1. < Neuropathy
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Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016

Anyone here dealing with peripheral neuropathy?

Interested in more discussions like this? Go to the Neuropathy Support Group.

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Mary | @mfobrien36 | Aug 11, 2016
In reply to @timerdude "I have taken the Meds mention here. Those Meds over time , stress the liver and..." + (show)
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I have taken the Meds mention here. Those Meds over time , stress the liver and no longer helped. My liver test where not good, so now I take very little Meds and avoid damaging my liver miore with long term medicine useage. As I age , my body canno longer handle those strong Meds. Healthy eating and moving around gently helps. At night , I start mindfulness and drink tea and massage. I feel less stress, more in control and kettle to none pain med. if needed. And "no" , I am not a old person, just smart about my body's needs.

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Yea! for you Timerdude. Makes sense to me. I'm trying to do it on my own and keep my mind busy, get as much exercise as I can manage, do housework and hug my cat. Am sleeping well now,(but the stressors in my life have subsided (work, etc.)Now .80 YO, I worked till I was 74 so now I can say retirement and lack of the stress has made it possible for me to take charge of myself... don't have to take blood pressure meds any more either. Discomfort, tingling, hot, swelling feet .in the evenings herald that it's time to give feet and ankles a rest along with a gentle massage with foot cream. I have a bloodclot in my leg so I don't massage too heavily but am on warfarin but that's the only med - so far. Chemo took its toll on the PN...

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timerdude | @timerdude | Aug 11, 2016
In reply to @timerdude "I have taken the Meds mention here. Those Meds over time , stress the liver and..." + (show)
Profile picture for timerdude @timerdude

I have taken the Meds mention here. Those Meds over time , stress the liver and no longer helped. My liver test where not good, so now I take very little Meds and avoid damaging my liver miore with long term medicine useage. As I age , my body canno longer handle those strong Meds. Healthy eating and moving around gently helps. At night , I start mindfulness and drink tea and massage. I feel less stress, more in control and kettle to none pain med. if needed. And "no" , I am not a old person, just smart about my body's needs.

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You are awesome ! Proud to know, you are a uplifting type of person, we<br>should all learn to follow!<br><br>

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medic7054 | @medic7054 | Aug 15, 2016
In reply to @medic7054 "Apparently you do NOT have much pain. Please do not be shocked that we do and..." + (show)
Profile picture for medic7054 @medic7054

Apparently you do NOT have much pain. Please do not be shocked that we do and want to have less pain in our lives.

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When one dismisses a particular drug or treatment options without trying them, then I can only assume that their pain is not that severe or they have not suffered for enough years. Mayo says there is NO cure for me, so I will try anything.

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medic7054 | @medic7054 | Aug 15, 2016
In reply to @ujeeniack "Ask your MD about ketamine, singly,or in combination. The main use originally was for Cancer patients,but..." + (show)
Profile picture for ujeeniack @ujeeniack

Ask your MD about ketamine, singly,or in combination. The main use originally was for Cancer patients,but some people have had success with it for general pain (non-specific?)

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Thanks

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medic7054 | @medic7054 | Aug 15, 2016
In reply to @jimhd "I do, primarily in my feet and ankles. Responding to the question asking if anyone deals..." + (show)
Profile picture for Jim, Volunteer Mentor @jimhd

I do, primarily in my feet and ankles. Responding to the question asking if anyone deals with peripheral neuropathyu.

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Mayo made the diagnosis so I think they should know better than a lay person.

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medic7054 | @medic7054 | Aug 15, 2016
In reply to @timerdude "I have taken the Meds mention here. Those Meds over time , stress the liver and..." + (show)
Profile picture for timerdude @timerdude

I have taken the Meds mention here. Those Meds over time , stress the liver and no longer helped. My liver test where not good, so now I take very little Meds and avoid damaging my liver miore with long term medicine useage. As I age , my body canno longer handle those strong Meds. Healthy eating and moving around gently helps. At night , I start mindfulness and drink tea and massage. I feel less stress, more in control and kettle to none pain med. if needed. And "no" , I am not a old person, just smart about my body's needs.

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You are right about stress and how it affects pain. I try to avoid adding to the stress life provides in itself.

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medic7054 | @medic7054 | Aug 15, 2016
In reply to @mfelton "ginny, I take a multi vitamin B called Nerve Renew that helps some, however I have..." + (show)
Profile picture for mfelton @mfelton

ginny, I take a multi vitamin B called Nerve Renew that helps some, however I have found a pain pill (hydrocodone) to be the best treatment for me. The Nerve Renew was recommended by the Neurologist and I order it from Neurophy Treatment Group in Indiana over the Internet.

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It helped me as well. Especially getting off Opioids. When did you do?

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Mentor
Jim, Volunteer Mentor | @jimhd | Aug 19, 2016
In reply to @emilyanne "I would like to thank each of you who replied to my post. I have ready..." + (show)
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I would like to thank each of you who replied to my post. I have ready them all carefully and will go back and make detailed notes as I have time. They are all very interesting and it is reassuring to know I am not alone. You feel that way when you seem to be suffering from something that is a little out of the norm. People tend to consider you a hypochondriac sometimes if you don't have a "normal" disease." I was lucky and got an appt today with a nerologist for the first time. My appt had been for NOV but there was a cancellation and my faithful husband/caregiver had been checking everyday so what a blessing. God bless you all with a beautiful day.

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I hope you had a good visit with the neurologist. Did he/she start you on a medication? There are several meds that can treat neuropathy, and it can take some time to find the right one that works for you. I'm at the end of the list. The last medication on the pain specialist's list was Cymbalta, and I really hope it helps to reduce the pain. I pray that you'll find the best solution soon.

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Mentor
Jim, Volunteer Mentor | @jimhd | Aug 19, 2016
In reply to @jimhd "I do, primarily in my feet and ankles. Responding to the question asking if anyone deals..." + (show)
Profile picture for Jim, Volunteer Mentor @jimhd

I do, primarily in my feet and ankles. Responding to the question asking if anyone deals with peripheral neuropathyu.

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I am going to try to remember to ask the doctor about Marijuana at my next appointment next Monday, August 22. I don't think he's going to be happy about the level of pain I've been having. Of course, there's less pain if I sit in the recliner all day, but that's not an option very often. I have a long list of jobs I need to get done before winter, and they all require being on my feet. Paint one more side of the barn, put a couple more rows of barbed wire around the garden to keep the deer out, walk the pasture every day to check the 14 gopher/squirrel traps...and I'm in the middle of finishing a shed, doing insulation, drywall, paint the exterior trim, and then help my wife move her sewing supplies into her new 12x16 storage shed. Life is busy when you live in the country, and we have ten acres to care for. Shouldn't ever be bored or have time to be depressed. Boredom isn't an issue, but depression has been for many years. Chronic pain doesn't help.

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bobe | @bobe | Aug 19, 2016

Thanks for the links in your initial post. Best starting help we've found. Lots and lots of tests with the head of muscular neurology concluding it's idiopathic - unknown in origin. Are there other senior citizens with further, somewhat more technical resources?

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