Hi - One thing I learned early on is that there is no "normal" for MDS. I am 64 and I too am on watch and wait since 2020 (but 2nd and 3rd opinions said it's been since 2017). I am low in all 3 blood lines, and, thankfully, have no symptoms. I get checked every 3 months, unless something is lower than it usually is for me, in which case I will have a check after 2 months. I try not to dwell on the what-ifs, but will usually get a little anxious on my check-up days. I'm trying to exercise and eat healthy foods so I can be in the best health when/if my SCT comes along.

Treatment will vary depending on your symptoms, and on what numbers are off and by how much. Sometimes it's transfusions, sometimes medications to bring up cell counts. Again - there is no "normal". It's a crazy disease!!