Anyone taken Evenity (romosozumab) for Osteoporosis?

Posted by arlene7 @arlene7, May 27, 2020

Has anyone taken Evenity? I understand it’s only been on the market for a little over a year. I’m hoping it will help with my severe osteoporosis. Any information is helpful.

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I completed one year of Evenity in July. My bone density improved! My spine T-score went from -3.0 to -2.1 which is a 13.5% improvement (the percentages are calculated using the bone density values measured in g/cm sq). My total femoral mean improved from -1.8 to -1.5 which is a 4% gain. I had no side effects except for minor swelling at the injection site in my belly which went away after a day. I have gone on Reclast to lock in my gains. It is an annual infusion for 3 years. I didn't like the sound of Prolia because you must take it for life and Fosamax due acid reflux issues. Over the year, I took 500 mg calcium plus Vit D supplements daily, took walks and did yoga once a week. I added frequent weight training over the last 3 months. It is hard to do everything suggested, but did the best I could. I highly recommend Evenity based on my experience.

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@gretch19

Interesting. I knew about the oxcylates in spinach but thought kale and chard didnt have the same issue.
I heard about dairy NOT being a good source from nutritionists and my reading.
I am not an expert by any means nor am I in the medical field.
What is the most absorbable form of calcium?

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I can’t take calcium pills (causes extreme constipation which then affects my digestive system), so my Rheumatologist told me to take two or three Tums a day. It seems to be working for me.

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@californiakaren

I completed one year of Evenity in July. My bone density improved! My spine T-score went from -3.0 to -2.1 which is a 13.5% improvement (the percentages are calculated using the bone density values measured in g/cm sq). My total femoral mean improved from -1.8 to -1.5 which is a 4% gain. I had no side effects except for minor swelling at the injection site in my belly which went away after a day. I have gone on Reclast to lock in my gains. It is an annual infusion for 3 years. I didn't like the sound of Prolia because you must take it for life and Fosamax due acid reflux issues. Over the year, I took 500 mg calcium plus Vit D supplements daily, took walks and did yoga once a week. I added frequent weight training over the last 3 months. It is hard to do everything suggested, but did the best I could. I highly recommend Evenity based on my experience.

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That is great news. My endocrinologist has started me on Evenity for a T score in my spine of -4.6. I must admit the side effects scare me especially osteonecrosis of the Jaw. I have had lots of dental work in the past.
So glad for you that this has worked out for you.

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@gretch19

I am in the same boat. I was scheduled to start Evenity on Friday, then started reading reviews and backed out. I have one month to decide whether I take my chances with Evenity or go with prolia which seems safer and has been around longer. My Jackson team scores are all so bad

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I have taken both. Just finished a year of Evenity. I had absolutely no problems. Now I have to decide what is next. My doctor recommended reclast, because if I go back on Prolia, I am on it forever. I took the reclast. I had more side effects from that than either of the other two.

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@debrar

I have taken both. Just finished a year of Evenity. I had absolutely no problems. Now I have to decide what is next. My doctor recommended reclast, because if I go back on Prolia, I am on it forever. I took the reclast. I had more side effects from that than either of the other two.

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what side effects did you have from Reclast? How long do they last and is there something they can do to alleviate them?

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@windyshores

My doc doesn't do CTX. It seems most endocrinologists don't do that kind of blood work. I believe P1NP is an indicator of bone building and CTX is a measure of bone turnover. But docs don't seem to use these,

Yes a break after one or possibly two Reclasts depending on testing. I wonder, at this point, if my doc will do CTX and P1NP or what my doc means by "monitoring"....maybe DEXA? I am getting a second opinon next week and will ask.

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I am finding success in getting the tests I want when I tell my doc what I want rather than ask.
I wouldn't hesitate to evaluate whether my doc is the right one for me.

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@californiakaren

I completed one year of Evenity in July. My bone density improved! My spine T-score went from -3.0 to -2.1 which is a 13.5% improvement (the percentages are calculated using the bone density values measured in g/cm sq). My total femoral mean improved from -1.8 to -1.5 which is a 4% gain. I had no side effects except for minor swelling at the injection site in my belly which went away after a day. I have gone on Reclast to lock in my gains. It is an annual infusion for 3 years. I didn't like the sound of Prolia because you must take it for life and Fosamax due acid reflux issues. Over the year, I took 500 mg calcium plus Vit D supplements daily, took walks and did yoga once a week. I added frequent weight training over the last 3 months. It is hard to do everything suggested, but did the best I could. I highly recommend Evenity based on my experience.

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I’m hoping I can make it through the year of Evenity, second shots are today. I had a horribly sore arm the day of and day after the first shots, as well as a few nights where I barely slept. If it doesn’t get worse than that and I can improve my -4.3 spine score, it would be worth it.

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@gretch19

I am in the same boat. I was scheduled to start Evenity on Friday, then started reading reviews and backed out. I have one month to decide whether I take my chances with Evenity or go with prolia which seems safer and has been around longer. My t scores are also bad

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In the same boat too. Tough decision making on the evenity.

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@debrar

I have taken both. Just finished a year of Evenity. I had absolutely no problems. Now I have to decide what is next. My doctor recommended reclast, because if I go back on Prolia, I am on it forever. I took the reclast. I had more side effects from that than either of the other two.

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Debra’s,
What were your Reclast side effects like? I’m on Evenity and may have Reclast in my future.

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@susanfalcon52

Debra’s,
What were your Reclast side effects like? I’m on Evenity and may have Reclast in my future.

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I meant debrar. Spell check changed it for me. 🙁

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