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Anyone here dealing with peripheral neuropathy?
Neuropathy | Last Active: Oct 28 4:54pm | Replies (3050)Comment receiving replies
Hi,
Many of you were recently discussing the effectiveness of vitamin B in reducing the symptoms of neuropathy. I showed your conversation to a pharmacist here at Mayo Clinic. She offered this information:
"Taking Vitamin B1 (thiamine) and Vitamin B6 (pyridoxine) daily has been shown in some trials to reduce symptoms of neuropathy. Other research suggests adding Vitamin B9 (folic acid, L-methylfolate) and B12 (cyanocobalamin, methylcobalamin).
- Vitamin B6 and B9 are well absorbed by tablet, capsule or injection. B6 can be administered with food to reduce upset stomach.
- Vitamin B1 is adequately absorbed in tablet or capsule form and rapidly and completely absorbed after injection into the muscle. The active metabolite of thiamine is pyridoxal-5-phosphate.
- Vitamin B12 absorption can vary from person to person, but is less well absorbed by mouth (tablet, capsule, sublingual) than the rapid and complete absorption after injection under the skin or into the muscle. Limited evidence suggests B12 nasal spray (Nascobal) achieves levels similar to injection into the muscle.
Befotiamine and methylcobalamin are marketed as dietary supplements. Metanx is a medical food marketed for diabetic neuropathy and contains L-methylfolate calcium (an active form of Vitamin B9, folic acid), pyridoxal-5-phosphate (an active form of Vitamin B6, thiamine) and methylcobalamin (Vitamin B12) along with algae-S powder. This is a medical food but is sometimes covered by insurance."
For those of you with good results in treating neuropathy, what products are you using?
Replies to "Hi, Many of you were recently discussing the effectiveness of vitamin B in reducing the symptoms..."
@mcween
Some excellent questions. I've learned that if I don't write out my questions, I forget to ask them until I walk out the door.
Jim
Thanks let me know if you can think of anything else. This is going to be a really important appt. for me.
Yes, I did have it as i trial at one time and did not like the way that it felt. Do you have one now?
Hi @mikween), That is a great group of questions and a lot of thought went into them. I hope the doctor is receptive to a lot of questions and has time to discuss them with you. I would try to limit the questions to 4 or 5 of the ones that are most important to you.
I know that they are all important questions but I would prioritize the list and write them down to take with you so you don't forget any of them (just saying that out of experience ☺).
Just looking them over I would guess that these might be the most important for you (but it's your list so you need to decide):
- Can you even fix my neuropathy through surgery with my Foot Drop?
- Could it make it worse? (if the surgery doesn't work or is not successful)
- What is the success rate for the surgery?
- How long will I be off of my foot?
- Does it matter how long someone might have had the neuropathy as to how the outcome might be to the surgery?
Good luck and I hope you are able to have a good dialogue with the doctor.
John
I did the trial for a week. It was wonderful not to have pain in my feet. I'm waiting right now for the doctor to schedule the permanent implant. We'll see how well and how long it will work. It's the last thing on the list of treatments for me, and I'm very hopeful.
Jim
I am following your search for freedom from neuropathy in your feet. I posted some time ago about my years long search for relief and all of the meds and procedures. The implant was at the end and is still a possibility for me. However I am almost 90 and not eager for any type of surgery so have not acted on that last possibility. Will keep track of your postings. There is some literature out there about the good results pharmacist prescribed cannabis has had for some people. Any comments.
Hi John. Glad you are getting the right amount of everything to help the neuropathy. Could you give me a list of all you take. I now take Vitamin B12 And B2 as my neurologist has prescribed but don't think it is helping much. Also take magnesium 500 mg all of this I take once a day and feel like more would be better. Thank you for all the help you can give me. Jan
Hi Jan, The complete list of the supplements I take can be found here - http://bit.ly/2pLZzey . I would print it out and discuss wtih your neurologist or primary care doctor to make sure there is nothing that conflicts with anything you are currently taking. Also I would join the closed Facebook group that is referenced and read through all their material. You can search their group using the term #theprotocolworks to bring up stories of all of the individuals who have shared their success. Good luck...John
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@johnbishop, Hi John I wanted you to read over the questions that I came up with for the doctor since you were the only one that replied
last time. Let me know if you can think of anything else. Thanks for all of your help. I will let everybody know how my appt. goes on May 16th.
Have you ever heard of Alpha-Lipoic Acid?
Have you ever heard of Lidocaine injections? And could that work on me or the patches?
Can you even fix my neuropathy through surgery with my Foot Drop?
The Specifics about the surgery?
Could it make it worse?
What is the success rate for the surgery?
How long will I be off of my foot?
In a cast and for how long?
Therapy afterwards and for how long?
How long before I see improvements?
Do you have any referrals?
How many procedures like this have you performed?
Are they all the same kind of surgery?
Even though people may have different reasons that might have caused the neuropathy
Does it matter how long someone might have had the neuropathy as to how the outcome might be to the surgery?
Have you ever heard of Alpha-Lipoic Acid?
Have you ever heard of Lidocaine injections? And could that work on me or the patches?
Can you even fix my neuropathy through surgery with my Foot Drop?
The Specifics about the surgery?
Could it make it worse?
What is the success rate for the surgery?
How long will I be off of my foot?
In a cast and for how long?
Therapy afterwards and for how long?
How long before I see improvements?
Do you have any referrals?
How many procedures like this have you performed?
Are they all the same kind of surgery?
Even though people may have different reasons that might have caused the neuropathy
Does it matter how long someone might have had the neuropathy as to how the outcome might be to the surgery?