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Anyone here dealing with peripheral neuropathy?
Neuropathy | Last Active: Dec 8 11:43am | Replies (3052)Comment receiving replies
Hi All, I am back. I am a controlled diabetic and now suddenly have been having some neuropathy. I was also vitamin B12 deficient and don't know how long, which may actually have been the smoking gun. The strange thing is I have been having digestive issues, which seems to be usually very secondary or rare compared to the rest. The digestive symptoms started out as pain (thought it was kidney stones), but then it grew and now they think it is gastroparesis. I start with testing next week. I am very depressed. My life changed in a matter of weeks. I am only 48. Anyone else out there have a similar rapid decline or this kind of onset, dealing with eating issues... I have been reading about the Cleveland Clinic and if this turns out to be that, I will go there to work with doctor Cline. I have kids still I need to mother. My anxiety is through the roof. They also took me off my diabetes meds and said I to just manage it with diet. I am calling my ENDO today since this was a recommendation from the GI and my primary, whom I have dropped due to negligence (he should have been testing me for vitamin B 12 deficiency because I was on metforim). Doctors overbook and then don't do their homework to ensure they are taking care of you. I just had blind faith trust. He told me I was doing great.
Replies to "Hi All, I am back. I am a controlled diabetic and now suddenly have been having..."
@nikkig -
You might want to consider being tested for gluten issues. If you have gluten intolerance or celiac disease, it causes malabsorption and that could be contributing to a Vitamin B deficiency. Stress also can cause gluten problems to start. This happened to me with the stress of going through my first surgery, and within a year the gluten in grains caused a leaky gut due to inflammation which created a lot of other food allergies that I live with. I had to figure things out with an elimination diet because at the time years ago. no doctor would listen to me or test me for gluten intolerance and I was told that I couldn't have this because I looked too good (not being emaciated from long term malabsorption). Stopping that and other foods that cause allergies helped a lot, and I get pretty sick if I have accidental exposure. Avoiding all my food issues stopped my unexplained pain. Here is some information. https://www.mayoclinic.org/diseases-conditions/celiac-disease/symptoms-causes/syc-20352220
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Hi, @nikkig, and welcome back to Connect. Glad to have you here. I merged your post with this one as there are many members here talking about neuropathy with whom I thought you'd like to interact.
I can hear some urgency in your post, and I'm sorry that you are now dealing with digestive issues, feeling very depressed and have anxiety through the roof, plus have been taken off your diabetes meds.
Here are a few threads you also might want to check out:
- About diabetes: https://connect.mayoclinic.org/discussion/type-two-diabetes/, if you have Type II, or https://connect.mayoclinic.org/discussion/type-1-surprise/, if you have Type I
- About gastroparesis: https://connect.mayoclinic.org/discussion/gastroparesis/
- About depression: https://connect.mayoclinic.org/discussion/depression-3/
Hoping that members like @jjwest @johnbishop @oldkarl @hosta @steeldove and others may have some insights for you as you are dealing with the neuropathy along with the other health concerns.
You'd mentioned previously, @nikkig, experiencing some pins and needles, numbness and sleeping problems. Is this what you are still seeing with your neuropathy, or are you having some different symptoms currently?