Anyone else have a Redundant / Tortuous Colon?

Posted by onaquest @onaquest, Nov 7, 2018

Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.

My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne

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Profile picture for scripturebreathes @scripturebreathes

Had a colonoscopy and this was the findings:
Redundancy of the colon, to the sigmoid colon transverse colon, and both flexures obscuring portions of the colon. Multiple redundant loops of colon noted, particularly the sigmoid colon, transverse colon and both flexures. This does obscure portions of the colon. There was no retrograde obstruction to either barium or air. No focal colonic stricture identified. No circumferential mass lesion seen in the colon. Tiny occasional diverticuli noted.
The doctor put me on Linzess which I ended up not being able to stand. I ended up changing doctors because my first one just wouldn't listen to me. I'm currently at another doctor who just put me on Trulance and wants to do another colonoscopy soon.
I'm consistently nauseous with lots of discomfort in my midsection. I have severe constipation (sometimes going well over a week-two weeks without any movement at all). I can't afford this medicine because my insurance won't pay for it, so even if it works it's not a good thing for me. I try to tell the doctors that but they don't seem to care and just want to push pharmacy items that are RIDICULOUSLY priced. I get so confused on what foods to eat because I'm told high fiber but then told high fiber can be bad. I tried the Whole 30 food plan and felt decent but no help with the constipation and still didn't feel great. I've read low carb isn't good because you need the fiber. I've tried fiber supplements, magnesium, probiotics/prebiotics, digestive enzymes when I eat, laxatives. Of course, laxatives work if I take enough but I know that's not good so I try not to. I just don't know what to try anymore.

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Doctors have not helped with constipation and IBS. What helps and is gentle enough on my system is a fiber supplement called Heather Tummy Fibers. A nurse nutritionist with John Muir Medical Center told me to take it years ago. At some point I tried Magnesium Citrate capsule 2 a night increasing later on but after many years, magnesium Citrate stopped working as a laxative. I went back to the tummy fibers which is Senegal Acaci pure and clean. I take 2-2 12 tablespoons every day or every other day (in other words I have to monitor my system and manage how I take it.) It helps greatly but still imperfectly. I try to eat a salad most days and mostly a plant based diet eliminating foods that add gas or bloat. That too helps. I increase my water intake when I remember, although too much water is not good for me. Bowel massage didn't really help but it does ease the stress of all this (can find on YouTube how to do it) and it is stressful and diminishes quality of life. The tummy fibers can be bought directly online or through Amazon. I highly recommend Heather Tummy Fibers over any OTC fiber supplements like Miralax, Metamucil etc. Those products made it worse. I know managing this chronic problem is a difficult dance but staying as stress free, doing deep breathing daily and being out in nature helps my mood and digestion. Please trust your body's intuition to find what helps you. Sincerely, AUDREY JOYCE

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Profile picture for scripturebreathes @scripturebreathes

Had a colonoscopy and this was the findings:
Redundancy of the colon, to the sigmoid colon transverse colon, and both flexures obscuring portions of the colon. Multiple redundant loops of colon noted, particularly the sigmoid colon, transverse colon and both flexures. This does obscure portions of the colon. There was no retrograde obstruction to either barium or air. No focal colonic stricture identified. No circumferential mass lesion seen in the colon. Tiny occasional diverticuli noted.
The doctor put me on Linzess which I ended up not being able to stand. I ended up changing doctors because my first one just wouldn't listen to me. I'm currently at another doctor who just put me on Trulance and wants to do another colonoscopy soon.
I'm consistently nauseous with lots of discomfort in my midsection. I have severe constipation (sometimes going well over a week-two weeks without any movement at all). I can't afford this medicine because my insurance won't pay for it, so even if it works it's not a good thing for me. I try to tell the doctors that but they don't seem to care and just want to push pharmacy items that are RIDICULOUSLY priced. I get so confused on what foods to eat because I'm told high fiber but then told high fiber can be bad. I tried the Whole 30 food plan and felt decent but no help with the constipation and still didn't feel great. I've read low carb isn't good because you need the fiber. I've tried fiber supplements, magnesium, probiotics/prebiotics, digestive enzymes when I eat, laxatives. Of course, laxatives work if I take enough but I know that's not good so I try not to. I just don't know what to try anymore.

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There are certain yoga poses that help with constipation. YouTube those. Also walking if you can. I found if don’t have exercise during the day I’ll be constipated. I, against all expert eating advice, can’t eat oatmeal. Sends my system to a grinding halt.

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Profile picture for scripturebreathes @scripturebreathes

Had a colonoscopy and this was the findings:
Redundancy of the colon, to the sigmoid colon transverse colon, and both flexures obscuring portions of the colon. Multiple redundant loops of colon noted, particularly the sigmoid colon, transverse colon and both flexures. This does obscure portions of the colon. There was no retrograde obstruction to either barium or air. No focal colonic stricture identified. No circumferential mass lesion seen in the colon. Tiny occasional diverticuli noted.
The doctor put me on Linzess which I ended up not being able to stand. I ended up changing doctors because my first one just wouldn't listen to me. I'm currently at another doctor who just put me on Trulance and wants to do another colonoscopy soon.
I'm consistently nauseous with lots of discomfort in my midsection. I have severe constipation (sometimes going well over a week-two weeks without any movement at all). I can't afford this medicine because my insurance won't pay for it, so even if it works it's not a good thing for me. I try to tell the doctors that but they don't seem to care and just want to push pharmacy items that are RIDICULOUSLY priced. I get so confused on what foods to eat because I'm told high fiber but then told high fiber can be bad. I tried the Whole 30 food plan and felt decent but no help with the constipation and still didn't feel great. I've read low carb isn't good because you need the fiber. I've tried fiber supplements, magnesium, probiotics/prebiotics, digestive enzymes when I eat, laxatives. Of course, laxatives work if I take enough but I know that's not good so I try not to. I just don't know what to try anymore.

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I assume you have done a complete Google on any meds/supps you take to see of any slow gut transit time or "make you feel full" which means it slows down gut activity, which in my view is bad for redundant colon and leads to constipation. Same thing with food. Meat takes a long time for me to digest; fish is easy though, as are a few other proteins (egg whites, pea protein isolate).

There are a lot of earlier Mayo Connect posts on redundant or tortuous colon (same thing). Please read those and know that everyone's gut is different and you need to experiment with food and supps (and laxatives when needed). You will get it right!

I would not advise going 1-2 weeks w/o a bowel movement. That is so debilitating.

I have a severely redundant colon. I think that the Bragg brand apple cider vinegar I have with each meal either augments weak stomach acid or speeds up digestion time so my redundant colon functions more normally. A game-changer for my unique gut.

I also find that most laxatives just make me nauseous or are slightly painful. I have stumbled on mineral oil, a lubricant laxative, that works for me.

I got all of my solutions from Googling and reading these posts.

(FYI, I make other accomodations as I have IBS-C, including using Heather's peppermint oil and tea products. The above advice is my attempt to isolate what I do for the redundant colon part of my situation.)

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Profile picture for dilane67 @dilane67

I have a redundant colon too( noted on colonoscopy)... Not sure if that had given me constipation over the years or not... Interestingly enough I had a rectocele which I just had repaired last summer... I attribute that more to having 3 children.. I'm about 5 '0 and weigh 100 lbs .... but I also strained and had a lot of constipation for a lot of my life.. I was never told anything was abnormal about the redundant colon but assume it takes longer for waste to travel... One thing I use that is natural and really helps is a mixture of 1 cup applesauce, 1 cup prune juice, 1 cup wheat bran. I take a couple of TBS per day and it keeps things moving...

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I think my redundant colon was caused by Diverticulitis scarring. The Dr. Could no longer get the scope thru so I had to have 12" of my colon removed

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Please tell me if I'm wrong but I thought a redundant colon was something you're born with.
I never knew I had one until my first colonoscopy.

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Profile picture for carcar @carcar

Is this the same condition as Diverticulitis?

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Its my understanding diverticulitis is little pockets in the colon that trap food like nuts and popcorn. Its a bummer not to eat them, but a friend had it and had to have part of her colon removed.

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Profile picture for debschmitt @debschmitt

I’ve been suffering for two years with chronic constipation abdominal pain, loss of appetite, extreme weight, loss, fatigue, bloating, all which caused clinical depression. I was told that it was probably IBS – C. I’ve tried to manage with food , meditation and eliminating anxiety in my life. Laxatives don’t really work but cause nausea. Of course I have to do a clean out about once every 10 days usually with an enema, which hurts during and after. Finally, after going to 4 Gastroenterologist, several trips to the ER and urgent care center and finally changing my internal doctor, a diagnostic colonoscopy was performed. It revealed diverticulitis, diverticulosis, and a redundant tortuous colon. I am undergoing currently a colon transit test using.Sitz beads. I’m anxiously waiting the results as I’ve been told that Gastro surgery is highly likely. Has anybody else had surgery for this disorder please? I’m 70 years young and try to stay as active as this condition allowed with swimming, walking and paddle boarding. I’m so ready for a change. Thank you.

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Hi debschmitt, I have all those things too, except the diverticuli I was diagnosed with in my 30s seem to have closed. I live a near-normal life by controlling my food choices and working on my anxiety. Both trigger IBS-C and the severe redundant colon I have doesn't help. I am 68 and active.

Through trial and error I eat zero grain, zero FODMAP, Zero meat, etc. I am almost halfway through with hypnosis therapy to lessen my anxiety as an IBS-trigger. Mineral oil is my laxative of choice. I am trying magnesium as a regular supplement to prevent constipation. See attached for more details. I really believe changing what is going on in your head and what you are putting in your gut is the best solution (for me so far).

Shared files

My IBS routine 08222023 (My-IBS-routine-08222023.pdf)

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Profile picture for debschmitt @debschmitt

I’ve been suffering for two years with chronic constipation abdominal pain, loss of appetite, extreme weight, loss, fatigue, bloating, all which caused clinical depression. I was told that it was probably IBS – C. I’ve tried to manage with food , meditation and eliminating anxiety in my life. Laxatives don’t really work but cause nausea. Of course I have to do a clean out about once every 10 days usually with an enema, which hurts during and after. Finally, after going to 4 Gastroenterologist, several trips to the ER and urgent care center and finally changing my internal doctor, a diagnostic colonoscopy was performed. It revealed diverticulitis, diverticulosis, and a redundant tortuous colon. I am undergoing currently a colon transit test using.Sitz beads. I’m anxiously waiting the results as I’ve been told that Gastro surgery is highly likely. Has anybody else had surgery for this disorder please? I’m 70 years young and try to stay as active as this condition allowed with swimming, walking and paddle boarding. I’m so ready for a change. Thank you.

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Have a stool test! I had similar symptoms for years! Turned out to be Exocrine Pancreatic Insufficiency ( pancreas not producing enough digestive enzymes).

I also have torturous colon. Only 2 of last 3 GI could complete colonoscopy. I keep being told it’s not possible for it to cause abdominal pain 😕

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Thanks for your response. I did have a stool test. It showed hormone deficiency. Well something in the colon IS painful. That’s the problem with an invisible disorder. People think it’s in your head.

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Profile picture for researchmaven @researchmaven

Hi debschmitt, I have all those things too, except the diverticuli I was diagnosed with in my 30s seem to have closed. I live a near-normal life by controlling my food choices and working on my anxiety. Both trigger IBS-C and the severe redundant colon I have doesn't help. I am 68 and active.

Through trial and error I eat zero grain, zero FODMAP, Zero meat, etc. I am almost halfway through with hypnosis therapy to lessen my anxiety as an IBS-trigger. Mineral oil is my laxative of choice. I am trying magnesium as a regular supplement to prevent constipation. See attached for more details. I really believe changing what is going on in your head and what you are putting in your gut is the best solution (for me so far).

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Thanks so much for the helpful suggestions. Good to know I’m not alone.

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