← Return to Waldenstrom macroglobulinemia: What to expect during watch & wait?

Discussion

Waldenstrom macroglobulinemia: What to expect during watch & wait?

Blood Cancers & Disorders | Last Active: Nov 14, 2023 | Replies (90)
Comment receiving replies
@badnewsforme

Hello all. Thought I would jump in and be part of the discussion on Waldenstrom disease. I have been part of a support group for prostate cancer for 3 years and appreciate the value of the group.
Diagnosed with MGUS in 2020 and monitored for 2 years when condition progressed and treatment was started Feb 2023 with IVIG infusions.
Again blood work showed progression to Waldenstrom with IgM at 7800. Chemo started last week with treatments every month for two consecutive days each time.
Look forward to being part of this discussion group going forward
Best to all!

Jump to this post

Replies to "Hello all. Thought I would jump in and be part of the discussion on Waldenstrom disease...."
Lori, Volunteer Mentor | @loribmt | Aug 13, 2023

Welcome to the club, @badnewsforme We just had another new member join the WM group yesterday. @bacord83 was recently diagnosis with Waldenstrom and hasn’t started treatment yet and is researching options, since this is new to her. Maybe your experience with the IVIG and Chemo will help her get a better understanding.
You were diagnosed with MGUS in 2020 and then your disease progressed to Waldenstrom’s in about 3 years? That’s when you began receiving IVIG infusions. Which is used to treat inflammation or autoimmune conditions. https://www.healthline.com/health/ivig-infusion
How did you do with the IVIG infusions? Any side effects?

When your condition progressed further you then began chemo treatments. Could you let us know the name of the treatment?
Thank you for sharing your story here! It takes a village and we never know how many people we can help when post our experiences. ☺️
I know it’s pretty early in the game but have you noticed any side effects from the chemo?

VIEW AND REPLY