Neti Pot

Posted by harrynsc @harrynsc, Aug 20, 2023

Has there been any studies on using a Neti Pot in combination
with everything else to fight MAC? I'm thinking if I can keep
my upper airways clear, the cilia have an easier time getting
the MAC out of my lungs?
Harry

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

@scoop

NeilMed suggests replaces the NeilMed Sinus Rinse bottle every 3 months. @becleartoday Do you happen to know if the recommendations are the same for the Squeezie?

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I don't know - if you can sterilize it, it seems like it would be okay to use it until it quits? That's what I do with everything except neb cups - those are after I figure about 90-100 uses, with probably 30 sterilizations.
Sue

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@sueinmn

There are still minerals and chemicals in boiled tap water, and you are then introducing these into the sinuses. Since the goal of the sinus rinse is to remove impurities, this would seem to me to be doing the opposite?
SSue

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I found a product called Nasaline. I decided to try it over the traditional squeeze bottle with the packets because I could never get the squeeze bottle to fully dry, and I worried about something growing in there.

Anyway, the Nasaline comes with the large syringe, a cap with an opening that fits over the tip of the syringe (it is removable and has no tube attached), a cup, and the saline packets. You just pull the plunger out and can disassemble it completely. It cannot be boiled, but it can so easily be washed and cleaned with alcohol. Each piece can be laid out to dry.

It is great. The small cup that comes with it is filled to the line with water, and the packet is added. It allows for the syringe to be filled 4 times, so twice for each nostril.

Just google Nasaline. I saw that even Walmart carries it on line. It is very sturdy and is, I think, so much easier to keep germ-free. You also don’t have the issue like you get with the squeeze bottle, where you end up with squeezing air near the end and trying to squeeze up every little bit. With the Nasaline, you just slowly press in the plunger to push the solution up your nose. I love it. Seriously- try it!

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@greentree

Linda what baby bottle sterilizer do you use Do you feel confident using this to sterilize your NeilMed in addition to your neb cups
HD

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I use a Bololo. So far I haven’t had an issue.

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@sueinmn

@harrysnc I do this sometimes with another device when I have post-nasal drip or other mucus. I was never able to master the Neti-Pot and ended up choking a lot.

The main precaution I take is to use boiled distilled water to make the solution. It has been stressed by Dr Joseph Falkinham, one of the recognized authorities on NTM in water, that there is no guarantee that distilled water is bottled in sterile conditions. Another choice would be to use sterile water as is available for flushing wounds and IV's, but it can be very expensive, and excess must be discarded after 24 hours as no longer sterile.

When I travel, instead of messing with sterilizing water, and toting my nasal irrigation supplies, I substitute buffered aerosol saline nasal wash. Arm & Hammer makes one called "Simply Saline", I believe there are generics out there too. More expensive, but so convenient.

Sue

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Since I rinse my nasals often I wanted more info on this topic. I agree in the ideal world distilled water then boiled and cooled would be best. That can get expensive unless you own a home distiller. According to NeilMed, boiled tap water is acceptable for nasal rinsing.

"Additionally, for your safety, do not use tap or faucet water for dissolving the mixture unless it has been previously boiled for five minutes or more as boiling sterilizes the water. Other choices are distilled, micro-filtered (through 0.2 micron), commercially bottled or, as mentioned earlier, previously boiled water at lukewarm or body temperature. You can store boiled water in a clean container for seven days or more if refrigerated. Do not use non-chlorinated or non-ultra (0.2 micron) filtered well water unless it is boiled and then cooled to lukewarm or body temperature. Do not rinse if your nasal passages are completely blocked or if you have an ear infection or blocked ears."

Love the idea for short trips to use a prepackaged buffered aerosol saline wash. That solves a lot of time and potential worry!

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FDA RECALL ON SOME BRANDS SINUS RINSE one being Restore
Info from FDA or in some newspapers today ... its quite scary so many drug recalls in USA and Canada where I live... but considering the thousands of meds perhaps inevitable.. stay safe, hope ok to post it here not sure where would be a good place on here for “recalls”. J.

“Take a look at your nasal spray — there’s a recall for possible microbial contamination “. PERHAPS MODERATOR COULD CHECK INTO ? J.

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Another one sorry not sure where to post, 8 page list of recalled meds today's date on fda notice

FDA Safety Alert: Family Dollar Voluntary Recall of Certain Over-the-Counter Drugs and Medical Devices

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I found somewhere that most nasal saline sprays contain BKS- benzalkonium chloride as a preservative. So when you pick a saline spray, take a look at the ingredients.

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While we're on the topic of safety with nasal saline products, I want to report a recent experience I had with other-than-NeilMed saline packets. I purchased some equate brand saline packets in Walmart. While the rinsing felt the same as NeilMed packets, the salt in the equate packets was clumpy and difficult to empty into the squeeze bottle, almost as if they'd gotten wet or damp. Equate brand was made in India, not sure where NeilMed ones are made but from now I'm sticking with NM for saline packets as quality seems much better than equate.

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...hi again, here is another one its Health Canada so not sure if sold in USA but a lot of we Canuks visit USA and vice versa... so maybe of interest to someone? I see so many medical recalls lately it’s scary.

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@becleartoday

I agree that keeping our cilia “fluffy” is a good idea! And like Sue, I sometimes use Arm & Hammer Simply Saline. Dr. Falkinham tested it years ago and gave it his seal of approval as far as NTM is concerned. But, when I’m home, I often use the Squeezie by NeilMed. I like the Squeezie because unlike their bottle, you can get in there with a little brush and clean it out and I have even popped it into my baby bottle sterilizer without any issues. I also prefer it to a traditional neti pot because you don’t need to tilt your head from side to side which can make me dizzy. I purchased mine on Amazon.

Best,
Linda Esposito

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Thank you, Linda. I want to get a squeezie, but have not been able to find one locally. When I look on the web, I am confused by the fact that some suppliers use the label "Squip" squeezie, although they show the NeilMed box. Is this a "knock-off" of the real Squeezie? I see that I can order it directly from NeilMed. Any advice? Donna

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