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Low dose naltrexone for Post-Covid Recovery experiences?
Post-COVID Recovery & COVID-19 | Last Active: 5 days ago | Replies (92)Comment receiving replies
Has anyone tried low dose Naltrexone or CQ10?
The Long Covid Clinic at Scripps has not been very helpful, with the exception of the physical therapists. I am desperately trying to crawl out of this syndrome . I start feeling better then increase my activity and that is followed by fatigue. I will start the low histamine diet and see how that goes.
Replies to "Has anyone tried low dose Naltrexone or CQ10? The Long Covid Clinic at Scripps has not..."
Thank you so much. I have Anthem. I am going to try getting this in liquid form.
I reached out to my contact at the Long Covid Clinic and she gave me this link for purchasing LDN, https://valorcompounding.com/low-dose-naltrexone/. They have a flat rate of $45 per 30 pills. Wanted everyone to have this in case you are also having issues with the cost of this medicine. This is better than the $70 per month I was being charged.
I have been using LDN for about 5 months and have seen some improvement without very many side effects. Call different compounding pharmacies in your state. In Oregon I found one in Portland that will mail it to me . It costs $70 for 90 at 4.5 mg.
The liquid form is a little more hassle than a pill in that you need to use a syringe to pull up the right amount and then drink it. But the cost is amazing - with insurance coverage it is about $3.50 for six months (yes correct decimal place). I was paying over $1000 a year at the compounding pharmacy with no insurance coverage.
My CRNP does not seem to be aware of the liquid option. I am now paying $45 vs $70 for 30 pills. $3.50 would be much better. Do you mind my asking who prescribed the liquid for you? Was it through a Long COVID clinic?
This is to correct an earlier post where I said I was taking liquid form LDN and that my insurance will cover it unlike the compounded form. Almost correct ... I have to make up the liquid form from 50mg tablets. So one 50mg tablet is combined with 50ml water to make a 1mg/ml solution. I then use a syringe (no needle) to measure 3ml to take. Insurance (Anthem) covers the tablets so they are amazingly cheap - $5.00 for 30 tablets which for me at 3mg/day is a 450 day supply! Sure beats paying the compounding pharmacy around $80 a month.
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Has anyone had luck with having insurance cover LDN. It is quite expensive. I am thinking of reaching out to the manufacturer. I see a big difference in my exhaustion level when I take this. They gradually increased the dosage for me. I have vivid dreams but can live with that.