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Early cancer detection Galleri test: Anybody using it?

Cancer | Last Active: Aug 8, 2023 | Replies (21)

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@chrissiebee

Back in the early 2000s the Pet scan showed a hot area in my lung. I was rushed off for a thoracotomy, had a portion of my lung removed where there was a tumor, but it turned out to be a benign tumor that could have remained there and be followed with CT scans to see if it grew. It turned out to be Valley Fever spores that had lodged in my lung and my body recognized a foreign invader and build cells around it to isolate it. Valley Fever could be detected by a simple blood test which the doctors should have known to give me. It was a very difficult surgery and recuperation because I had residual pain where they cut me for years after.

I also had a metastasis of endometrial cancer. I had surgery and a lot of radiation. This also took quite some time to recuperate because the metastasis was on my outer colon and hip bone. About two years later with much after effects from the colon resection, I was given a Pet scan and was told the hot spot compared to the previous one when the metastasis was first discovered had grown much larger and it was very hot. They said my cancer must be back. That was in 2004. I'm still here and the cancer had not returned. I, however, just was treated for bladder cancer which was a result from the massive amount of radiation I got. After a year of chemo in my bladder monthly, I'm doing fine. The Pet scan is not the be all and end all of tests is my conclusion.

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Replies to "Back in the early 2000s the Pet scan showed a hot area in my lung. I..."

That is good to know. I am sorry to hear about your experience and hope you are feeling much better now.
I think much depends on other criteria lining up with scan results. While CT and MRIs can detect anomalies they may be less helpful in instances where the initial cancer treatment leaves a scar. The question becomes is it active or just a scar. That being said, much depends on the experience of the radiologist interpreting the scan. It is important to recognize and acknowledge your experience. No one method of follow up is perfect. Wishing you the very best….

I had the Galleri test recently. I came up negative. I have since had an endoscopy EUS Ultrasound to test for an Insulinoma. They did a biopsy. It came up positive for a neuroendocrine tumor. I go for a PET scan this week.