Neuropathy in both feet

I am so sorry! What a nightmare!
Are you suing the pharmacy who gave you the recalled lot!?
How can one week of medication do so mucch damage on the long run?!

Mine wasn’t from any medication. They don’t know what it’s from. I think it’s from the nine back fusions I had.

Welcome @coloradobigmama. It looks like you have just arrived on Connect. This forum is where we find folks who look forward to learning from others and then contribute their experiences to fellow neuropathy patients. Regarding CBD products, I am happy to share my medical cannabis routines at this point. I was diagnosed with SFN (small fiber neuropathy) 10 years ago and introduced to the medical cannabis world of helpful options.

First of all, I do need some more information about your neuropathy diagnosis. How long have you been dealing with the symptoms? When and how were you diagnosed? Are you currently using any medications to help you?

I do not use CBD alone. I have several different dosages that I use during the day for the relief of pain and other SFN symptoms. Some are labeled 2:1 CBD/THC. That particular tincture has twice the amount of CBD to THC. Early in the morning, I will use a smaller tincture of 1:1 CBD/THC which has equal amounts of CBD and THC. There are also topicals available for pain and discomfort with similar options.

I will leave you with a couple of other realities.......you are often dependent upon your own research about medical cannabis. Some dispensaries with medical clients have a special pharmacist available to help you explore your options.

And here is a valuable phrase to be used as guidance. "You can always ask for more. You can never ask for less."

What other information are you interested in finding?

May you be free of suffering and the causes of suffering.
Chris

My neuropathy is a result of chemotherapy. It effects both my feet and hands. I am on Gabapentin and Duloxetine, also hydrocodone when needed. I do not like feeling ‘drugged’ and it takes a couple of hours in the morning to feel like I am in control. My balance is a struggle even though I’m very active. I have a CBD menthol cream that I primarily use at night.

Has anyone tried CBD orally or in a patch?

I’ve tried gummies, also from the same brand (Fab CBD—I know, it’s such a cheesy name, but it’s a reputable brand) and they taste really good. It’s broad, not full spectrum though. I tried a different brand that was full spectrum, which I didn’t like as much.

I think its supposed to be better to dose it under your tongue so it gets absorbed directly as opposed to going through your GI tract, but I didn’t think I’d like the taste and at any rate part of the reason I tried it orally was for GI symptoms.

Anyway, I didn’t notice a change in symptoms with the gummies so just sort of stopped taking them because they’re so expensive.

Hi my name Is Illa and yes I have Peripheral Neuropathy in both feet , hands and legs. The doctors ran a series of shock testing figuring that I had a severe case of Neuropathy and there was no cure and nothing that can be done about it. I had never heard of it and didn’t know why I was experiencing this ailment. Unfortunately I am unable to walk really good and my balance is unstable but every step I take I trust God. This all just happened overnight for and I was devastated. I still have my days but then I think of ALL that God has done and is gonna do in my life and I am able to rejoice. I have no idea if this has been of any significance or assistance but yes I have it from the waist down and I won’t give up. Thank you so much for listening and I am here if you need me for anything.

Do you know what caused it by chance? I’m sorry you are dealing with this too.

Illa, Thanks for writing. I too question why. The pains are so varied in severity and length. I have not yet had the feeling of lost balance. I can’t imagine your concern about movement. Im so glad you can find peace in you love for the Lord. I have just resigned myself that I just must deal with it. No one but people such as yourself can understand what we must tolerate but it wouldn’t help to complain. It does leak out when the pain heightens. Best of luck to you.

Charlotte @charlie807
I two have ph neuropathy in both feet. Everything you say electric shocks through both feet, hot one minute, cold the next nothing really helps me. On Gabapentin and Cymbalta for years 2014. Now on Lyrica and Cymbalta still no real help I lose a lot of sleep. I know what caused mine. My surgeon in 2010 left the screws on my nerves after L5-S1 fusion. I never know why I was always in pain still. Changed doctors after PT or injections didn't help. First day he told me about the screws. Well the damage done and I have a great neurologist, but he doesn't believe in pain pills. I do go to a pain clinic for that just to help take the edge off . Like you say it's great to find people in the same place. I'm losing my balance alot I fall if I'm not truly paying attention. I'm 72 and have lost my joy of walking daily. Everything I do I pay for in pain. Back isn't great had revision to fix the screws with fusion from L-3 to S1. I wear flip- flops year round in Virginia only shoes I can wear. Cannot wear socks or closed shoes my feet hurt to much. I'm a mess but everyday is a new day and I just keep moving forward. This website helps I'm not alone or crazy. Thanks to everyone out there. Love to all