Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016
@mfobrien36

Hi old karl and john – Please don’t count on the “jelly” variety of calcium to be less of a constipation-er (medical term)! I looked for a long time to find a tasty calcium jelly that would be both candy and good for me. I experienced the constipation almost immediately. My mother, on the other hand (she died at nearly 102) took the regular old whopping big calcium pills most of her life and never had a problem with it. This tells me it may be an individual thing but she usually had a cup of strong coffee in the morning and had to stop that ’cause it gave her the “trots” – so who knows? Might try several different permutations of the calcium &/or coffee…. hmmmm?

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☺They haven’t been converted yet. I mean after all – “Life is a box of chocolates…”

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A number of years ago, my cat had the same trouble and $1500 later, was put on a prescription called Latchulose (sp?) My experience with this product is that it is by prescription only – even for humans as my friend also had it prescribed and we had a good laugh over that when I accused him of stealing my cat’s meds. I think you can also get Miralax from Costco through Amazon and that doesn’t require a prescription – this is the generic brand of Miralax. It comes in a triple pack and is considerable cheaper than Miralax. Do I know my laxatives or not!

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@mfobrien36

Hi old karl and john – Please don’t count on the “jelly” variety of calcium to be less of a constipation-er (medical term)! I looked for a long time to find a tasty calcium jelly that would be both candy and good for me. I experienced the constipation almost immediately. My mother, on the other hand (she died at nearly 102) took the regular old whopping big calcium pills most of her life and never had a problem with it. This tells me it may be an individual thing but she usually had a cup of strong coffee in the morning and had to stop that ’cause it gave her the “trots” – so who knows? Might try several different permutations of the calcium &/or coffee…. hmmmm?

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@johnbishop – I live on a very low, fixed income, so that leads me to get the prescription form of meds, even if it’s available OTC, because it’s less out of pocket cost for me. I know that I’d get a lot of criticism for doing that, but budget drives a lot of decisions. Anyway, I don’t pay much for the generlac prescription,with Medicare and a supplemental insurance.

Jim

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@mfobrien36

Hi old karl and john – Please don’t count on the “jelly” variety of calcium to be less of a constipation-er (medical term)! I looked for a long time to find a tasty calcium jelly that would be both candy and good for me. I experienced the constipation almost immediately. My mother, on the other hand (she died at nearly 102) took the regular old whopping big calcium pills most of her life and never had a problem with it. This tells me it may be an individual thing but she usually had a cup of strong coffee in the morning and had to stop that ’cause it gave her the “trots” – so who knows? Might try several different permutations of the calcium &/or coffee…. hmmmm?

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Me too and I think you're doing it the right way!

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@aliskahan

Hi @rabbit10 and welcome to Connect! I want to connect you with @martid, and @grandma41 who have both recently written about peripheral neuropathy. They both had different causes of their diagnosis and can discuss their experiences with you.

How long have you been dealing with peripheral neuropathy?

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I have chemo neuropathy, could you give me the name of the supplements your friends on Facebook. Used.

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@aliskahan

Hi @rabbit10 and welcome to Connect! I want to connect you with @martid, and @grandma41 who have both recently written about peripheral neuropathy. They both had different causes of their diagnosis and can discuss their experiences with you.

How long have you been dealing with peripheral neuropathy?

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Hi @jersey, I wasn’t sure who you meant for your message but if it was me – I use the vitamins and supplements listed here:
http://solutions2pnpd.com/
They do have their 501c3 status. I don’t know whether it will work for you but I can share how it’s helped me. If you join their closed group you can read the success stories they’ve had. My small fiber peripheral neuropathy has been going on for over 20 years before I finally sought out a diagnosis in the spring of 2016. I only have numbness with my PN and when I started taking the vitamins and supplements in September 2016 the numbness was in both legs to just below the knees. By December the numbness was down some to just above the ankles – it’s subjective on my part though. I haven’t seen any additional improvements since then and I’m still taking the protocol of supplements because it may not make the numbness go away totally but does seem to have stopped it’s progress which is what my neurologist told me was going to happen. It would keep getting worse until it affect the autonomic nervous system (I think is what he said).

Whatever you decide, I would recommend reading through all the discussions and material they have and it’s a lot. Then would discuss it with your doctor.

John

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Now I am over 70 y.o., I did read that elderly, have 70% neurological problems. When I retired, neuropathy, luckily had imaging of brain and explored options in conventional medical world, even though medical research is out standing. Finally used alternative medicine(the herbal product curcumin, Turmeric(a hot spice now), found in different curry products. Enjoy, and a spiritual network which lead to many great new friends. Friendship is a healing factor of itself. JIM>>>>> Now for a few years, lightheadedness, (a neurological visit and imaging), again, a herbal phytochemical product: quercetin and proprioceptive PT exercise(walk the dogs)..improving…living over 70 years old. JIM>>>>>

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I learned in Rehab I have 50% Neuropathy in hands and feet.. I have not seen a Neurpothist yet and am wondering if anyone knows what can be done for this,

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@danavs

I learned in Rehab I have 50% Neuropathy in hands and feet.. I have not seen a Neurpothist yet and am wondering if anyone knows what can be done for this,

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Hello @danavs,

You may notice I moved your discussion in to a long discussion on living with peripheral neuropathy. I did this so that you could read through and learn a bit from our vast amount of members talking about and addressing your exact question. Like @jimhd mentioned, I suggest you click on VIEW & REPLY so that you will be brought to the full discussion and you can read through the posts by our members and you can feel free to jump in wherever you feel comfortable. Here are a few more discussions on neuropathy as well:

– Neuropathy (group), https://connect.mayoclinic.org/group/neuropathy/
– Living with neuropathy – welcome to the group, https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/
– Gabapentin use for neuropathy, https://connect.mayoclinic.org/discussion/gabapentin-use-for-neuropathy/
– Acupuncture, https://connect.mayoclinic.org/discussion/acupuncture/

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Mine is peripheral. – only in my feet & lower legs. SMW

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@superwife

Mine is peripheral. – only in my feet & lower legs. SMW

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Mine extends from feet to just above my knees and I’m not sure if it’s neuropathy or arthritis that is affecting my hands. Numbness and feeling of swollen feet but they aren’t. Discomfort but vey little pain. Has been going on for over 4 years.

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