Anyone here dealing with peripheral neuropathy?

I have Peripheral Neuropathy which originally was diagnosed as idiopathic until a special blood test showed that I have a rare antibody FGFR3 . Which is the cause. I too have fibro and other autoimmune diseases like Hashimoto' thyroiditis. Osteoarthritis, pelvic floor dysfunction and I am a kidney cancer survivor.

Yes! I do. It is the results of pernicious anemia which went unrecognized and undiagnosed for several years, not sure just how long. I now have monthly B12 injections, so nerve damage will not further decline but will not abate either. I also have other symptoms.

Please read my reply to "untreated diabetes:" re gabapentin for neuropathy above. Superwife

Yes I am. Trying to find alternative ways to deal with it besides gaberpentin. My toes and balls of toes are affected. Numb, pain, tingling and red swollen when I am wearing socks and shoes. I had to get special shoes that were soft and comfortable.

@kgoodwin9

I have peripheral neuropathy with numbness and pins and needles, with burning pain in the balls of my feet and toes. The pain is much better since I had a spinal cord stimulator implant last June, but it's pretty bad if I'm on my feet very long, especially hard surfaces. At bedtime, I put Lidocaine cream on my feet, which numbs them for awhile and helps me go to sleep. I've tried every medication for neuropathy and then some. None of them have helped the pain, and the side effects have eliminated some. The only med that relieves the pain is morphine sulfate contin. I know that lots of people are looking for "natural" remedies, but so far I haven't heard of any. A case could be made that opiates are natural, and some people are helped by another natural, CBD. Maybe a treatment will be found some day that's less dangerous than many in use today.

If you discover one, we'd all appreciate it very much if you'd share it with us.

Jim

Hi Jim your looking for natural remedies then try what I did after suffering chronic pain with none of the pain killers working I approached. Hypnotherapist who was prepared to help me and after 2+ hours with her I went from an 8/9 pain level down to a two that was about 9 months ago and it has stayed at that level but it is something you must believe in
Regards Brian

Have had adverse reactions with Gabapentin. Eyes had difficulty focusing for almost a day after minimal dosage 100 mg at bedtime. What to try??

Hello @papillon3 -- welcome to Connect. Not all people react to gabapentin the same but vision problems are one of the less common side effects according to the information on Mayo Clinic's site here:
-- https://www.mayoclinic.org/drugs-supplements/gabapentin-oral-route/side-effects/drg-20064011

Have you talked to your doctor about the difficulty with your eyes focusing after taking the gabapentin? I think it's important to share that with them. Maybe they can recommend something else that helps.

I'm tagging other Connect members who have discussed gabapentin to see if they have any information they can share. @bonnieh218, @desirea, @jimhd, @donny67, @gman007 do you have any suggestions or information to share with @papillon3 ?

John

Hello @papillon3. I have been taking Gabapentin now for 10 yrs. It was prescribed to me for deep depression. I am sorry to report that I had no side effects except feeling happy on it. My thoughts were clearer, also. Some side effects do fade out, I've experienced with other medications. Gabapentin is prescribed for many different issues. Especially Peripheral neuropathy.
Take care for now!

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