so I am waiting for a physical therapy referral. I highly recommend you see an ear-nose-throat (ENT) doctor. After 16 months of seeing a plethora of specialists, I finally have an answer. I keep a positive attitude and look on the bright side. The blessing has been that in my search for an answer, a small aneurysm was discovered in my brain that I have had treated with a type of "stent" that will cut off the aneurysm blood supply and make it go away! Praise God! Keep us posted if you like on your journey. I hope this helps.

MGUS patients frequently complain about neuropathy, myself included. Evidently it confuses us about the relationship of the feet to the floor which can result in falls.
I went to orthopedic and podiatry docs who were not helpful. Nagged my PCP to appoint me with a neurologist, who seem to be in great demand. My PCP and specialty docs are all at a large medical center. Convenient, but popular and I wait for appointments. Waiting is not my forte.
The suggestion to see an ENT specialist is good. I am otherwise symptomatic of neuropathy, so imbalance related to inner ear issues was one of my rule outs.
Good for you for getting to the source of your symptoms. Also might consider a neurology consult due to “tingling.”
Patty