Has anyone been diagnosed with Central Sensitization?

Is the PRC program their 3 week program? Cant you tell me more about it. I went to the fibromyalgia clinic two day classes in September in Rochester. I can see where this program will work. I’m 20% better but seem to be struggling.

I went through the 3 week program and it helped tremendously. It's a lot of information and dedication to getting better. I also did the 2 day fibro clinic. Both have been helpful. Will never be back to what I was before but I'm slowly learning to accept and adapt.

I was diagnosed with this as well. That and burning mouth syndrome. What is the 3 week program?

Thank you so very much for posting this! My college age daughter was diagnosed in May, but was not sick for long enough for insurance to cover treatment program. She is now worse off than she was in May and I am trying to talk her into going to Jacksonville or Rochester, but she is quite skeptical. Still worries something else is wrong with her and as soon as she sees the words "group therapy" she balks, thinking that is proof they think it's all in her head and is also hesitant about opening up to a group of "strangers." Do you remember how much of the day was spent in group therapy? Any encouraging words or suggestions for how to talk her into this? Thank you!

I was diagnosed with Central Sensitization Syndrome in 2017. I don’t have the good fortune to be able to go to the Mayo Clinic. I live in California and even if I could afford to go that place, my medical problems caused by a botched surgery and the subsequent poor treatment of my nerve damage, Fentynal, I can’t get on a plane or drive there.

Hi, @goldleaf - sounds as though it's been a rough road thus far with your surgery and treatment that didn't go as you'd wanted.

I thought you might be interested in this Mayo Clinic video on central sensitization https://www.mayoclinic.org/-/brightcove-video-embedder/?videoId=%7BC735385A-E93F-4B8B-B1FA-1AEAD6691C2D%7D&title=Pain%20rehab%20expert%20explains%20central%20sensitization.

Wondering what symptoms are troubling you the most currently?

I have already seen that excellent video along with half a dozen more. The main problem is they tell me nothing new. I have read just about everything on this syndrome including the latest update published in 2018. They are still stuck in second gear. I would have to write all day in order to tell what symptoms bother me all day. One is just as bad as the other. If I was to tell you the most annoying symptom other than constant pain it would be what my mind does. The minute I wake up and the second a thought starts, I am in the twilight zone. Before this syndrome, I would wake up and it would take me a little while to shake the Cobb Webb’s off so to speak.. Now It is like an on an off switch on a computer. I call it the rush. I don’t know if you ever had a injection of adrenaline. I had one when I was 16. That was the first time I became aware that I had an allergy to shellfish. Eating some shrimp at a restaurant and ending up at an emergency room swelling up like the Pillsbury dough boy. This never happened before when I ate shell fish. The drug they use to counteract the reaction wasn’t moving along fast enough an I couldn’t breathe. The doctor gave me that injection and that rush is now what I wake up to every morning. It will slow down some as the day wares on but the slightest idea that bothers me and it goes full blast. I use the term roller coaster ride it suits that experience.

Hi, I would like to add something since I have had some time to think more about your inquiry. I am going to have to ease into this reply as it is early morning here and I am dealing with the instant rush I get when waking up and my thought process. As far as my disappointment and not having turn out the way I wanted, I find that amusing. The fact is nothing in my life has turned out the way I expected. The only way that has ever happened is if I had control over the out come. Relying on someone to come to my rescue in any aspect of my life has never happened. This has been my reality. This situation has never changed and I don’t see it changing now. Just so you know, I have been seen by a host of mental professionals to. One in particular since I went off work for the PTSD problem. A very caring psychologist. Yes there have been too many psychiatrists and they are worse than the medical doctors I have seen. I don’t need to see drug pushers and that is all they are about. The area where I use to work, Compton and Watts, I saw a lot of them. I was around the users of those drugs all day. From my observation the only difference between those drug dealers and the psychiatrists is the clothes they wore. At least the drug dealers don’t pretend to be anything other than what they are. As you can tell I am angry but I am very observant. Psychologists, are better in the respect in the fact that they are trained to listen to you. You spend a longer time with them than any other medical professional and in my opinion they get to know way more about that person than any medical doctor. A good can spot who is a hypochondriac and who is for real. I have spent more time and have gotten way more real help and understanding from that lady than anyone else. Unfortunately she missed my problem of Central Sensitization Syndrome. She never heard of this condition before even though her husband was a vascular surgeon and both her sons are doctors. She felt terrible when I told her. She has been a psychologist for over 30 years. Being the type of person she is, she went out of her way to research this problem on her own. Being in the medical community for so long, she has a lot of resources and other doctors to call and she did that for me. Unfortunately she has come to the same conclusion as me. Not enough research and not enough people with Central Sensitization Syndrome. The reality is there is nothing she can help me with. Talking is part of therapy and I have a very large problem talking about anything to with my life or my medical problems. Stress is the reason and even the thought process starts my crap. It is interesting in a way how anything affects everything with this syndrome. I do understand the process but it is annoying.

I would like to post one last thing as after reading way to many posts from this and other topics, this is way too sad for me. There are just too many who are confused about what is really happening to them. In some cases or in my estimations they are just too desperate and are willing to just try anything to relieve the pain they are in. To me, at best, those things they are taking or using are just temporary and won’t last. In most cases, these people will pay a price for these attempts. Things that you didn’t have beforehand, like new medical problems, will happen. I have only 3 doctors now that I see on an off. Every once in awhile they forget my chemical sensitivity and feel sorry for me an offer me a pharmaceutical drug to help. I understand but I have learned by almost dying a couple of times from that crap of Fentynal use, that an easy short term supposed fix, is foolish and deadly. This may sound crazy to anyone but I would rather have the sometimes excruciating pain that I experience every once in awhile, then death. At least with the feeling of pain, you still know your alive. Here is a reality that I would like to share with anyone who takes the time to read this post. All the people that were friends or I have known since high school and used opiates are dead now. I watched them go through all the stages of how opiates slowly kill you. That is one of my reasons I stayed away from crap like that. I became desperate after my surgery, and trusted doctors to keep me informed as to what they were prescribing me for pain. I never looked into it myself. Not one of these doctors told me what Fentynal was. If I had known, I would never had used it. I have heard all the bull about why this happened but a doctor is suppose to know about the medications he is giving you and then tell you about the benefits and the risks so you can decide for yourself if this is worth it. They failed me in that responsibility. I am paying a price for that for the rest of my life. If you think it can’t happen to you, you would be wrong. I am going to have to stop writing for awhile and reading all these sad posts. This is a good web site.

I have run into this situation before and maybe you could shed some light on it for me. People disappear on this site. I don’t mean they become invisible, they just stop communicating. I did have a conversation with two ladies who have Central Sensitization Syndrome but that was very short and lasted one time since I joined. I have used other web sites and have found that the have Central Sensitization Syndrome as a topic but the posts are very old. Just curious. I have gotten involved here on some other discussions but I don’t think they understand what I am dealing with and can’t relate. I know I have never heard of this before it happened to me. Pain is universal but this is not. You are in a different world when dealing with this. Those ladies and I have very similar symptoms as mine even though their other medical problems are different than mine and I found that odd. This has left me in a very awkward position. Maybe you can help.