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Just diagnosed with tortuous colon

Digestive Health | Last Active: Sep 11, 2023 | Replies (42)

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@marjoriem

Hello group. I just found this group and need help! I have tortuous colon that has caused severe constipation. However, I have a BM every day but do not fully defecate and have a lot of gas and bloating. My Gastroenterologist put me on a cleansing dosage of Miralax and told me to repeat as necessary. I did the routine twice but didn't feel a lot better. Then he put me on 3 capfuls (morning, mid-day and night) of the Miralax a day and told me to stay on that routine. This was causing bathroom emergencies and many times I did not make it. I then cut back to 2 capfuls, same problem, then 1 capful. The bathroom emergencies are much better but I cannot sleep at night. My stomach is constantly making noises and I have to get up several times during the night because it feels like I have to go but it's only gas. I have now cut back to a half a cap of Miralax but still noisy stomach and gas. I have read that some of you take Metamucil and it helps. I thought that too much fiber caused gas and already have too much gas. I am lost at what to do!

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Replies to "Hello group. I just found this group and need help! I have tortuous colon that has..."

I was given the directions to take two Metamucil capsules each morning with a big glass of water. I get up early just to be able to do that and drink a cup or two of coffee. This helps me have a BM before I go to work in the morning. I also drink as much water as I can during the day. In addition, I have found that doing Intermittent Fasting has helped along with chewing my food really well. I think it is because there is less food to be digested. I also watch how much carbohydrates and dairy I consume. This has worked well for me with very few flare ups.

A probiotic has helped me a lot. I use one called Unbloat. It's for women. Also magnesium helps with bm's. It draws water in to the colon. Take it at night and it also helps with sleep. A squatty potty has been a big big help. Also fiber supplements like fibercon or metamcuill will be much more gentle than miralax. I haven't had a problem with gas with fiber supplements but that's just me. I can't imagine taking something as powerful as miralax on a regular basis. In my opinion that should just be when you're desperate. Make sure to drink enough water and coffee makes me poop right on time every morning lol. Hope this helps.