Anyone here dealing with peripheral neuropathy?

Good Morning Everyone,
My name is Jean West and 74 yrs young. I have been dealing with neuropothy for at least 10 years. It started as many do, ini my feet, now over time is has advanced upto my knees and hands. I have been to an neurologist and was told that if Dr's could come up with a way to treat or cure this condition, they would be billionaires. My pain Dr. explained why I have it and that this particular type is perifial neuropothy. The first questions I am asked if that if I am a diabetic, and I am not. But I understand that diabeties is a big reason for this condition. My reason which has been told t ome by my Pain Dr, is that I have had so much trama to my spine top and bottom is what has caused this condition. I take 800mg + 50mg of tramadol every six hours. I set my cell phone alarm for these times so that I don't miss taking the meds, because I do sometimes forget, and catching up is very,very painful and sometimes I have to take extra meds for relief. I have learned that walking helps, just keeping my feet on the floor, so have pressure on my feet helps, I am getting scared to try to drive anymore because I cannot always feel the pedals. I have sever stenosis in my thoratic and lumbar section of my spine, I also have numerous bone spurs all up and down my spine. I have had two surgeries in my neck area due to bone spurs going into nerve canals. I have taken many injections in my spine and am about to have 4 more. I have a spine stimulator which has helped tremendously, but it only reaches to my waist. And now ithe stenosis has started in my area above that area. I am also getting catarac surgery on both eyes in June YAHOO! I am looking forward to that.
Anyone dealing with chronoic pain is a dear soul to me. We understand the devistation is does to our minds and body and everyday life. I have had pain control me, and now I take 100 Zoloft, walk as much as I can. Stay busy. I love to garden, love flowers, I do acryalic painting. I love to cook.
I have lost any kind of libidio and I am finally ok with that, and I am graqteful I have a domestic partner who understands. He has been my rock, and every once ina a while I send him off for a week or two to get away froom taking care of me. The gamapentin has made me gain weight even though I eat healthy and walk. It would probably be worse if I didn't. All I can contibute here is thaqt for me, you just have to accept that this is partof your life, you have to readjust and keep moving keep living and help each other.
PEACE AND MUCH LOVE
Jean

I am a care giver for my partner who has peripheral neuropathy. All he has been offered is pain medication. If you do the research, you will find that many times the medication will make your condition worse. We have found a facility in Charlotte, NC and you can see this on line at: http://selecthealthofthecarolinas.com. They do not give pain medication and they say they can actually help the pain of neuropathy. They use lasers and other type of treatment from Germany. We will be seeing a doctor there in mid May. We will be interviewed and we hope they will accept us and we can start treatment. We are praying that my partner can be helped. We have started a special diet of all organic foods and no artificial anything in food. The all natural foods are helping some. WE eat only all natural foods and only take vitamins and minerals that are all natural and kosher. If a cure ever is found for this problem, I feel that it will be food/nutrition related. The government will not pay for vitamin therapy because of the drug companies. If we are successful, we will be shouting about it on the internet. I wish you the best and we can feel your pain. Best of luck.

Good afternoon @jjwest I can connect with much that you said. I also have fibromyalgia and thymoma/thymic cancer. the last chemo I had we stopped half-way thru because it just wasn't working and with the side-effects wasn't worth finishing. I have had to work to get back on top of the pain a few times and it is hard to do. between the fibro, cancer, depression I take gabapentin, Cymbalta, chlorzozaxzone ( sorry about spelling) hydrocodone and hydrocontin. you would think I would be pain free but that is not the case. I take several other meds but they are related to the cancer one way or another. I can't wait until spring so I can get outdoors and garden but instead it is snowing...on top of the 14+ inches we got yesterday with terrible winds. I have also lost my libido and I feel so guilty I can tell it is not "ok" with my husband. I turned sixty this year so still a spring chicken LOL.

thank you to everyone that stood up and gave me some tips and advice.
allison

Thank YOU! please keep us informed of the progress. A medication free treatment sounds so very wonderful.
PEACE & LOVE P.S. thank yoiu for being a care giver.

Alison so wonderful to hear from you. I undersstand what you mean about being outside. For me it helps so very much with dealing with pain. If I come up with more information or things that have help me I will certainly share it with you. Cancer has such a fear for all of us. I admire deeply those who battle it. My first husband did not know about it until it was too late to treat it. And that was 20 yrs ago, and medicine has advanced so much since then. I pray that you will find relief and remission.
PEACE & LOVE....Jean

Eagerly awaiting your post after your partner's May visit. I tend to be suspicious of tv and print advertisements offering relief from neuropathy; however, I do find that chiropractors and osteopaths tend to be more open than most M.D.s when it comes to exploring possibilities.

I have peripheral neuropathy due to untreated pernicious anemia. B12 injections halt PA, but mine was undiagnosed until severe. Therefore nerve damage to peripheral areas will be with me forever. I have other pernicious symptoms also, but the neuropathy was the first. To diagnose PA, a blood test must be done to check the intrinsic factor in the stomach! It is not the common B12 deficiency. I take nothing for the neuropathy. Guys luck with yours. I’d like to see a good chiropractor or osteopath. How to find one?

What was the med that your husband stopped taking? Thank you

Have you seen a gastroenterologist? You could have esophageal issues causing peripheral neuropathy. I have nutcracker esophagus, esophagitis eosinophilic and gastroparesis due to spinal injuries starting at age 1 and just now figuring it out, I am 49. The nutcracker and gastroparesis are motility diseases. I don't expect you to have nutcracker, it's very rare and very painful but you may want to look up the others.

Diet is the only way I've been able to eliminate some of the nerve pain, you may want to try juicing as well