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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Apr 25 1:31pm | Replies (2916)

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@jjwest

Good Morning Everyone,
My name is Jean West and 74 yrs young. I have been dealing with neuropothy for at least 10 years. It started as many do, ini my feet, now over time is has advanced upto my knees and hands. I have been to an neurologist and was told that if Dr's could come up with a way to treat or cure this condition, they would be billionaires. My pain Dr. explained why I have it and that this particular type is perifial neuropothy. The first questions I am asked if that if I am a diabetic, and I am not. But I understand that diabeties is a big reason for this condition. My reason which has been told t ome by my Pain Dr, is that I have had so much trama to my spine top and bottom is what has caused this condition. I take 800mg + 50mg of tramadol every six hours. I set my cell phone alarm for these times so that I don't miss taking the meds, because I do sometimes forget, and catching up is very,very painful and sometimes I have to take extra meds for relief. I have learned that walking helps, just keeping my feet on the floor, so have pressure on my feet helps, I am getting scared to try to drive anymore because I cannot always feel the pedals. I have sever stenosis in my thoratic and lumbar section of my spine, I also have numerous bone spurs all up and down my spine. I have had two surgeries in my neck area due to bone spurs going into nerve canals. I have taken many injections in my spine and am about to have 4 more. I have a spine stimulator which has helped tremendously, but it only reaches to my waist. And now ithe stenosis has started in my area above that area. I am also getting catarac surgery on both eyes in June YAHOO! I am looking forward to that.
Anyone dealing with chronoic pain is a dear soul to me. We understand the devistation is does to our minds and body and everyday life. I have had pain control me, and now I take 100 Zoloft, walk as much as I can. Stay busy. I love to garden, love flowers, I do acryalic painting. I love to cook.
I have lost any kind of libidio and I am finally ok with that, and I am graqteful I have a domestic partner who understands. He has been my rock, and every once ina a while I send him off for a week or two to get away froom taking care of me. The gamapentin has made me gain weight even though I eat healthy and walk. It would probably be worse if I didn't. All I can contibute here is thaqt for me, you just have to accept that this is partof your life, you have to readjust and keep moving keep living and help each other.
PEACE AND MUCH LOVE
Jean

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Replies to "Good Morning Everyone, My name is Jean West and 74 yrs young. I have been dealing..."

Have you seen a gastroenterologist? You could have esophageal issues causing peripheral neuropathy. I have nutcracker esophagus, esophagitis eosinophilic and gastroparesis due to spinal injuries starting at age 1 and just now figuring it out, I am 49. The nutcracker and gastroparesis are motility diseases. I don't expect you to have nutcracker, it's very rare and very painful but you may want to look up the others.

What a thankful and uplifting message thank you