← Return to Waldenstrom macroglobulinemia: What to expect during watch & wait?

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@colleenyoung

Welcome, @bacord83. I moved your message to this discussion:
- Waldenstrom macroglobulinemia: What to expect during watch & wait? https://connect.mayoclinic.org/discussion/waldenstrom/

Just click the link to see the discussion about watch and wait with WM and meet other members like @squidlee @catalinae @champ9810 @ejrquast and more.

I prefer to refer to "watch and wait" as the "active surveillance" treatment option. Watch and wait feels like inaction and just waiting for the worst. Active surveillance is pro-active. Your condition may not require treatments like chemo, but you are still being actively monitored for any changes that may indicate a different treatment approach.

When deciding on treatment options, your doctor will take many things into consideration like how slow or fast the condition progresses, your age, health status, personal preferences and treatment side effects.

Did your doctor discuss options and the pros and cons of each with you?

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Replies to "Welcome, @bacord83. I moved your message to this discussion: - Waldenstrom macroglobulinemia: What to expect during..."

No discussion on treatment options, only that all treatments had side effects

Hello all. Thought I would jump in and be part of the discussion on Waldenstrom disease. I have been part of a support group for prostate cancer for 3 years and appreciate the value of the group.
Diagnosed with MGUS in 2020 and monitored for 2 years when condition progressed and treatment was started Feb 2023 with IVIG infusions.
Again blood work showed progression to Waldenstrom with IgM at 7800. Chemo started last week with treatments every month for two consecutive days each time.
Look forward to being part of this discussion group going forward
Best to all!