Anyone here dealing with peripheral neuropathy?
Liked by John, Volunteer Mentor, peggyj4411, jazzy27, heather074 ... see all
Thank you, John, this is very useful information. Elisabetha
I have neuropathy for no real reason also. Do you have any nerve damage in your body? Or fibromyalgia? These are 2 possibilities of why I have. Have heard that if you have nerve damage anywhere in your body can cause neuropathy throughout. I have muscle/nerve damage in my lower right abdomen and nerve damage in my pelvis.
Have also been told that fibromyalgia (which I also have) can go hand in hand with neuropathy. Although I do know others with fibro that don't suffer from neuropathy.
Hope this helps a bit as I am newer to Mayo clinic chat.
Good luck
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I also have peripheral neuropathy in feet after chemo 22 months ago. It has not seemed to improve any. I also developed plantar fasciitis in both feet unknowingly until it got so bad I could not walk hardly at all. I have resolved it in my right foot but left persists. Be careful of that.
Since 2010. While at work in 2008 I began to get lazy, lethargic and down right no drive. I went to the local Drs and for a year felt like a ping pong ball bouncing around all the "specialists" and being referred to another. I finally made it to a Dr who administered chemo to MAYO oncology patients. Within two weeks results came back as having developed Amaloidosis from "Agent Orange". After appealing to the MAYO for help, I was acceepted into a pilot program to use cancer treatment chemo to place it into remission. All this began in 2010 and side effects were to be neuropathy for 60 months and then disapate or not at all. Guess what, 8 years later it is worsening. Because the amaloids attached themselves to the heart lining, kidneys and lungs thre is no regeneration. Sex, or lack of sexual drive was also a side effect. Again it would return after 6 months or not at all. You guessed it. Not. Yes Gabepentin was a little help but is extruded thru the kidneys damaging them further so has been halted by my wonderful DRs at MAYO. My suggestion is to go to MAYO where they will find body parts guilty by association to prevent worsening side effects.
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it helps hot flashes ? At what strength? I take 300mg 3 times a day. The hot flashes have gotten horrific after being put back on prednisone for the 4th ? time started out at 20mg right away and that's where it sits. They put me back on the prednisone to try to shrink the sarcoidosis (sp)? in and around my right lung
Just as a side note I was already on Cymbalta for depression and I wonder what % of PN patients have fibro? As I have it also, hard to say how long, at least 15 years as they used to say it took 5 yrs average to reach a fibro diagnosis they seem to prefer to bump you from one spec. to another and they all say the same thing "it's all in your head" things may have improved sine I was diagnosed I hope so !
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@martid Like you, my PN is in my feet. I have the same stuff going on as your hands, only in my feet. The outside skin in numb, while the muscles inside sometimes hurt. This makes walking scary. I was taking Gabapentin three times a day but it didn't seem to be doing any good. So with my PCP's okay, I dropped it to 300 mg twice a day. It made no difference. Please post any information that helps you, and good luck. @cognac
I just watched a video on u-tube The speaker's name is; Anne Louise shes a neuro-scientist (Harvard University) this was very helpful.
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I have a comment/question that may seem silly to some but is very important to me; I have been prescribed Gabapentin (Neurontine) for prevention of PHN (after shingles). After one pill i got very dizzy and started reading up on it. I found it a bit scary to realize that gabapentin is for epileptic and other seizures as well as psychoses. The side effects seem very severe as well. Given that this has been prescribed for me prophylactically, i wonder if the side effects are too severe? I am supposed to take 3×300 for seven days, then 2×300 for seven days, then 1×300 for seven days. Have any of you had this prescription for PHN ? Thank you,
Elisabetha
@prudence
Anyone here dealing with severe pain in ankles knees wrists