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Hope: Starting Calmare scrambler therapy

Posted by sprinrosa64 @sprinrosa64, Dec 5, 2022

It;s been just over 5yrs since my TKR and I have been in terrible pain since. I am told it's due to nerve condition or damage and I have tried everything so I thought , well today I will be start Calmare scrambler therapy. I have done my research and am praying this is my answer . I will keep you posted as to the outcome

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crossette | @crossette | Aug 7, 2023

My Report on the Calmaire therapy: I actually found a provider of this electronic therapy just a few miles from my home. Apparently there are no others within 100 miles. This was at the Hartford Healthcare Pain Clinic in West Hartford, CT. I was told that typically patients know within 3 treatments of 1 hour each, if it will work for them. So I made 3 appointments on a Monday - Wednesday. After the first 2 in which the technician applied the 4 sets (of 2) electrode patches in different places (2 on the lower back and 2 on the lower legs. (I have neuropathy in the feet and lower legs and some in the lower back due to an accident years ago.) During the therapy I just read a magazine and felt nothing. Afterward I felt slightly different, not better or worse, just sort a more normal feeling at times. After the 2nd day I felt nothing different or noticable. On the 3rd day I sensed that the technician was looking to find some location or voltage level that would help me. She didn't say this but she placed the lower electrodes on the top and bottom of my feet and the other set on my legs. She also turned the power up to 70% from about 65% the day before. I felt nothing during the treatment again. But the next day, about mid-morning I began to feel some pain in my feet, especially on the soles. By the end of the day I could feel that my neuropathy was considerably worse. Unfortunatly it has remained worse by 20 to 30% and it has been over 2 weeks ago now that I had the last treatment. We have to realize that everyone reacts differently to many drugs and therapies but I wanted everyone to know that the Calmaire Scrambler is capable of making neuropathy worse!

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1 reply
cnola | @cnola | Aug 7, 2023

I had 12 sessions for my head and face due to PHN and there was no relief . All I had was a receipt for the therapy ,

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irishnanny3 | @irishnanny3 | Aug 7, 2023

Thanks to each of you who have shared your experiences
It’s so helpful to hear genuine
narratives

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Berk | @gba | Aug 7, 2023
In reply to @amandajro "Hello @irishnanny3. I was able to find a discussion on scrambler therapy, so you will notice..." + (show)
@amandajro

Hello @irishnanny3. I was able to find a discussion on scrambler therapy, so you will notice that I have moved your post here:
- Hope: Starting Calmare scrambler therapy: https://connect.mayoclinic.org/discussion/hope-1/

Members such as @mdfriel @cnola and @gba may be able to come back and share an update on their experiences.

Have you been offered this therapy by your neurologist?

Jump to this post

I had my 1st. of 16 treatments today. Will have 5 a week. Excited, Yes. I will update next Monday!
Hopefull,
Berk

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dmacfl | @dmacfl | Jan 15 7:30pm
In reply to @sprinrosa64 "Thanks for asking Rachel , normally it is a 10 day program but they are allowing..." + (show)
@sprinrosa64

Thanks for asking Rachel , normally it is a 10 day program but they are allowing me just 4 days to see if we get any results, helps save a lot of money doing it that way. Tomorrow will be my 4th day so 🙏. I will let you know

Jump to this post

My daughter responded to Calmare Scrambler with Dr. D'Amato in Bonita Springs, FL. He trained some of the Mayo physicians and recieved his own training in Italy. Dr. D'Amato readjusted the electrodes several times and finally found a no pain pathway to bypass her CRPS pain pathway. Did they have you stop all pain meds a week prior?
Sometimes a response takes more than4 days and can also depending on the training and frequency the doctor/practitioner works with patients/scrambler.

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1 reply
cnola | @cnola | Jan 15 7:54pm
In reply to @dmacfl "My daughter responded to Calmare Scrambler with Dr. D'Amato in Bonita Springs, FL. He trained some..." + (show)
@dmacfl

My daughter responded to Calmare Scrambler with Dr. D'Amato in Bonita Springs, FL. He trained some of the Mayo physicians and recieved his own training in Italy. Dr. D'Amato readjusted the electrodes several times and finally found a no pain pathway to bypass her CRPS pain pathway. Did they have you stop all pain meds a week prior?
Sometimes a response takes more than4 days and can also depending on the training and frequency the doctor/practitioner works with patients/scrambler.

Jump to this post

Good luck I hope it works. My 10 sessions did nothing and I’m 3 years and counting. Not getting any better

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merlinsmom | @merlinsmom | Jan 28 11:48pm
In reply to @crossette "My Report on the Calmaire therapy: I actually found a provider of this electronic therapy just..." + (show)
@crossette

My Report on the Calmaire therapy: I actually found a provider of this electronic therapy just a few miles from my home. Apparently there are no others within 100 miles. This was at the Hartford Healthcare Pain Clinic in West Hartford, CT. I was told that typically patients know within 3 treatments of 1 hour each, if it will work for them. So I made 3 appointments on a Monday - Wednesday. After the first 2 in which the technician applied the 4 sets (of 2) electrode patches in different places (2 on the lower back and 2 on the lower legs. (I have neuropathy in the feet and lower legs and some in the lower back due to an accident years ago.) During the therapy I just read a magazine and felt nothing. Afterward I felt slightly different, not better or worse, just sort a more normal feeling at times. After the 2nd day I felt nothing different or noticable. On the 3rd day I sensed that the technician was looking to find some location or voltage level that would help me. She didn't say this but she placed the lower electrodes on the top and bottom of my feet and the other set on my legs. She also turned the power up to 70% from about 65% the day before. I felt nothing during the treatment again. But the next day, about mid-morning I began to feel some pain in my feet, especially on the soles. By the end of the day I could feel that my neuropathy was considerably worse. Unfortunatly it has remained worse by 20 to 30% and it has been over 2 weeks ago now that I had the last treatment. We have to realize that everyone reacts differently to many drugs and therapies but I wanted everyone to know that the Calmaire Scrambler is capable of making neuropathy worse!

Jump to this post

I am so sorry your pain got worse! I am very interested in trying Scrambler therapy but dont have any practitioners ( that i know of) in PA. I’m thinking of going to Bonita Springs Fl to get a consultation. I understand not covered by insurance. If you don't mind, what was the charge for a session? I’m trying to decide between the trip to FL, buying the Rebuilder, or the NeuroMD device. Several options, all different costs.

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