← Return to Trouble diagnosing Parkinson's

Discussion

Trouble diagnosing Parkinson's

Parkinson's Disease | Last Active: Aug 29, 2023 | Replies (11)

Comment receiving replies
@kerryberry

I'm so sorry. Has a diagnosis and effective treatment been found since you posted this? I have fibromyalgia, a child with PANDAS, and an inlaw with parkinson's. I have met other parents of kids with PANDAS or PANS, who they themselves have developed a movement disorder, or one of their other kids did, often after an infection. One resource that may be helpful is the Neuroimmune Foundation (neuroimmune dot org). I believe they had a movement disorder specialist speak a recent conference. MS is even now thought to result from epstein barr virus. I actually think there is some common link among all of these conditions, likely genetic, that predisposes to post-infectious issues.

Jump to this post


Replies to "I'm so sorry. Has a diagnosis and effective treatment been found since you posted this? I..."

Hello @kerryberry and welcome to the Parkinson's support group on Mayo Clinic Connect. You and your family are certainly dealing with a lot of neurological problems.

As I was unfamiliar with the diagnosis of PANDAS, I did some internet research and found this information for others, like me, who are unfamiliar with it. Here is a link to the information,
https://my.clevelandclinic.org/health/diseases/23553-pandas-syndrome
If you are comfortable sharing more, how long ago was your child diagnosed with PANDAS? What type of specialist diagnosed this? Were there scans, or blood tests that revealed this or was it diagnosed by ruling out other possible disorders?