My Experience on Evenity for Treating Osteoporosis

@susanfalcon52 just fyi it is tough to just stop Protonix and similar meds. The body adjusts to them by making more acid, so when you stop, you are worse than when you started. I read this, and it was my experience. I don't know if it is a universal experience.

What I read, and what I did, was to switch to a shorter term histamine H-receptor antagonist like Pepcid or Zantac. Take daily (or even twice daily) and then gradually taper off. I had to taper very gradually.

I now use Tums and very rarely a Pepcid as needed.

I don't eat after 5 or 6pm and if I have to swallow anything -water, pills- before bed I stay upright for awhile. Of course avoid anything spicy.

For an esophagus issue I also occasionally (a few times/year) swallow a steroid by squirting an inhaler in my mouth and swishing it with a very small amount of water.

I have an autoimmune disorder that causes GERD and many other issues but this strategy should work for others too.

@susanfalcon52, I sent you a message

@teb could you share info on herbs you use, here, or send me a PM?

sure thing. check your private message.

That is very helpful, Windyshores. I am going to try that. I would very much like to get off of the protonix.

Amazon has calcium citrate 1260 mg with 1000IU of D3 by Horbaach. This is what i am trying with K2 and magnesium 500 mg for now. We will see how that goes.

For what my experience is worth, I too was petrified to start Evenity. I finally went on it as I have bone density as low as -5.2. I am coming up on my 8th set of shots. I have not had any serious problems and have generally felt good. I have mostly minor headaches at times but very few so far and they go away pretty quickly. I did have one episode of scalp tenderness, but it turns out that can be a form of migraine. Once I realized that I was relieved and it went away. It's hard to tell if the headaches stem from Evenity, but I typically don't have headaches. Hope this helps, try to think positive. Good luck.

Thank you for sharing. I am going to try one more Reclast infusion then start the Evenity. My doctor can tell how scared I am about this drug. I would love if you keep in touch and let me know the results. I hope your bone density increases :O) I truly would like to know after the 12 shots if it actually works. Please keep in touch. Thank you again for your experience. It helps me more than you know! Take care, Sheri

@sheriv my docs say that Reclast before Evenity (or before Tymlos or Forteo) is the wrong sequence and should be the other way around. They have told me that Reclast may even, in some cases, reduce the effectiveness of the bone builders.

Is there a reason your doc is recommending Evenity rather than Tymlos or Forteo? I chose Tymlos because the dose is adjustable and I could start low. That helped with fears of side effects. I have gone from severe osteoporosis to borderline with a 20% gain even though I rarely do a full dose.

I would assume it's because I have already had a Reclast infusion. I went from Prolia for 6 years to Reclast for the first time last year. Due to the significant amount of bone loss on my bone density scan this time, she thinks I should rebuild bone and then sustain it with reclast. I actually spoke with her today and she has decided I can do another round of reclast and then see if I can get another bone density scan (even tho it will be 1 year instead of 2), and then give me more time to think about the Evenity because she knows how afraid I am. We will then talk in February to decide if I should go on the Evenity. Sounds pretty positive that will be her plan because I need to gain the bone. After Evenity she would then put me back on Reclast again to sustain it. She told me about another injection that you would give yourself every day, but I said no to that instantly so I'm not sure if that is the Tymlos or Forteo you are talking about. I cannot give myself a shot. Is that what those meds are you are talking about?