Neuropathy in both feet

If your was due to medication, why stopping that medication has not helped you get better?
Mine is due to covid vaccine. I was doing better on steroids, then better on LDN, and then LDN stopped working and now new symptoms and pain started and not going away.

Hi Stella. Oh the medication was just one prescription for a week for bladder infectin (i get them often since pelvic radiation for cancer years ago) and a week or so after finished meds got it: there was a black box warning on the prescription pages with the pills my spouse picked up but NO ONE the dr. nor the pharmacist told me about what black box warning was. I hesitated to take but did and regret it since. Also then checked Internet after taking and after the neuroppathy and visit to emerge and they showed a recallled lot from the year before and, yes, checked with Pharmacy and they were dispensing the RECALLED LOT but in 2016 were not putting lot number on pill bottle which they do now and they said they could not tell me if i got the recalled lot!! I contacted Health Canada andthey said the Pharmacy did not have to keep track of the lot numbers! (give me a break) anyway, damage was done and I switched pharmacies.

I am so sorry! What a nightmare!
Are you suing the pharmacy who gave you the recalled lot!?
How can one week of medication do so mucch damage on the long run?!

...Ah...it is one of the quinolone drugs, can have an effect weeks or months later - especially achilles? tendon, class action lawsuit in USA re couple of the quinolone drugs, just have to go out, can give more info.... who would suspect an antibiotic taken months ago would cause a physical injury etc.?? ugh

Mine wasn’t from any medication. They don’t know what it’s from. I think it’s from the nine back fusions I had.

Welcome @coloradobigmama. It looks like you have just arrived on Connect. This forum is where we find folks who look forward to learning from others and then contribute their experiences to fellow neuropathy patients. Regarding CBD products, I am happy to share my medical cannabis routines at this point. I was diagnosed with SFN (small fiber neuropathy) 10 years ago and introduced to the medical cannabis world of helpful options.

First of all, I do need some more information about your neuropathy diagnosis. How long have you been dealing with the symptoms? When and how were you diagnosed? Are you currently using any medications to help you?

I do not use CBD alone. I have several different dosages that I use during the day for the relief of pain and other SFN symptoms. Some are labeled 2:1 CBD/THC. That particular tincture has twice the amount of CBD to THC. Early in the morning, I will use a smaller tincture of 1:1 CBD/THC which has equal amounts of CBD and THC. There are also topicals available for pain and discomfort with similar options.

I will leave you with a couple of other realities.......you are often dependent upon your own research about medical cannabis. Some dispensaries with medical clients have a special pharmacist available to help you explore your options.

And here is a valuable phrase to be used as guidance. "You can always ask for more. You can never ask for less."

What other information are you interested in finding?

May you be free of suffering and the causes of suffering.
Chris

My neuropathy is a result of chemotherapy. It effects both my feet and hands. I am on Gabapentin and Duloxetine, also hydrocodone when needed. I do not like feeling ‘drugged’ and it takes a couple of hours in the morning to feel like I am in control. My balance is a struggle even though I’m very active. I have a CBD menthol cream that I primarily use at night.

Has anyone tried CBD orally or in a patch?

I’ve tried gummies, also from the same brand (Fab CBD—I know, it’s such a cheesy name, but it’s a reputable brand) and they taste really good. It’s broad, not full spectrum though. I tried a different brand that was full spectrum, which I didn’t like as much.

I think its supposed to be better to dose it under your tongue so it gets absorbed directly as opposed to going through your GI tract, but I didn’t think I’d like the taste and at any rate part of the reason I tried it orally was for GI symptoms.

Anyway, I didn’t notice a change in symptoms with the gummies so just sort of stopped taking them because they’re so expensive.

Hi my name Is Illa and yes I have Peripheral Neuropathy in both feet , hands and legs. The doctors ran a series of shock testing figuring that I had a severe case of Neuropathy and there was no cure and nothing that can be done about it. I had never heard of it and didn’t know why I was experiencing this ailment. Unfortunately I am unable to walk really good and my balance is unstable but every step I take I trust God. This all just happened overnight for and I was devastated. I still have my days but then I think of ALL that God has done and is gonna do in my life and I am able to rejoice. I have no idea if this has been of any significance or assistance but yes I have it from the waist down and I won’t give up. Thank you so much for listening and I am here if you need me for anything.