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@arctic22

I have had the same thing for years ... comes and goes can turn my head and almost black out ..2 minutes later do the same movement nothing happens .. finally had one old wise dr. tell me after he could not duplicate it say" it's going to get worse ..or better ... or not change ... but till we could duplicate each time then live with it and adjust your life accordingly" which I have for about 15 years or so .. have bouts of it but if I have a bout I try to make sure not to try testing it to see if I can make it happen again or each time ... if I do that it tends to fade away too much triggering is not good for it also .. was told it was a blood vessel going through an opening in my spine more than likely ..

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Replies to "I have had the same thing for years ... comes and goes can turn my head..."

We have done the same thing--made adjustments to life as needed. Jerry found one thing affecting this is how far overhead he is reaching. If the upper torso is tight the symptoms happen more rapidly and with more consistency. Recently he experimented with sleeping in the spare room on a softer mattress because he was ill and didn't want to share. We fund the softer mattress doesn't jam his shoulders up during sleep so the next day he is able to do more overhead without problems. When the doctors don't have answers we have always tried to figure it out ourselves. Life after a stroke is anything but "normal" so we are getting used to each day being a new experience with new challenges or a repeat of old ones. At least with the old ones we have more options to deal with them. After his stroke I was told by a wife who had gone through that experience years earlier "Welcome to the new normal--remember at the end of the day it's just a setting on your dryer." Have found that to be sooo true and a smile in the midst of trial never hurts. Thanks for your thoughts and encouragement.