Just diagnosed with tortuous colon

Posted by marmoldav @marmoldav, May 14, 2023

Hello. I just had my first colonoscopy and the report on it says I have a tortuous colon. For some time now I have complained to my doctor that I get full after eating very little. I had loads of test done that tested my stomach and at what speed it emptied. They said everything was fine. I still have the problem and, to be honest, it's worse since the colonoscopy. I have had no contact from the doctor since the colonoscopy about the results (tortuous colon and a tubular adenoma) which I find strange and if I don't here soon I'm going to ask my primary care doctor what to do. I'm wondering if the tortuous colon is the cause for the full feeling and how it will effect future colonoscopies because with the tubular adenoma I think I'm gonna need colonoscopy more than every 10 years. If anyone has a similar experience I'd like to hear about it.

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@marjoriem

Hello group. I just found this group and need help! I have tortuous colon that has caused severe constipation. However, I have a BM every day but do not fully defecate and have a lot of gas and bloating. My Gastroenterologist put me on a cleansing dosage of Miralax and told me to repeat as necessary. I did the routine twice but didn't feel a lot better. Then he put me on 3 capfuls (morning, mid-day and night) of the Miralax a day and told me to stay on that routine. This was causing bathroom emergencies and many times I did not make it. I then cut back to 2 capfuls, same problem, then 1 capful. The bathroom emergencies are much better but I cannot sleep at night. My stomach is constantly making noises and I have to get up several times during the night because it feels like I have to go but it's only gas. I have now cut back to a half a cap of Miralax but still noisy stomach and gas. I have read that some of you take Metamucil and it helps. I thought that too much fiber caused gas and already have too much gas. I am lost at what to do!

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A probiotic has helped me a lot. I use one called Unbloat. It's for women. Also magnesium helps with bm's. It draws water in to the colon. Take it at night and it also helps with sleep. A squatty potty has been a big big help. Also fiber supplements like fibercon or metamcuill will be much more gentle than miralax. I haven't had a problem with gas with fiber supplements but that's just me. I can't imagine taking something as powerful as miralax on a regular basis. In my opinion that should just be when you're desperate. Make sure to drink enough water and coffee makes me poop right on time every morning lol. Hope this helps.

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@dedhambeth

I was given the directions to take two Metamucil capsules each morning with a big glass of water. I get up early just to be able to do that and drink a cup or two of coffee. This helps me have a BM before I go to work in the morning. I also drink as much water as I can during the day. In addition, I have found that doing Intermittent Fasting has helped along with chewing my food really well. I think it is because there is less food to be digested. I also watch how much carbohydrates and dairy I consume. This has worked well for me with very few flare ups.

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Thank you!

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I was informed of my tortuous/redundant colon after 1st colonoscopy many years ago, but have had several colonoscopies since then. Assume the process may take a bit more time to navigate camera through the colon.
Last procedure removed some polyps but 2 were in deep folds, requiring special surgeon to remove.
Interesting comment about feeling full after eating a small amount! Same here, with no explanation. Will ask my Gastro doctor about the colon possibility.

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I was diagnosed with tortuous colon 2 years ago and after a lot of trial and error found that working with elimination of food triggers as well as food that has slow transit time like meat helps. Also stomach massage in the morning before getting out of bed in a clockwise manner. The supplements I take nightly are magnesium O7 and Cleanse More by Renew Life. It has also been my experience that stress plays a big part of this issue. Good luck. My background is nutrition and massage therapy. Metamucil just clogged me up and caused painful gas. I am 70

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@reillyg1013

How horrible for you. I know what works for one person may not help another, but the only thing that breaks thru for me is Australian black licorice. Works better for me than miralax.

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Is Australian black licorice something you eat or in pill form? Also, I have gerd and hiatal hernia so I have to be careful about what foods trigger an extreme discomfort episode.

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@darcystaples

I was diagnosed with tortuous colon 2 years ago and after a lot of trial and error found that working with elimination of food triggers as well as food that has slow transit time like meat helps. Also stomach massage in the morning before getting out of bed in a clockwise manner. The supplements I take nightly are magnesium O7 and Cleanse More by Renew Life. It has also been my experience that stress plays a big part of this issue. Good luck. My background is nutrition and massage therapy. Metamucil just clogged me up and caused painful gas. I am 70

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Thank you darcystaples. Has the Cleanse More caused you any emergency bathroom situations? I just might give this a try.

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@marjoriem

Is Australian black licorice something you eat or in pill form? Also, I have gerd and hiatal hernia so I have to be careful about what foods trigger an extreme discomfort episode.

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Australian licorice is usually sold in gourmet type candy stores. Looks similar to American licorice, but is much softer and has incredibly strong flavor. Not suggested for people who have high blood pressure, which I do, so I only eat it when I have to. 2 or 3 pieces help, but I don’t know if it will affect your herd or hiatal hernia.
Best of luck to you

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I have this condition but the only time it bothers me is once every three years when I have a colonoscopy. My prep is very extensive. Otherwise, I don’t think about it. We eat a lot of fruit and vegetables at our house and walk five miles every morning.

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@reillyg1013

Australian licorice is usually sold in gourmet type candy stores. Looks similar to American licorice, but is much softer and has incredibly strong flavor. Not suggested for people who have high blood pressure, which I do, so I only eat it when I have to. 2 or 3 pieces help, but I don’t know if it will affect your herd or hiatal hernia.
Best of luck to you

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Thank you!

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In reply to @marjoriem "Thank you!" + (show)
@marjoriem

Thank you!

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What is extensive about your prep, if you don't mind me asking? Mine was discovered during my first colonoscopy and I'm wondering if my prep next time will be different.

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