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← Return to Waldenstrom macroglobulinemia: What to expect during watch & wait?
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Waldenstrom macroglobulinemia: What to expect during watch & wait?
Blood Cancers & Disorders | Last Active: Nov 14, 2023 | Replies (90)Comment receiving replies
Hello Lori and group, IVIG infusions continue for autoimmune condition. Receiving every 3 weeks on a different schedule from Waldenstrom treatments. Infusions have been well tolerated with minimal side affects.
For Waldenstrom treatment I’m receiving Bendamustine (Bendeka) and Rituximab (Rituxan) once a month on 2 consecutive days each treatment. First treatment was split between the 2 medications and given over 8 days. This was an attempt to minimize side affects. Extreme fatigue and increased blurred vision on the day of treatment. Fatigue issues improved after 48 hours. Blurred vision was a problem before treatment started and continues. This may be related to blood viscosity elevation.
Second round of chemo Aug 28 & 29. Will update following treatment.
Best to all!
Replies to "Hello Lori and group, IVIG infusions continue for autoimmune condition. Receiving every 3 weeks on a..."
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Not sure how this all works, but I am responding to the post above. Thank you for making me feel more comfortable. I am 74 years old and have been on watch and wait for 1-1/2 years, feeling good, but now need to begin chemo due do numbers quickly moving in the wrong direction. It seems to be exactly the schedule you are following, with the rituxin and bendeka at 3 days per month. I hope I sail through it like you seem to be doing.
Leslie F.