Yes I am. Trying to find alternative ways to deal with it besides gaberpentin. My toes and balls of toes are affected. Numb, pain, tingling and red swollen when I am wearing socks and shoes. I had to get special shoes that were soft and comfortable.
I just tried Gabapentin, up to 200mg three times a day, but wasn't thinking clearly, so I'm tapering off it.
Autonomic neuropathy sometimes causes eye problems, like blurry vision and double vision. Could it be that the disease is the source of the symptoms, rather than Gabapentin?
Yes I am. Trying to find alternative ways to deal with it besides gaberpentin. My toes and balls of toes are affected. Numb, pain, tingling and red swollen when I am wearing socks and shoes. I had to get special shoes that were soft and comfortable.
It this the same thing to me! I couldn't take it. Had the same issue's with the eye's, including floaters. Good point on Neuropathy! Having Chiari with severe nerve damage, it has affected one eye so far, blurry vision, double vision. Hmmm. Thanks for info!
While I'm a volunteer mentor with Connect this is my first question for the neuropathy group.
Here goes: For the past couple of weeks, I've had a tingling sensation on my inner right leg. It centers of the inner knee area and extends up the thigh and down the calf (all only on the inner rights side only). I do have arthritis in the right knee as well as lumbar disc problems (right lower back and right hip hurt the most). The tingling is the only symptom - no numbness, etc. Any suggestions as to this being a neuropathy-like condition?
John, Volunteer Mentor | @johnbishop | Feb 26, 2018
Good morning Teresa (@hopeful33250), I would welcome you to the polymyalgia rheumatica club but I'm hoping you're just a visitor ☺ I had similar issues with my arm when I didn't have PMR due to sleeping on it once in awhile. I wonder if it might be something similar - nerve compression? I did find a new one that I'm not familiar with - Meralgia paresthetica. The Mayo Clinic site has a description here - does this sound similar?
Thank you for the link, @johnbishop, that was interesting. The only difference between that description and my problem is that I only have the problem on the inner part of the leg, not the outer. You mentioned polymyalgia rheumatica, so I looked that up and see that it is on both sides of the body, not just one - hmmm - I hope that means I won't have to join that club 🙂
Thanks for your suggestion, perhaps I'll contact my neurologist - just would like some more background before I do that (I always prefer to be one step ahead of the doctor).
When I retired from nursing in 2006, had a two year bout with neuropathy. No numbness. Yes, had the imaging, the blood tests, and followed conventional medicine. Short of traveling to Mayo after two years of medical assessments and conventional therapy, since I am a long time researcher in alternative medicine. Tried something else. Started to read about benefits of turmeric(also found in different curry products), and developed a supportive network to new friends in the Philippines. Yes, short of the long trip to Mayo...the symptoms cleared. Most people know benefits of turmeric(and science based studies in functional food medicine, phytochemistry)...today, world wide, U.S.(Herbalgram a good network) and beyond. Plus a spiritual support, new friends, new thought patterns, and part of the integrative medical picture. Good Luck. Now I am investigating and slow progress with my bouts of dizziness(another neurological condition), as previously, conventional medicine not helpful(except to rule out conditions: MRI, CAT Scan, blood work. And finding a qualified neurologist And as before, to explore neurology research, yes, some progress: the herb of choice is ginger, and happily my spiritual support people in the Philippines. Good Luck. JIM>>>>
Yes I am. Trying to find alternative ways to deal with it besides gaberpentin. My toes and balls of toes are affected. Numb, pain, tingling and red swollen when I am wearing socks and shoes. I had to get special shoes that were soft and comfortable.
Jim, I've wondered the same thing: Is it the disease or is it Gabapentin. I have in my hand a script for Cymbalta, but as I have no drug insurance, I doubt that I'll get a month's supply for $458.99!
Yes I am. Trying to find alternative ways to deal with it besides gaberpentin. My toes and balls of toes are affected. Numb, pain, tingling and red swollen when I am wearing socks and shoes. I had to get special shoes that were soft and comfortable.
I am not a physician. I am not impressed with Gabapentin. But the technology, in plant medicine, including(marijuana), compared to the 60's or 80's....the science is unbelievable. Plant strains with little or no THC, and the science of phytochemistry is world wide and much advanced(I support wholely medical marijuana), the oils of that plant, in the right strain...functional food medicine. Good Luck. JIM>>>
Yes I am. Trying to find alternative ways to deal with it besides gaberpentin. My toes and balls of toes are affected. Numb, pain, tingling and red swollen when I am wearing socks and shoes. I had to get special shoes that were soft and comfortable.
Yes I am. Trying to find alternative ways to deal with it besides gaberpentin. My toes and balls of toes are affected. Numb, pain, tingling and red swollen when I am wearing socks and shoes. I had to get special shoes that were soft and comfortable.
I was glad to get off Cymbalta, as it was a primary contributor to ED. If it were legal to do so, I'd send you my last 2-3 month supply for a lot less than $458.99. It was ineffective for me for neuropathy pain.
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Welcome to Connect, @papillon3 .
I just tried Gabapentin, up to 200mg three times a day, but wasn't thinking clearly, so I'm tapering off it.
Autonomic neuropathy sometimes causes eye problems, like blurry vision and double vision. Could it be that the disease is the source of the symptoms, rather than Gabapentin?
Just a thought.
Jim
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4 ReactionsIt this the same thing to me! I couldn't take it. Had the same issue's with the eye's, including floaters. Good point on Neuropathy! Having Chiari with severe nerve damage, it has affected one eye so far, blurry vision, double vision. Hmmm. Thanks for info!
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Like -
Helpful -
Hug
2 ReactionsHello @johnbishop and All:
While I'm a volunteer mentor with Connect this is my first question for the neuropathy group.
Here goes: For the past couple of weeks, I've had a tingling sensation on my inner right leg. It centers of the inner knee area and extends up the thigh and down the calf (all only on the inner rights side only). I do have arthritis in the right knee as well as lumbar disc problems (right lower back and right hip hurt the most). The tingling is the only symptom - no numbness, etc. Any suggestions as to this being a neuropathy-like condition?
Teresa
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Helpful -
Hug
1 ReactionGood morning Teresa (@hopeful33250), I would welcome you to the polymyalgia rheumatica club but I'm hoping you're just a visitor ☺ I had similar issues with my arm when I didn't have PMR due to sleeping on it once in awhile. I wonder if it might be something similar - nerve compression? I did find a new one that I'm not familiar with - Meralgia paresthetica. The Mayo Clinic site has a description here - does this sound similar?
-- https://www.mayoclinic.org/diseases-conditions/meralgia-paresthetica/symptoms-causes/syc-20355635
John
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1 ReactionThank you for the link, @johnbishop, that was interesting. The only difference between that description and my problem is that I only have the problem on the inner part of the leg, not the outer. You mentioned polymyalgia rheumatica, so I looked that up and see that it is on both sides of the body, not just one - hmmm - I hope that means I won't have to join that club 🙂
Thanks for your suggestion, perhaps I'll contact my neurologist - just would like some more background before I do that (I always prefer to be one step ahead of the doctor).
Teresa
-
Like -
Helpful -
Hug
1 ReactionWhen I retired from nursing in 2006, had a two year bout with neuropathy. No numbness. Yes, had the imaging, the blood tests, and followed conventional medicine. Short of traveling to Mayo after two years of medical assessments and conventional therapy, since I am a long time researcher in alternative medicine. Tried something else. Started to read about benefits of turmeric(also found in different curry products), and developed a supportive network to new friends in the Philippines. Yes, short of the long trip to Mayo...the symptoms cleared. Most people know benefits of turmeric(and science based studies in functional food medicine, phytochemistry)...today, world wide, U.S.(Herbalgram a good network) and beyond. Plus a spiritual support, new friends, new thought patterns, and part of the integrative medical picture. Good Luck. Now I am investigating and slow progress with my bouts of dizziness(another neurological condition), as previously, conventional medicine not helpful(except to rule out conditions: MRI, CAT Scan, blood work. And finding a qualified neurologist And as before, to explore neurology research, yes, some progress: the herb of choice is ginger, and happily my spiritual support people in the Philippines. Good Luck. JIM>>>>
-
Like -
Helpful -
Hug
3 ReactionsJim, I've wondered the same thing: Is it the disease or is it Gabapentin. I have in my hand a script for Cymbalta, but as I have no drug insurance, I doubt that I'll get a month's supply for $458.99!
-
Like -
Helpful -
Hug
2 ReactionsI am not a physician. I am not impressed with Gabapentin. But the technology, in plant medicine, including(marijuana), compared to the 60's or 80's....the science is unbelievable. Plant strains with little or no THC, and the science of phytochemistry is world wide and much advanced(I support wholely medical marijuana), the oils of that plant, in the right strain...functional food medicine. Good Luck. JIM>>>
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Like -
Helpful -
Hug
1 Reaction@oh_suzie_q I love the picture of the kitty, very photogenic! Is that your cat?
Teresa
@steeldove
I was glad to get off Cymbalta, as it was a primary contributor to ED. If it were legal to do so, I'd send you my last 2-3 month supply for a lot less than $458.99. It was ineffective for me for neuropathy pain.
Jim