Connect
Anybody that had adenoid cystic carcinoma in sinus cavity?
I had this tumor removed from my right sinus, and then radiation, it's been 2 years. I have such issues with congestion, ear feeling "plugged" like all day. And swallowing issues, along with not being able to open my mouth very wide. I have a upper partial, so can't chew very well, but more implants later. I wondered if anyone is going this and how they feel and thoughts! Thanks.
Like
Helpful
HugInterested in more discussions like this? Go to the Head & Neck Cancer Support Group.
Connect
There is a great resource for this very rare cancer. You might want to check it out if you haven't already. So much information about ACC and it's treatments ..... from both experts and people who have ACC.
It is the Google Groups "Adenoid Cystic Carcinoma Organization Int'l" The ACC website is accrf.org.
-
Like -
Helpful -
Hug
2 ReactionsThank you for sharing, I've been looking for something and anything about this type of cancer and aftereffects I have.
Welcome @kjwilson23, I'm tagging fellow members like @hargonagain and @jessskoldal who have tumors involving the sinus cavity.
The issues you are experiencing are shared with many of the members of the Head & Neck Cancer support group. I think you might also be interested in joining these related discussions:
– Trismus (lock jaw) after Head & Neck cancer treatment: What helps?
https://connect.mayoclinic.org/discussion/lockjaw-after-sinus-cancer-surgery/
- Are there ways to help me swallow better? https://connect.mayoclinic.org/discussion/anyways-to-help-me-swallow-better/
- Radiation side effects with H&N cancer. When will they ever end? https://connect.mayoclinic.org/discussion/radiation-side-effects-when-will-they-ever-end/
When will you have further implants done?