Immunoglobulin infusion--when it's given.

Posted by fdixon63 @fdixon63, Mar 16, 2023

I've been seeing immunoglobulin infusion mentioned in different groups. I'm curious, at what point would a physician determine this is something to be done for the patient. Appreciate any input.

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@mermaid7272

I lost hair as well, doctors believe it was from the severe stress from my hospital stay.
If you need hair to start growing and getting strong & healthy again, try the supplement Biotin.
It caused my hair to grow back again after about 3 months. Also nails start growing)
Glad you didn't have to start IVIG treatments and happy you are on the mend!

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Fortunately, as soon as the infusions stopped my hair started growing in. Still has a way to go, but is getting there. Waiting and hoping now that the dose of CellCept I am on will keep me from getting worse. Had to cut the dose in half because of a side effect.

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@mermaid7272

I lost hair as well, doctors believe it was from the severe stress from my hospital stay.
If you need hair to start growing and getting strong & healthy again, try the supplement Biotin.
It caused my hair to grow back again after about 3 months. Also nails start growing)
Glad you didn't have to start IVIG treatments and happy you are on the mend!

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Thanks for the suggestion. Will try.

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My IgG and IgM are really low (my IgA is high but not dangerously so). In discussions with my heme/onc, she said she would consider IgG infusions if I start regularly getting respiratory infections, which I haven't to this point.

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My IgA is low (Iga Immune Deficiency) and my doctor is recommending Plasma Immunoglobin (SCIG) infusions. I am scared. I have seen some sites that say immunoglobin won't help with fighting infections not used for IgA deficiency. Other sites says it can help...but no cure. I am looking for someone who has used immunoglobin.
I have Bronchietasis, keep getting SIBO or overgrowth of bacteria in my gut and sinus infections, short of breath and constant infections.

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@jacquelinegreen

My IgA is low (Iga Immune Deficiency) and my doctor is recommending Plasma Immunoglobin (SCIG) infusions. I am scared. I have seen some sites that say immunoglobin won't help with fighting infections not used for IgA deficiency. Other sites says it can help...but no cure. I am looking for someone who has used immunoglobin.
I have Bronchietasis, keep getting SIBO or overgrowth of bacteria in my gut and sinus infections, short of breath and constant infections.

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Welcome Jacqueline. you may also wish to join the discussions in the
- MAC & Bronchiectasis Support Group https://connect.mayoclinic.org/group/mac-bronchiectasis/

@naiviv @fdixon63 @mermaid7272 @lasks @goddard @siragusas may have experiences to share about subcutaneous immunoglobulin (SCIg) therapy

What other treatments have been tried?

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i have tried herbs, vitamins, antibiotics when i have infections. i have used Methotrexate, Humira, Remicade for autoimmune disease Ankylosing Spondylitis. I just found out about the IgA Deficiency 2 weeks ago, but I am sure I always had it. I have been complaining about my Shortness of Breath and all the other issues for years. I just found a immunologist who diagnosed it.

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@colleenyoung

Welcome Jacqueline. you may also wish to join the discussions in the
- MAC & Bronchiectasis Support Group https://connect.mayoclinic.org/group/mac-bronchiectasis/

@naiviv @fdixon63 @mermaid7272 @lasks @goddard @siragusas may have experiences to share about subcutaneous immunoglobulin (SCIg) therapy

What other treatments have been tried?

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thank you

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