Sudden temporary blindness in both eyes

Posted by traces @traces, Nov 10, 2021

I had a scary experience a couple of years ago and have never received an explanation. I was just sitting in a chair doing nothing and suddenly my vision disappeared completely in both eyes. No after images, nothing. It only lasted a few seconds but really scared me. Then my heart started beating wildly for a brief period. I asked my neurologist if it was related to vestibular migraines and he said no, and to let him know if it happened again. ?!!!??? I don’t want it to ever happen again. What if I was driving? Before this I had a concussion which was not resolving and a brain MRI which showed a mild, right brain stem lacunar stroke. Have seen a cardiologist, ophthalmologist, neuro ophthalmologist, optometrist, and have had no answers. Has “anyone” experienced something like this or have any idea what could cause it? It seems like blindness in one eye is more common but I can not find out much of anything on sudden temporary blindness in both eyes at once.

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Thank you for your comment. I feel more on the right track. I think I found a willing new MD. He sent me forms to fill that I can carry to my appointment.

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I just retired from 40 years of eye care practice myself, and I very clearly remember the first patient I saw who suffered from ophthalmic migraine. She was under great academic stress, and crashed her bike into a bus stop sign when her central vision darkened. She was terrified, justifiably.
You definitely could find a more compassionate doctor. Most ophthalmologists don't have time (time=$) to review all the ins & outs of the condition, because it is so nerve wracking to experience, and generates a thousand (justified) questions/concerns. You may be better off with an optometrist or a neuro-ophthalmic physician's assistant, both of whom are on average more inclined to prolonged patient education. (Disclosure: I am an optometrist, who worked in practice with a purely surgical ophthalmologist the last third of my career)
Any visual disturbance that shuts off your vision warrants an initial workup to be certain that it's migraine and not blood vessel obstruction or inflammation, which are far less common but have serious consequences. "Eye Migraine" is scary-- I equate them with panic attacks, which also are terrifying until you've had enough of them to recognize and learn to manage them with daily practice of stress management techniques. Good luck.

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In 2014, when I was 61 years old, I was sitting at a restaurant with my family, relaxing and chatting, when suddenly my vision disappeared (binocular) and was replaced by complete color static. It looked exactly like old color TV screens looked when the local broadcast station (pre-cable) signed off for the evening after the national anthem. It was flashing in colored micro-dots exactly like that TV static. It was not visual snow overlaid on what I was seeing around me. It was complete replacement of everything. I was bringing in light, but it wasn't being . . . processed.

I was talking at the time to one of my daughters' boyfriend and was looking to my left at him, and obviously I went silent. It took a few seconds to comprehend that I was blind, but seeing only static. After probably 5-7 seconds I realized this was really happening. I suddenly had an internal panic reaction that something had happened and that this might be permanent. I might have suddenlly become blind. In a flash (no pun intended).

And then just as I felt a physical panic reaction begin to sweep through me, my vision returned to complete normal. I realized that I had turned my head and was looking straight ahead at my daughter, who was looking down the table talking to others. I turned my head back to Sam and he was looking at me with no alarm on his face.

In the midst of a massive relief, but still full of fear that it could come back at any time, I calmed myself and said, fairly coolly, "Hey, while we were talking you were looking at my face and eyes. Did you just see anything strange come over my face?" He said, "Well, your eyes widened and you stopped talking mid-sentence. Why? I thought that some idea had come into your head and you were thinking of how to say it." So I told him what happened, and asked him how long I had been silent. He said, "Ten seconds or less. Probably less."

Needless to say, for several weeks, I went through MRIs and all sorts of other tests, including when I was asleep. They considered everything from migraines to seizures to TIAs to tumors to all sorts of things. They could find nothing bad. The good news was they said, "According to what we found you have the brain of a 35-40 year old man. Brain volume decreases with age, but thats where you're at."

I was leery of driving for a while for fear it could return. But it never did. It's been more than nine years now. Still no idea. But I was thinking about it just today and decided to type in some search terms just to see if anyone else has had the same thing happen and what they learned.

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Hi I’m Sharon I’ve been having what you have described for two year on and off at first they thought it was stroke but my recovery was to quick since then I’ve had it happen at least 7 times maybe more it’s so scary my heart beat felt so slow then it when my eyesight came back it was so fast I thought it was because I panicked since then I’ve had 2 echocardiogram 3 ECG bloods 2 holters and then a heart loop recorder fitted in my chest it’s picked up that I have a fast heart rate and that I produce a extra 7 beats in my lower chambers which there not worried over I’ve just recently had my eyes tested at the hospital which I waited a year for they said my eyesight is very good I do have very small cataracts but this wouldent cause my vision loss in both eyes I can only describe it as shutters going down everything is black and I can still here every thing but not see then my vision comes back in stages and all distorted I’ve had 2 brain scan one last year and another 3 weeks ago I’ve also had a phone call recently from hospital to say they picked up some irregular heart beats in my upper chambers I’m also diabetic but that under control I’m at a complete loss as I’ve other health issues arthritis spondylitis of the spine blood pressure and high cholesterol I just wish I new what it was it so scared going out on your own and you lose your eyesight last one I had was two weeks a Ho in wales and I had just got across the road and my vision went

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