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Anyone here dealing with peripheral neuropathy?
Neuropathy | Last Active: Dec 8 11:43am | Replies (3052)Comment receiving replies
Hi,
Many of you were recently discussing the effectiveness of vitamin B in reducing the symptoms of neuropathy. I showed your conversation to a pharmacist here at Mayo Clinic. She offered this information:
"Taking Vitamin B1 (thiamine) and Vitamin B6 (pyridoxine) daily has been shown in some trials to reduce symptoms of neuropathy. Other research suggests adding Vitamin B9 (folic acid, L-methylfolate) and B12 (cyanocobalamin, methylcobalamin).
- Vitamin B6 and B9 are well absorbed by tablet, capsule or injection. B6 can be administered with food to reduce upset stomach.
- Vitamin B1 is adequately absorbed in tablet or capsule form and rapidly and completely absorbed after injection into the muscle. The active metabolite of thiamine is pyridoxal-5-phosphate.
- Vitamin B12 absorption can vary from person to person, but is less well absorbed by mouth (tablet, capsule, sublingual) than the rapid and complete absorption after injection under the skin or into the muscle. Limited evidence suggests B12 nasal spray (Nascobal) achieves levels similar to injection into the muscle.
Befotiamine and methylcobalamin are marketed as dietary supplements. Metanx is a medical food marketed for diabetic neuropathy and contains L-methylfolate calcium (an active form of Vitamin B9, folic acid), pyridoxal-5-phosphate (an active form of Vitamin B6, thiamine) and methylcobalamin (Vitamin B12) along with algae-S powder. This is a medical food but is sometimes covered by insurance."
For those of you with good results in treating neuropathy, what products are you using?
Replies to "Hi, Many of you were recently discussing the effectiveness of vitamin B in reducing the symptoms..."
Hi Mikween,
Here's how you can send a private message to Jewel:
Here’s how to send a private message:
1. Click the member’s @username. in this case, @jewel8888.
2. Click the envelope icon Send Private Message.
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Jewel, will also have received an email notification each time you mentioned her name in your message. Perhaps she is away at the moment. She is usually quite responsive.
I've just started the Vitamin B therapy, and I'm cautiously optimistic. I don't have the bottle in front of me, but I'm taking Nature Made B-100 tablets. It's a combination of B1, B6, B12 and riboflavin. I believe there's also some biotin in there. I take a dose 3 times a day. If you want exact dosages, I can provide those in another reply. I started this therapy when I learned of a Japanese study whose results showed significant improvement in individuals with feet/leg cramps. I've been taking the B vitamins less than two weeks, and I haven't had a major episode of cramps.
I just have the numbness/tingling with my neuropathy and have no need to take a pain medications. I take B12 (2 ml in the morning and 2 ml in the evening) along with other vitamins that has helped with my neuropathy. I also take B7 (Biotin) in the middle of the day so that it doesn't interfere with the R-ALA I take in the morning and evening. Along with that I also take 1.5 oz of Mantoba Harvest Hemp Oil once a day and 2 tsps of high quality fish oil twice a day. These along with a few other ones I take has stopped the progression of my neuropathy and I believe it's actually started repairing some of the nerve damage. The numbness was just below both knees when I started taking the protocol last September and it's now just above my ankles. It's still subjective on my part but it's better than it was and my neurologist told me there was nothing that would help with the numbness.
John
Hi, I'm wandering if this is alright to start taking without talking to my Dr. Can we get side effects from to much B? Thanks for you help. I'm new here and don't want to step out of bounds. Jody
Hi @16jody, I think it's a good idea to discuss it with your doctor to make sure there are no interactions if you are taking other medications. The doctor can order blood tests to see if you have any B vitamin deficiencies.
John
Thank you,
HI @johnbishop, I think there is a problem again with the post the last one I got was from @16jody yesterday. And then I got the Digest this morning. Could you please look into this for me?
Thanks
Hi @mikween, I'm pretty sure they are still making some tweaks to the website after they made some major updates. Please hang in there as it should return back to normal soon. I've seen a few glitches myself.
John
I have taken Multi vitamins, vitamins b complex, c, and d. I stopped taking vitamin e some time ago. These in addition to the long list of meds: for peripheral neuropathy (Duloxetine and MScontin and Lidocaine cream), depression (Bupropion), anxiety (Clonazepam), allergies (Claritin and Benadryl), breakthrough pain (Percocet), reflux (Omeprazole), arthritis (NSAIDs and Voltaren cream), and occasional lower back muscle pain (Orphenadrine).
I was scheduled to have a spinal cord stimulator implant, but blood tests showed anemia. Over the past couple of weeks, with a series of blood draws, the hemoglobin has been going back up, so I'm getting back in line for the implant, sometime in June. The trial gave me a wonderful week of pain relief, so I'm looking forward to the permanent implant. Can't wait! I'm hoping that lessening the pain level will mean reducing or even eliminating some meds.
Jim
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Can someone please respond with an email an include the name @jewel8888, so i can respond to her with a private message. Because I have not been able to get achold of her and I have accidentally dedeleted the message that she sent. Hopefully that will work. Thanks fior all of your help