I am sorry to read of your PN symptoms. Being an I.W.M.F, MN/WI support group co-leader, I strongly recommend that you search on the IWMF web site for PN? Also, if you have not already consulted one of the WM specialists, the IWMF can assist you with that. If you have further questions regarding the IWMF, I will be happy to assist you. There are fewer than 1500 WM patients diagnosed in the US and we are all different. Most oncologists/hematologists have few WM patients to draw knowledge from. The worldwide WM specialists not only have multiple patients but have other WM specialists in their clinic to consult with - i.e. Mayo Clinic, Rochester.