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Any thoughts about Diet and sclerosing mesenteritis?

Posted by sherib73 @sherib73, Sep 2, 2021

A dietician has suggested a vegan diet for reducing MP/SM. Has anyone found this to provide relief?

Interested in more discussions like this? Go to the Digestive Health Support Group.

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mikerob | @mikerob | Sep 1, 2023

I personally just started juicing. I have Mesentery Panniculitis, with Mesenteric Mass & concern for Lymphoma (3x Non Hodgkin's survivor), that's been going on all year now. I removed all dairy (kept eggs for protein), started a regimen with smoothies during afternoon but slowly added too much - volume is an issue as you swell up a bit and if you took up all your room with food, water, liquids, etc - there's no room for the swelling associated with this and the lymph nodes that swell.

I eat Salmon at night with dinner, with Avacado slices, and a very limited side dish. Fats in general are reduced. I've wondered if the Omegas in Salmon and fish cause issues, but apparently not? Meat had to be 100% discontinued other than ground clean turkey or chicken, my wife makes that into a sausage kind of thing with seasonings that are all natural.

Boxed foods gotta go, lack of hydration = pain, fresh fruit and veggies - but get a juicer!!

Pulp itself is so bulky it causes issues getting through that already irritated and often inflamed small bowel, that's my theory anyway as juicing over the last few days just stopped a bloat feeling I was getting with the smoothies.

Gotta be careful with those too, as they need to be limited in size. I was doing 32 oz smoothies, way way too much!!!

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peterose | @peterose | Jun 22 1:51pm
In reply to @erincorn "My doc suggested the following, but not vegan: cut out or very limited sugar, dairy, caffeine..." + (show)
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My doc suggested the following, but not vegan: cut out or very limited sugar, dairy, caffeine (I have 1 cup of coffee a day then chamille tea), limited alcohol, decrease spicy and fried foods. Make sure you hydrate well every day (at least 1 gallon), ensure you are consuming fiber, get your sleep and seriously decrease your stress level. All this has worked for me since diagnosis in February. I had one flare since then that landed me in the ER again in June, but that was before my adjusted meds regime.

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what were your flare up symptoms?....required ER?

Informed by my specialist that I have a history of MP { special confirmed from previous CT' scans over last 10 years while preparing for my surgery}... he performed open surgery to remove a tumour in my colon! Family doctor still refuses to address MP with me....says rubbish to MP being an issue! ....I have suffered from stomach discomfort for 10 years and again after my surgery have severe discomfort!...don't know if relates to surgery 2 months ago or both surgery and MP!......Just what are the main common symptoms of MP

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Moderator
Lisa Lucier, Moderator | @lisalucier | Jun 23 8:47am

Hi - here is some helpful information on symptoms from Mayo Clinic:

- Sclerosing mesenteritis https://www.mayoclinic.org/diseases-conditions/sclerosing-mesenteritis/symptoms-causes/syc-20355087

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mcucchiara | @mcucchiara | 3 days ago
In reply to @hopeful33250 "Hello @sherib73 and welcome to Mayo Clinic Connect. I see that @erincorn has already responded to..." + (show)
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Hello @sherib73 and welcome to Mayo Clinic Connect. I see that @erincorn has already responded to your question about an eating plan for mesenteric panniculitis. As this disorder is rather rare, I am glad that you were able to meet with a registered dietician.

Connect currently has a discussion group on this topic which you might find helpful. Here is the link, https://connect.mayoclinic.org/discussion/mesenteric-panniculitis-or-schlerosing-mesentertis-auto-immune-around-small-intestine/

As you are a new member of Mayo Clinic Connect would you be comfortable sharing more about your history with mesenteric panniculitis? For example, how long ago were you diagnosed and what were your symptoms that led to this diagnosis? Please share only as you are comfortable doing so.

I look forward to hearing from you again. Will you post updates about your progress in dealing with this disorder?

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Hello. I was diagnosed last year with MP. I was on prednisone and Colchisine and shrink some but I feel it’s back and my CT is in two weeks. I was reading on peptides and heard great things for inflammation. Has anyone tried these?

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mcucchiara | @mcucchiara | 3 days ago

I was Just diagnosed last December and was treated through my GI Dr. I am researching peptides as I hear they reduce inflammation. Has anyone tried peptides?

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