I had a good appointment today with the neurologist. The ENT doctors recommended that I talk with him about the issues I went to them for. I'm going to have more tests that could tell me if other problems I'm having are connected with neuropathy. Then we can figure out if we just treat the symptoms or if something can be done to treat the underlying cause. Some of the problems are numbness and aching in my hands, occasional dizziness with a loud buzzing, swallowing, esophageal dysmotility, urinary issues, ED, tripping, balance... We'll see.
I had a good appointment today with the neurologist. The ENT doctors recommended that I talk with him about the issues I went to them for. I'm going to have more tests that could tell me if other problems I'm having are connected with neuropathy. Then we can figure out if we just treat the symptoms or if something can be done to treat the underlying cause. Some of the problems are numbness and aching in my hands, occasional dizziness with a loud buzzing, swallowing, esophageal dysmotility, urinary issues, ED, tripping, balance... We'll see.
I had neuropathy for two years, experimented with turmeric(still use today) effective; and two years of communication with new friends in Philippines(on e mail)...effective. Yes, visit with ER and Neurologist, did not find a mass but the Neurologist did a full assessment, re assessed my MRI and wisely alerted me, "if chronic headaches", see me again. This visit with neurologist was in relation to the dizziness that emerged two years ago, seems similar to my bout with neuropathy. I believe in wise use of alternative and conventional medicine, so far, effective. JIM>>>
pk - I was diagnosed with Peripheral Neuropathy as well - I have seen a neurologist who asked me to see another nerve doctor -I have this appointment tomorrow. During the day I have a lot of burning pain in my upper right thigh but I don't want to take any pain medicine since I am still working full time. Do you take a Turmeric pill or do you cook with it? It sounds like it is helping you with your pain? I don't have any headaches but having a lot of pain in both of my legs. I have a small tumor on the L5 nerve root and have arthritis & herniated disk on lower back so I'm sure it has a lot to do with it. This past winter I made a delicious broth with it but need to start using it again. Very curious about the Turmeric. THANK YOU!!
I had a good appointment today with the neurologist. The ENT doctors recommended that I talk with him about the issues I went to them for. I'm going to have more tests that could tell me if other problems I'm having are connected with neuropathy. Then we can figure out if we just treat the symptoms or if something can be done to treat the underlying cause. Some of the problems are numbness and aching in my hands, occasional dizziness with a loud buzzing, swallowing, esophageal dysmotility, urinary issues, ED, tripping, balance... We'll see.
pk - I was diagnosed with Peripheral Neuropathy as well - I have seen a neurologist who asked me to see another nerve doctor -I have this appointment tomorrow. During the day I have a lot of burning pain in my upper right thigh but I don't want to take any pain medicine since I am still working full time. Do you take a Turmeric pill or do you cook with it? It sounds like it is helping you with your pain? I don't have any headaches but having a lot of pain in both of my legs. I have a small tumor on the L5 nerve root and have arthritis & herniated disk on lower back so I'm sure it has a lot to do with it. This past winter I made a delicious broth with it but need to start using it again. Very curious about the Turmeric. THANK YOU!!
Here's a great website for making golden paste (turmeric) - http://turmericlife.com.au/turmeric-recipes-golden-paste/. It also has a lot of other turmeric information. I haven't made it yet but got the link to the site from some friends that make it and even give it to pets. There are different recipes for use.
I had a good appointment today with the neurologist. The ENT doctors recommended that I talk with him about the issues I went to them for. I'm going to have more tests that could tell me if other problems I'm having are connected with neuropathy. Then we can figure out if we just treat the symptoms or if something can be done to treat the underlying cause. Some of the problems are numbness and aching in my hands, occasional dizziness with a loud buzzing, swallowing, esophageal dysmotility, urinary issues, ED, tripping, balance... We'll see.
@jimhd All of your symptoms might be connected to small fiber polyneuropathy. I suggest that you go online to www. Neuropathycommons.org and read about the research being done by Dr. Louise Oaklander. Good luck!
I had a good appointment today with the neurologist. The ENT doctors recommended that I talk with him about the issues I went to them for. I'm going to have more tests that could tell me if other problems I'm having are connected with neuropathy. Then we can figure out if we just treat the symptoms or if something can be done to treat the underlying cause. Some of the problems are numbness and aching in my hands, occasional dizziness with a loud buzzing, swallowing, esophageal dysmotility, urinary issues, ED, tripping, balance... We'll see.
Thanks for the information. I just saw the neurologist this week, and he's ordered tests to see if what I have is small fiber neuropathy, and also if it's autonomic neuropathy. I should have some answers in a few weeks.
RLS = Restless Leg Syndrome. Best thing you can do at this point is to Google that term and read about it in depth. Especially the pros and cons on the two main medications used to treat it: Requip and Mirapex. I have done both of them and I am on Mirapex now for several years.
I have the RLS and I wonder.. anyone else have it in their hands and arms? It's very frustrating! I do!
Anyone else just literally fall asleep randomly. I just check out without warning!
Darlia
As a matter of fact I have recently been diagnosed with the FGFR3 ANTIBODY (rare) which is the CAUSE of my peripheral neuropathy now I am told.
Also have Gastroparesis because of this ANTIBODY. Neurotically my stomach nerves don't work properly and it takes my stomach 5-6 x longer to digest
I posted a post titled FGFR3 ANTIBODY, for those interested, please go there and leave me your comments.
Just knowing the CAUSE now starts to feel a little better.
For anyone diagnosed as idiopathic Neuropathy. Have your Dr test for the FGFR3 ANTIBODY. This is supposedly the cause of many people's Peripheral Neuropathy but wont know it until it's tested. Blood test
RLS = Restless Leg Syndrome. Best thing you can do at this point is to Google that term and read about it in depth. Especially the pros and cons on the two main medications used to treat it: Requip and Mirapex. I have done both of them and I am on Mirapex now for several years.
Connect
Connect
Like
Helpful
Hug
I had a good appointment today with the neurologist. The ENT doctors recommended that I talk with him about the issues I went to them for. I'm going to have more tests that could tell me if other problems I'm having are connected with neuropathy. Then we can figure out if we just treat the symptoms or if something can be done to treat the underlying cause. Some of the problems are numbness and aching in my hands, occasional dizziness with a loud buzzing, swallowing, esophageal dysmotility, urinary issues, ED, tripping, balance... We'll see.
Jim
-
Like -
Helpful -
Hug
1 ReactionI had neuropathy for two years, experimented with turmeric(still use today) effective; and two years of communication with new friends in Philippines(on e mail)...effective. Yes, visit with ER and Neurologist, did not find a mass but the Neurologist did a full assessment, re assessed my MRI and wisely alerted me, "if chronic headaches", see me again. This visit with neurologist was in relation to the dizziness that emerged two years ago, seems similar to my bout with neuropathy. I believe in wise use of alternative and conventional medicine, so far, effective. JIM>>>
pk - I was diagnosed with Peripheral Neuropathy as well - I have seen a neurologist who asked me to see another nerve doctor -I have this appointment tomorrow. During the day I have a lot of burning pain in my upper right thigh but I don't want to take any pain medicine since I am still working full time. Do you take a Turmeric pill or do you cook with it? It sounds like it is helping you with your pain? I don't have any headaches but having a lot of pain in both of my legs. I have a small tumor on the L5 nerve root and have arthritis & herniated disk on lower back so I'm sure it has a lot to do with it. This past winter I made a delicious broth with it but need to start using it again. Very curious about the Turmeric. THANK YOU!!
-
Like -
Helpful -
Hug
1 Reaction@jimhd We appreciate the update, Jim. I'm wishing you well and continue to pray for you. Your sharing is so helpful to our group.
Teresa
-
Like -
Helpful -
Hug
1 ReactionHere's a great website for making golden paste (turmeric) - http://turmericlife.com.au/turmeric-recipes-golden-paste/. It also has a lot of other turmeric information. I haven't made it yet but got the link to the site from some friends that make it and even give it to pets. There are different recipes for use.
John
-
Like -
Helpful -
Hug
2 Reactions@jimhd All of your symptoms might be connected to small fiber polyneuropathy. I suggest that you go online to www. Neuropathycommons.org and read about the research being done by Dr. Louise Oaklander. Good luck!
-
Like -
Helpful -
Hug
1 Reaction@steeldove
Thanks for the information. I just saw the neurologist this week, and he's ordered tests to see if what I have is small fiber neuropathy, and also if it's autonomic neuropathy. I should have some answers in a few weeks.
Jim
-
Like -
Helpful -
Hug
3 ReactionsI have the RLS and I wonder.. anyone else have it in their hands and arms? It's very frustrating! I do!
Anyone else just literally fall asleep randomly. I just check out without warning!
Darlia
For anyone diagnosed as idiopathic Neuropathy. Have your Dr test for the FGFR3 ANTIBODY. This is supposedly the cause of many people's Peripheral Neuropathy but wont know it until it's tested. Blood test
@darlia
Time for a sleep study. What you describe is called narcolepsy.
Jim