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Long Term Covid articles - MUST READS

Posted by summerof42 @summerof42, Aug 26, 2023

The priceless information below is something that ALL physicians need to be reading to better understand, acknowledge and support their patients. I've been suffering for 3 yrs now, currently very ill and down to 90 lbs, 30+ horrible symptoms, can barely function and in horrific pain all over my body. I know I can't go on much longer and sadly, I can't find any doctor to help me. I love life so much, but this is so very hard.

I want to help others and if we make every effort to provide this information and link to the doctors, including Mayo, maybe we can get the help we need. For me, it's too late and too much damage in my body.

https://hms.harvard.edu/news/most-important-question-about-long-covid

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

dawniepoo | @dawniepoo | Aug 29, 2023

This article is EXTREMELY helpful. Will share with my doctors. Thank you so much.
Hope you find some relief

REPLY
rsfcowgirl | @rsfcowgirl | Aug 29, 2023
In reply to @summerof42 "I'm trying, I really am. I've been such a fighter for 3 yrs. I had no..." + (show)
@summerof42

I'm trying, I really am. I've been such a fighter for 3 yrs. I had no idea it would get this bad and more than 30+ unbearable symptoms.

Thanks to that horrible doctor who told me I need to do b-12 shots and iron infusions (even though my labs were at the bottom range of normal and my iron level was great) it set my body on fire! Not only am I suffering from all the horrific 30+ symptoms mentioned earlier and other posts, and as we all can relate to, Covid brings on newer and even worse symptoms daily. The iron infusion made it really angry! It caused a severe reaction, turning my feet bright red/blue-ish in color and severe burning pain, needles & pins sensation, and now I have developed a rash and sore burning sore spots throughout my body and nothing I can put on it or take will relieve the pain - it's unbearable! The new spots appeared on my right arm and wrists and today on my left foot and on fire! I can't take this.

I don't see how I can continue. It's now 12:20am, I haven't slept for days and now with this rash and pain it makes it impossible to sleep. I know what the morning around 4am and my body will be shocked by a jolt with internal trembling and extreme pain. And like every morning I force myself to get up, but I basically pace around.

In addition, at least the last 2 years I had a great appetite and stomach was fine, even though I weighed 90 lbs, but as of two days ago, my stomach is in terrible pain and anything I eat causes it to feel like I have an alien in there. Given I'm now down to 90 lbs I don't see how I can survive.

As I type, the top of my foot with the rash burns so bad and it's spreading to other parts of my body. I wish I never got the iron infusion! I can also feel it starting to develope on my arm and neck. Please pray for me during this very difficult time and for all others suffering.

Adding fuel to fire (literally) is not even having a doctor who can help. Going to the ER will serve no purpose since they don't recognize or understand long term covid.

I get so angry the wonderful, happy and active life I had is gone. How could they have created such a horrible virus (weapon). Why are others who had Covid, got through it fine and we are suffering like this?

Hugs

Jump to this post

You are talking about two different problems. COVID 19 is one. But your current acute medical problem is directly related to iron infusion, by your description + report. That's an entirely separate problem. That's the problem you should go to the ER for. I wouldn't wait. Get that problem taken care of. Just focus on that. Prayers for you.

REPLY
tglapin1974 | @tglapin1974 | Aug 29, 2023
In reply to @summerof42 "I'm trying, I really am. I've been such a fighter for 3 yrs. I had no..." + (show)
@summerof42

I'm trying, I really am. I've been such a fighter for 3 yrs. I had no idea it would get this bad and more than 30+ unbearable symptoms.

Thanks to that horrible doctor who told me I need to do b-12 shots and iron infusions (even though my labs were at the bottom range of normal and my iron level was great) it set my body on fire! Not only am I suffering from all the horrific 30+ symptoms mentioned earlier and other posts, and as we all can relate to, Covid brings on newer and even worse symptoms daily. The iron infusion made it really angry! It caused a severe reaction, turning my feet bright red/blue-ish in color and severe burning pain, needles & pins sensation, and now I have developed a rash and sore burning sore spots throughout my body and nothing I can put on it or take will relieve the pain - it's unbearable! The new spots appeared on my right arm and wrists and today on my left foot and on fire! I can't take this.

I don't see how I can continue. It's now 12:20am, I haven't slept for days and now with this rash and pain it makes it impossible to sleep. I know what the morning around 4am and my body will be shocked by a jolt with internal trembling and extreme pain. And like every morning I force myself to get up, but I basically pace around.

In addition, at least the last 2 years I had a great appetite and stomach was fine, even though I weighed 90 lbs, but as of two days ago, my stomach is in terrible pain and anything I eat causes it to feel like I have an alien in there. Given I'm now down to 90 lbs I don't see how I can survive.

As I type, the top of my foot with the rash burns so bad and it's spreading to other parts of my body. I wish I never got the iron infusion! I can also feel it starting to develope on my arm and neck. Please pray for me during this very difficult time and for all others suffering.

Adding fuel to fire (literally) is not even having a doctor who can help. Going to the ER will serve no purpose since they don't recognize or understand long term covid.

I get so angry the wonderful, happy and active life I had is gone. How could they have created such a horrible virus (weapon). Why are others who had Covid, got through it fine and we are suffering like this?

Hugs

Jump to this post

So sorry to hear you suffer so because you, like so many of us, trust doctors who don't live in our bodies & apply 1 size fits all to all patients. Keeping you in prayer, knowing that your suffering has a purpose. I know mine taught me to listen to my body, to my gut instincts for self-preservation, to God about what is best for me & God together in coping with reality. I've stopped trusting any other person, substance, place, institution, or entity other than my God. To find your God, the Ultimate Healer & work with Him/Her on a daily basis is my wellnessstrategy for the last several years. I'm a 51-year survivor of thyroid cancer, living with several symptoms of long Covid, & work for 36 years a 12-Step spiritual programin Al-Anon. Next month, God willing, I'll turn 76, on less medication for depression & anxiety than at age 44. Something works in my favor. For sure, it ain't a human doc. When I work together with a Power greater than myself (God), my spirit improves, & my body & mind follow suit. All the best & God bless you.

REPLY
covidtremors | @covidtremors | Aug 30, 2023

I was scared like you after losing five dress sizes and had severe muscle wasting. My doctor referred me for medical marijuana lozenges, which helped with my appetite and sleep. I forced myself to eat high calorie foods and gained all the weight back which helped. In retrospect, it would have been better to have intense physical therapy to regain my strength, and not gain so much of the weight back, because as weak as I was feeling, being obese is more dangerous..

REPLY
frouke | @frouke | Aug 30, 2023

I am still waiting to hear from anyone who has long covid and whether they are taking the vaccine in the fall. We are hearing that covid is revving up with new variants and I want to protect myself …some of my research shows that some people felt some improvement with their symptoms…if this is true I will be there with my sleeve rolled up lol…I have suffered on and off with nasty symptoms, sometimes I feel like I’m going insane, my own body is a stranger to me, mentally and physically I am changed. I read so many symptoms people are having, I share some symptoms with others and also different ones…I’m struggling with lack of appetite a lot and everything I eat taste odd and I feel nauseous, I lost too much weight…my stomach is over sensitive and even water is uncomfortable. I have noticed one thing in particular, my covid symptoms definitely increases with anxiety which I suffer from..it becomes a vicious cycle of being afraid of what you’re dealing with and then it sets off the symptoms. I’m curious if anyone else noticed this connection with their symptoms.

REPLY
frking | @frking | Aug 30, 2023
In reply to @summerof42 "I'm trying, I really am. I've been such a fighter for 3 yrs. I had no..." + (show)
@summerof42

I'm trying, I really am. I've been such a fighter for 3 yrs. I had no idea it would get this bad and more than 30+ unbearable symptoms.

Thanks to that horrible doctor who told me I need to do b-12 shots and iron infusions (even though my labs were at the bottom range of normal and my iron level was great) it set my body on fire! Not only am I suffering from all the horrific 30+ symptoms mentioned earlier and other posts, and as we all can relate to, Covid brings on newer and even worse symptoms daily. The iron infusion made it really angry! It caused a severe reaction, turning my feet bright red/blue-ish in color and severe burning pain, needles & pins sensation, and now I have developed a rash and sore burning sore spots throughout my body and nothing I can put on it or take will relieve the pain - it's unbearable! The new spots appeared on my right arm and wrists and today on my left foot and on fire! I can't take this.

I don't see how I can continue. It's now 12:20am, I haven't slept for days and now with this rash and pain it makes it impossible to sleep. I know what the morning around 4am and my body will be shocked by a jolt with internal trembling and extreme pain. And like every morning I force myself to get up, but I basically pace around.

In addition, at least the last 2 years I had a great appetite and stomach was fine, even though I weighed 90 lbs, but as of two days ago, my stomach is in terrible pain and anything I eat causes it to feel like I have an alien in there. Given I'm now down to 90 lbs I don't see how I can survive.

As I type, the top of my foot with the rash burns so bad and it's spreading to other parts of my body. I wish I never got the iron infusion! I can also feel it starting to develope on my arm and neck. Please pray for me during this very difficult time and for all others suffering.

Adding fuel to fire (literally) is not even having a doctor who can help. Going to the ER will serve no purpose since they don't recognize or understand long term covid.

I get so angry the wonderful, happy and active life I had is gone. How could they have created such a horrible virus (weapon). Why are others who had Covid, got through it fine and we are suffering like this?

Hugs

Jump to this post

This is awful. I believe you said traveling to a Mayo Clinic or Cleveland Clinic wasn’t possible. Have you spoken to anyone at these facilities? Perhaps there is a grant they can provide to cover expenses of travel. Don’t give up.

REPLY
shellbell240 | @shellbell240 | Aug 30, 2023
In reply to @beebee000 "Never Never give up, i live in a rural area where ..well..Drs hear are behind the..." + (show)
@beebee000

Never Never give up, i live in a rural area where ..well..Drs hear are behind the times, i think any of the Drs that do know anything about covid and long covid are still overwhelmed on how to solve all these different problems...i am three years and eight months into this stinking covid thing, believe me, i can come up with a name for it we could all agree on, anyway, it has really messed up my life too and i'm fighting with everything i have, i soooo refuse to let this thing win. i know the we can beat this..prayers to you and all whom are going through this and hugs too......

Jump to this post

We love you and pray for you

REPLY
makusan | @makusan | Sep 1, 2023

I can not thank you enough for sharing and bring this article to my and everyone's attention!!! Thank You! Thank You! Thank You! and Thank You!
You validated my working theory...that the Virus had mutated before the original organism died off. These types of life forms have been around for thousands of years and have gotten very adaptive in their survival.
So now I have something I can bring to my moron AMA doctors, who won't admit that they have no idea how to deal with this organism, other than to waste time and money on BS procedures and medications that will not detect or combat this organism. The idiot G.I. specialist wanted to do a 'colonoscopy' on me. Someone please explain how this procedure would detect viral RNA or a spike protein or the depletion of certain anti-inflammatory gut bacteria? I have lost all trust in the AMA.

REPLY
shellbell240 | @shellbell240 | Sep 2, 2023

One thing that has helped me is love. My spiritual journey has increased and I’m so grateful. I love you all.

REPLY
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