I did initially try taking oral iron supplements, but that was unsuccessful. For my first round of infusions, the source of the blood loss seemed obvious, but now there is no clear answer. Last year, my hematologist only checked my iron levels a month after my infusions and that was that. I have no idea when my levels started dropping again. Overtime my symptoms started to gradually come back, and I eventually went back to the doctor because my family noticed the severe decline in both my mood and energy level. My hematologist mentioned that I could just have trouble absorbing iron and will probably need iron infusions for the rest of my life, but he hasn’t done any tests yet to rule out other possible causes. I’m hoping my primary care physician will recommend some next steps.

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