Living with inoperable pancreatic cancer

Thank you. I do thank "Creation" every morning and evening for giving me another dawn &/or dusk along with the OPPO [opportunity] to be of good heart and good deeds.
Eating well is turning out to be a major obstacle for me; just when we think we have a plan that is acceptable to my body, something seems to change, and it becomes a step-backward. A diet diary has been helping to identify potential triggers. For instance, I love kiwifruit, but come to discover that it acts as a laxative; so I have regretfully consigned it to the no-no list.
I have asked several other friends and family to pray for me, and I believe they are doing so. I have actually started praying again (lapsed Catholic here, with many problems accepting the mainstream faith).

I too am a Catholic. However, some of the current stuff the "Church" gets into is a bit political & sometimes contradictory to its old teachings so I do wonder what is going on but I still believe in the basics of the Nicene Creed.
My cancer started out in the tail and exited somehow to the adrenal gland and lungs. I am blessed that some of the nodules are shrinking and will be getting another CT in September. I am on "palliative care" which I did not understand at first and assumed that I was being given up on until I read about the newer definition of palliative care. I have to say that I have not had bad issues with food/nutrition.
My oncologist did mention that I would be on some form of chemo for the rest of my life. What did your oncologist consider a complete course of of g-a? I will be getting my 36th tx this week. Why not try something else? I really want to get my doses adjusted since I am having more side effects, but I am almost afraid to change anything even though I am getting much more "winded" and less energy. Hopefully we can address this at our next appointment on 9/7.

P S - My oncologist believes we have reached the end of what standard Chemotherapy can achieve, (after one nearly complete course of g-a failed to have any discernible impact on the tumor) and is now considering me palliative care (in other words, addressing quality of life issues rather than switching to an alternative Chemotherapy regimen.

Thank you for the additional information about your journey.
I do have one question related to your comment that your "body is still recovering" from the Chemotherapy you've received. How long do you think that has been now?
My husband does believe that the further out I'm getting from my last Chemo Infusion, the better I'm getting. I found the liposomal irinotecan intolerable and that had to be stopped since I sent my oncologist a midnight message that I didn't think I was going to make it through the night.

The first chemo treatment I received was in October 2022. These were the meds I was on: Leucovorin, Fluorouracil, Oxaliplatin & Irinotecan. I was told these meds affect the whole body, not just the cancer cells. I had low white & red blood cell counts many times, so they would put off treatment to let my bone marrow produce more blood cells. I finished that treatment in May because my cancer marker numbers were going up & my doctor didn't want me to have an allergic recation to one of the meds. I was surprised when I told the doctor I was feeling tired but he assured me that my body is recovering from the initial chemo. The treatment was for 6 1/2 hours, then went home with a chemo pump for about another 42 hours. At least with the g-a it's only 2 1/2 hours. I know others have treatments where they come several days a week. That's really sad. I think it's the bone marrow that must get hammered from some of the treatments. My chemo brain doesn't always think to ask more questions. I'm so thankful for my husband asking questions when he comes along. I have had a lot of side effects from my original chemo disappear, like the sensitivity to cold in mouth & hands. I still have some neuropathy in my feet & sometimes in my hands. I remember when they would give me the anti nausea stuff, I would start feeling nauseous. Weird!! Those meds knocked me down but I was thankful I didn't have much nausea or diarrhea, just constipation, so fiber is my friend! So sad you can't enjoy kiwi. It is interesting how chemo affects each person differently, but that's what makes us unique. Take care!

I found out I had mucinous pancreatic cancer in October 2022. Fortunately, my cancer was found early. I have a tumor in the tail & 2 lesions on my liver. I was told it is stage IV because it's on the liver & 2 years prior I had surgery to remove a 4 pound ovarian cyst that had cancer cells in it & both ovaries had cancer. I can't have surgery to remove the pancreas because the cancer cells have already been spreading around. I have had chemo since October. I was told there aren't alot of treatment options for this type of cancer. I had been working only 2 mornings a week during my treatments but in April I deceided to retire. I'm feeling good & want to do what I want as long as I can. I realized, we don't know what the future holds. I have been feeling positive most of the time but it is frustrating when your body is just tired out. I'm learning to listen to my body & take naps. I can appreciate the feeling of helplessness & having no control because we can't eat, drink, exercise or anything that will absolutely help cure this. I was told my cancer isn't curable, but could be managed. I have met many people that have had chemo & then they were done & cured. I was feeling frustrated because so many were cured & I won't be. The chemo room is my home away from home & the staff is wonderful! I get a reality check that I don't have it that bad, I see someone else have it worse than me. I find a lot of comfort from praying & seeing how God made circumstances that were beneficial for me. I'm reading books, baking, going through stuff & doing a lot of craft projects now that I have put off for years & it keeps my mind off the cancer. It sounds like I'm overdoing it but I don't know how long my eyes, hands & brain will allow me to keep doing all this. I'm living my life as if I didn't have cancer by doing things I've put off because I will do it later or I couldn't take off of work. Last month my family & I went to Germanfest. We went to a Milwaukee Brewers game last night. Next month we hope to take an Upper Dells ride & go to an Indian Powwow. I'm trying to live each day to the fullest, which sounds cliche but I should have been doing it sooner. Stress is hard on the body, try to do or find something that relaxes you. I saw a video of a song, "It's OK" written & sung by the performer, Nightbyrd on a TV talent show. It's sad but it's very moving & we can relate. Take care.

Admire your courage so much. Did you have any genetic testing? The BRCA 1/2 gene predisposes to both ovarian and pancreatic cancer. There are some treatments which are beneficial for people with BRCA1/2.

It's remarkable how similar our timelines & experiences are. One major difference is that my "chemo feet" do seem to be gradually recovering, and I seem to have escaped any effects on my hands.
But yeah, the anti-nausea meds given in the cocktail preceding Chemo Infusions seemed to be a guarantee that I would have nausea. One memorable infusion session I was turned on my side since that was usually where I wound up to deal with the, apparently expected, Side Effect whose name I cannot now recall (thanks "Chemo Brain") I had my right hand grasped around the arm of the infusion chair so tightly that I simply wouldn't have been able to let go.
And don't get me started on the fact that none of the hospital furniture fits me given my short stature and tipped pelvis. I suppose people who exceed the standard-model human have the same problem finding places to sit while waiting and treatment chairs that allow them to be comfortable.