Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016

Alison so wonderful to hear from you. I undersstand what you mean about being outside. For me it helps so very much with dealing with pain. If I come up with more information or things that have help me I will certainly share it with you. Cancer has such a fear for all of us. I admire deeply those who battle it. My first husband did not know about it until it was too late to treat it. And that was 20 yrs ago, and medicine has advanced so much since then. I pray that you will find relief and remission.
PEACE & LOVE….Jean

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@ealanddtc

I am a care giver for my partner who has peripheral neuropathy. All he has been offered is pain medication. If you do the research, you will find that many times the medication will make your condition worse. We have found a facility in Charlotte, NC and you can see this on line at: http://selecthealthofthecarolinas.com. They do not give pain medication and they say they can actually help the pain of neuropathy. They use lasers and other type of treatment from Germany. We will be seeing a doctor there in mid May. We will be interviewed and we hope they will accept us and we can start treatment. We are praying that my partner can be helped. We have started a special diet of all organic foods and no artificial anything in food. The all natural foods are helping some. WE eat only all natural foods and only take vitamins and minerals that are all natural and kosher. If a cure ever is found for this problem, I feel that it will be food/nutrition related. The government will not pay for vitamin therapy because of the drug companies. If we are successful, we will be shouting about it on the internet. I wish you the best and we can feel your pain. Best of luck.

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Eagerly awaiting your post after your partner's May visit. I tend to be suspicious of tv and print advertisements offering relief from neuropathy; however, I do find that chiropractors and osteopaths tend to be more open than most M.D.s when it comes to exploring possibilities.

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I have peripheral neuropathy due to untreated pernicious anemia. B12 injections halt PA, but mine was undiagnosed until severe. Therefore nerve damage to peripheral areas will be with me forever. I have other pernicious symptoms also, but the neuropathy was the first. To diagnose PA, a blood test must be done to check the intrinsic factor in the stomach! It is not the common B12 deficiency. I take nothing for the neuropathy. Guys luck with yours. I’d like to see a good chiropractor or osteopath. How to find one?

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@kareniowa

As you all know neuropathy can have many causes! My husbands neuropathy several years ago disappeared when he stopped a med he’d been on for a couple of years to prevent UTI’s that had not caused a problem in the first year or so! Since then 2 other totally unrelated meds have caused neuropathy so we feel it may be related to “fillers” that are used to produce meds! Look closely at all the meds you are on even those you’ve been on for a long time! When possible stop a med and see if neuropathy lessons after a couple of weeks. If it is a filler there is not a good way to figure that out!

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What was the med that your husband stopped taking? Thank you

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@jjwest

Good Morning Everyone,
My name is Jean West and 74 yrs young. I have been dealing with neuropothy for at least 10 years. It started as many do, ini my feet, now over time is has advanced upto my knees and hands. I have been to an neurologist and was told that if Dr's could come up with a way to treat or cure this condition, they would be billionaires. My pain Dr. explained why I have it and that this particular type is perifial neuropothy. The first questions I am asked if that if I am a diabetic, and I am not. But I understand that diabeties is a big reason for this condition. My reason which has been told t ome by my Pain Dr, is that I have had so much trama to my spine top and bottom is what has caused this condition. I take 800mg + 50mg of tramadol every six hours. I set my cell phone alarm for these times so that I don't miss taking the meds, because I do sometimes forget, and catching up is very,very painful and sometimes I have to take extra meds for relief. I have learned that walking helps, just keeping my feet on the floor, so have pressure on my feet helps, I am getting scared to try to drive anymore because I cannot always feel the pedals. I have sever stenosis in my thoratic and lumbar section of my spine, I also have numerous bone spurs all up and down my spine. I have had two surgeries in my neck area due to bone spurs going into nerve canals. I have taken many injections in my spine and am about to have 4 more. I have a spine stimulator which has helped tremendously, but it only reaches to my waist. And now ithe stenosis has started in my area above that area. I am also getting catarac surgery on both eyes in June YAHOO! I am looking forward to that.
Anyone dealing with chronoic pain is a dear soul to me. We understand the devistation is does to our minds and body and everyday life. I have had pain control me, and now I take 100 Zoloft, walk as much as I can. Stay busy. I love to garden, love flowers, I do acryalic painting. I love to cook.
I have lost any kind of libidio and I am finally ok with that, and I am graqteful I have a domestic partner who understands. He has been my rock, and every once ina a while I send him off for a week or two to get away froom taking care of me. The gamapentin has made me gain weight even though I eat healthy and walk. It would probably be worse if I didn't. All I can contibute here is thaqt for me, you just have to accept that this is partof your life, you have to readjust and keep moving keep living and help each other.
PEACE AND MUCH LOVE
Jean

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Have you seen a gastroenterologist? You could have esophageal issues causing peripheral neuropathy. I have nutcracker esophagus, esophagitis eosinophilic and gastroparesis due to spinal injuries starting at age 1 and just now figuring it out, I am 49. The nutcracker and gastroparesis are motility diseases. I don't expect you to have nutcracker, it's very rare and very painful but you may want to look up the others.

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@ealanddtc

I am a care giver for my partner who has peripheral neuropathy. All he has been offered is pain medication. If you do the research, you will find that many times the medication will make your condition worse. We have found a facility in Charlotte, NC and you can see this on line at: http://selecthealthofthecarolinas.com. They do not give pain medication and they say they can actually help the pain of neuropathy. They use lasers and other type of treatment from Germany. We will be seeing a doctor there in mid May. We will be interviewed and we hope they will accept us and we can start treatment. We are praying that my partner can be helped. We have started a special diet of all organic foods and no artificial anything in food. The all natural foods are helping some. WE eat only all natural foods and only take vitamins and minerals that are all natural and kosher. If a cure ever is found for this problem, I feel that it will be food/nutrition related. The government will not pay for vitamin therapy because of the drug companies. If we are successful, we will be shouting about it on the internet. I wish you the best and we can feel your pain. Best of luck.

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Diet is the only way I've been able to eliminate some of the nerve pain, you may want to try juicing as well

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@ealanddtc

I am a care giver for my partner who has peripheral neuropathy. All he has been offered is pain medication. If you do the research, you will find that many times the medication will make your condition worse. We have found a facility in Charlotte, NC and you can see this on line at: http://selecthealthofthecarolinas.com. They do not give pain medication and they say they can actually help the pain of neuropathy. They use lasers and other type of treatment from Germany. We will be seeing a doctor there in mid May. We will be interviewed and we hope they will accept us and we can start treatment. We are praying that my partner can be helped. We have started a special diet of all organic foods and no artificial anything in food. The all natural foods are helping some. WE eat only all natural foods and only take vitamins and minerals that are all natural and kosher. If a cure ever is found for this problem, I feel that it will be food/nutrition related. The government will not pay for vitamin therapy because of the drug companies. If we are successful, we will be shouting about it on the internet. I wish you the best and we can feel your pain. Best of luck.

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Amen! I agree and we as well are getting ready to start juicing in the Joe Cross Reboot ( watch the documentary "Fat, Sick and Nearly Dead') he has swept the world with juicing as medicine! It's even physician approved and I am excited to give it a go! If I can stop the pain and progression of the Peripheral Neuropathy, Fibromyalgia, Thyroid function, osteoarthritis, Gastroparesis with juicing and then a mostly plant based diet following… then whoo hoo!! I will update my progress after a couple of weeks after we start. Hope it helps! Drugs have side effects, cost a lot or DON'T WORK. I am not taking any drugs for Peripheral Neuropathy or Fibro or Gastroparesis or arthritis. I'm using organic dehydrated Super Foods of 50 ingredients mixed in almond milk or juice.(Walmart, anywhere from $10-15) Then Tumeric capsules and Vit D.
Just Keep Swimming…
Darlia

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Hi, I'm 86 and have had peripheral neuropathy for a long number of years. I see a Neurologist and he has run different tests, but never found a cause. I take 3 Gabapentin each day and I am able to live with it. As far as I know, there is no cure. I also have a bulging disc, spinal stenosis and Scoliosis. I have an appointment for a spinal injection next week. 🙂

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@pdsi43one

I have peripheral neuropathy due to untreated pernicious anemia. B12 injections halt PA, but mine was undiagnosed until severe. Therefore nerve damage to peripheral areas will be with me forever. I have other pernicious symptoms also, but the neuropathy was the first. To diagnose PA, a blood test must be done to check the intrinsic factor in the stomach! It is not the common B12 deficiency. I take nothing for the neuropathy. Guys luck with yours. I’d like to see a good chiropractor or osteopath. How to find one?

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Hello @pdsi43one — I have no medical training or background. I do have osteopenia and your question is a good one. How to find a good chiroprator or osteopathic doctor. I really didn't know what a doctor of osteopathic medicine (D.O.) was until I did some research. Mayo Clinic has some good information here:

What kind of doctor is a D.O.? Does a D.O. have the same training as an M.D.?
https://www.mayoclinic.org/healthy-lifestyle/consumer-health/expert-answers/osteopathic-medicine/faq-20058168

I found a website associated with The American Osteopathic Association that provides more information and a search function to find a DO in specific locations:
https://doctorsthatdo.org/difference

Hope this helps.

John

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@liz223

Hi, I'm 86 and have had peripheral neuropathy for a long number of years. I see a Neurologist and he has run different tests, but never found a cause. I take 3 Gabapentin each day and I am able to live with it. As far as I know, there is no cure. I also have a bulging disc, spinal stenosis and Scoliosis. I have an appointment for a spinal injection next week. 🙂

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Hello @liz223, I have idiopathic small fiber peripheral neuropathy and the neurologist thinks it might be hereditary. I once heard an 80 year old research neurologist at a neuropathy support meeting say if you live long enough you will get neuropathy. Didn't make me feel any better but at 74 soon to be 75 I'm OK with it. I don't have pain with my neuropathy so I don't have to take any medications for it.. I just have the tingling and numbness.

You mentioned you have spinal stenosis and Scoliosis. There is a discussion you might want to read through here:

Scoliosis – Introduce yourself and meet others
https://connect.mayoclinic.org/discussion/scoliosis-introduce-yourself/

John

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@pdsi43one

I have peripheral neuropathy due to untreated pernicious anemia. B12 injections halt PA, but mine was undiagnosed until severe. Therefore nerve damage to peripheral areas will be with me forever. I have other pernicious symptoms also, but the neuropathy was the first. To diagnose PA, a blood test must be done to check the intrinsic factor in the stomach! It is not the common B12 deficiency. I take nothing for the neuropathy. Guys luck with yours. I’d like to see a good chiropractor or osteopath. How to find one?

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Thank you, John. Will search out a DO using the link you sent .

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It’s really bad in my buttocks

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