Loss of hunger and taste and smell.
In April of 2022 I had 18 inches of my colon resected due to severe diverticulitis. Surgery was successful, but then in December of 2022, I got Covid and lost my taste and smell. It is August 2023, 8 months later and to this date have not gotten my hunger, taste or smell back. My Dr tells me it’s “Long Haulers Covid”, but I’m not convinced. I have no desire to eat, but make myself because I know I have to. Wondering if anyone has experienced something similar or might have some encouragement. Thank you!
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Using LDN (low dose naltrexone) every night has allowed me to reduce my dosage of synthroid from 2.5 to 1.00. LDN helps decrease inflammation with autoimmune disorders. You had hashimotos all this time and nobody knew till after your surgery? Did nobody ever check your thyroid before? I know people in their 40s who have never in theor life had a tsh even. Just terrible. I've been on synthroid since I was 15 (brand name is the only thing that controls my numbers) for hashimotos. I did a year of research on LDN before gping on it as its really a decision for life - its a long term treatment. Low dose. I slowly built up to 4mg, some only need 2.
I went off LDN for a couple of months after Christmas, no change in synthroid, and my TSH went through the roof. Worth checking out. For long covid also as its an antiinflammatory. Definitely do your due diligence, just has helped me tons with objective results of lab work.
I wasn't saying stop.imvestigating esp if ypu can afford treatment not paid for by insurance. Most long teem disabled people just don't have those kind of choices is all. And we can run ourselves ragged trying only what insurance covers for years. I have no choice. For those of you who have alternative medicine as an option, go for it.
in reply to @lkirnbauer It sounds like we are both doing the same things to keep ourselves strong and healthy. I too lift weights after I get out of the shower because I do not want to lose muscle mass. I know when I weigh myself from time to time and see the number, it is probably what it is because of course, the muscle weighs more than what little fat I have. In any event, keep up the great work!
If I were loosing weight & no appetite I would see a doctor & get lab work done, maybe recheck thyroid values too. It may not be just loss of smell, though seems to reason food is way less appetizing if no aroma. I still feel urge to nourish myself even when nothing tastes or smells that great anymore with limited diet due to food intolerances.
@lkirnbauer
I first had loss of appetite, feeling full fast plus nausea a year ago in addition to other GI symptoms. The cause of most symptoms was celiac artery stenosis. After receiving a stent there, majority of symptoms disappeared except the loss of appetite. I recently had Covid with loss of smell and taste and absolutely no appetite at all. Nothing passed my lips.
A couple of weeks later I can eat some foods but I’m back at the preCovid lack of appetite. Taste and smell are mostly back.
Have you checked with ENT about loss of smell and taste?
I’m sorry you were going through that, but happy to hear you got your taste and smell back. I have seen an ENT, even had a brain MRI and all is well, thankfully. I don’t have celiac, but had severe diverticulitis for which I had 18” of my colon removed last April. I have pretty much healed from that, but this loss of taste and smell and not ever feeling a single hunger pain since December of 2022 is pretty awful. I’m hanging in there, but it’s difficult! Thanks for your feedback, it is appreciated!
I was recently looking for a friend who is down to 118 lbs. I found a supplement that is sold by Rite Aid Drug Store. You mix it with milk and it comes in Vanilla Ice Cream and Chocolate. Each glass is 700 calories. You might give it a thought.
Gina 5009
Thank you, you’re sweet to suggest this product, but I don’t eat dairy and try to stay away from sugar. I have Hashimoto’s and have given up eating Gluten, Dairy and Soy products. It has helped me a lot doing this, so I don’t want to mess it up by drinking this product. Thanks again though.
Yes....no appetite....I eat cause I know I have to eat a few bites at least once a day. Living on Boost. At least here I don't feel alone. So sorry .....prayers
I am 84 years old and lost my taste and smell some ten years ago. I am otherwise healthy. My doctor said its just getting old. Any thoughts? Thank You!
I’m so sorry for you! I don’t know how you’ve managed all these years without your taste or smell. I’m not accepting that it’s an age thing. I’m only 67 years old and am not settling for that answer. Plus, before I contracted Covid, I could taste and smell, so I’m hoping it will eventually come back. I’m seeing a new ENT next month and am hoping they find something that is causing this.