Anyone else have a Redundant / Tortuous Colon?
Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.
My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne
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Doctors have not helped with constipation and IBS. What helps and is gentle enough on my system is a fiber supplement called Heather Tummy Fibers. A nurse nutritionist with John Muir Medical Center told me to take it years ago. At some point I tried Magnesium Citrate capsule 2 a night increasing later on but after many years, magnesium Citrate stopped working as a laxative. I went back to the tummy fibers which is Senegal Acaci pure and clean. I take 2-2 12 tablespoons every day or every other day (in other words I have to monitor my system and manage how I take it.) It helps greatly but still imperfectly. I try to eat a salad most days and mostly a plant based diet eliminating foods that add gas or bloat. That too helps. I increase my water intake when I remember, although too much water is not good for me. Bowel massage didn't really help but it does ease the stress of all this (can find on YouTube how to do it) and it is stressful and diminishes quality of life. The tummy fibers can be bought directly online or through Amazon. I highly recommend Heather Tummy Fibers over any OTC fiber supplements like Miralax, Metamucil etc. Those products made it worse. I know managing this chronic problem is a difficult dance but staying as stress free, doing deep breathing daily and being out in nature helps my mood and digestion. Please trust your body's intuition to find what helps you. Sincerely, AUDREY JOYCE
There are certain yoga poses that help with constipation. YouTube those. Also walking if you can. I found if don’t have exercise during the day I’ll be constipated. I, against all expert eating advice, can’t eat oatmeal. Sends my system to a grinding halt.
I assume you have done a complete Google on any meds/supps you take to see of any slow gut transit time or "make you feel full" which means it slows down gut activity, which in my view is bad for redundant colon and leads to constipation. Same thing with food. Meat takes a long time for me to digest; fish is easy though, as are a few other proteins (egg whites, pea protein isolate).
There are a lot of earlier Mayo Connect posts on redundant or tortuous colon (same thing). Please read those and know that everyone's gut is different and you need to experiment with food and supps (and laxatives when needed). You will get it right!
I would not advise going 1-2 weeks w/o a bowel movement. That is so debilitating.
I have a severely redundant colon. I think that the Bragg brand apple cider vinegar I have with each meal either augments weak stomach acid or speeds up digestion time so my redundant colon functions more normally. A game-changer for my unique gut.
I also find that most laxatives just make me nauseous or are slightly painful. I have stumbled on mineral oil, a lubricant laxative, that works for me.
I got all of my solutions from Googling and reading these posts.
(FYI, I make other accomodations as I have IBS-C, including using Heather's peppermint oil and tea products. The above advice is my attempt to isolate what I do for the redundant colon part of my situation.)
I think my redundant colon was caused by Diverticulitis scarring. The Dr. Could no longer get the scope thru so I had to have 12" of my colon removed
Please tell me if I'm wrong but I thought a redundant colon was something you're born with.
I never knew I had one until my first colonoscopy.
Its my understanding diverticulitis is little pockets in the colon that trap food like nuts and popcorn. Its a bummer not to eat them, but a friend had it and had to have part of her colon removed.
Hi debschmitt, I have all those things too, except the diverticuli I was diagnosed with in my 30s seem to have closed. I live a near-normal life by controlling my food choices and working on my anxiety. Both trigger IBS-C and the severe redundant colon I have doesn't help. I am 68 and active.
Through trial and error I eat zero grain, zero FODMAP, Zero meat, etc. I am almost halfway through with hypnosis therapy to lessen my anxiety as an IBS-trigger. Mineral oil is my laxative of choice. I am trying magnesium as a regular supplement to prevent constipation. See attached for more details. I really believe changing what is going on in your head and what you are putting in your gut is the best solution (for me so far).
My IBS routine 08222023 (My-IBS-routine-08222023.pdf)
Have a stool test! I had similar symptoms for years! Turned out to be Exocrine Pancreatic Insufficiency ( pancreas not producing enough digestive enzymes).
I also have torturous colon. Only 2 of last 3 GI could complete colonoscopy. I keep being told it’s not possible for it to cause abdominal pain 😕
Thanks for your response. I did have a stool test. It showed hormone deficiency. Well something in the colon IS painful. That’s the problem with an invisible disorder. People think it’s in your head.
Thanks so much for the helpful suggestions. Good to know I’m not alone.