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Neuropathy in both feet
Do any of you have ph. Neuropathy in both feet? I have had every test there is to figure out why. I am in that small percentage where they don’t know what it’s from. I have had nine back & SI joint fusions and they are telling me it’s not from my back because it’s in both feet. After various surgeries I was put on nerve meds because of nerve Dane in one foot. Over time it moved to both feet. I also have circulation issues where my feet are cold one minute and red the next.
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Do you know what caused it by chance? I’m sorry you are dealing with this too.
Illa, Thanks for writing. I too question why. The pains are so varied in severity and length. I have not yet had the feeling of lost balance. I can’t imagine your concern about movement. Im so glad you can find peace in you love for the Lord. I have just resigned myself that I just must deal with it. No one but people such as yourself can understand what we must tolerate but it wouldn’t help to complain. It does leak out when the pain heightens. Best of luck to you.
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2 ReactionsCharlotte @charlie807
I two have ph neuropathy in both feet. Everything you say electric shocks through both feet, hot one minute, cold the next nothing really helps me. On Gabapentin and Cymbalta for years 2014. Now on Lyrica and Cymbalta still no real help I lose a lot of sleep. I know what caused mine. My surgeon in 2010 left the screws on my nerves after L5-S1 fusion. I never know why I was always in pain still. Changed doctors after PT or injections didn't help. First day he told me about the screws. Well the damage done and I have a great neurologist, but he doesn't believe in pain pills. I do go to a pain clinic for that just to help take the edge off . Like you say it's great to find people in the same place. I'm losing my balance alot I fall if I'm not truly paying attention. I'm 72 and have lost my joy of walking daily. Everything I do I pay for in pain. Back isn't great had revision to fix the screws with fusion from L-3 to S1. I wear flip- flops year round in Virginia only shoes I can wear. Cannot wear socks or closed shoes my feet hurt to much. I'm a mess but everyday is a new day and I just keep moving forward. This website helps I'm not alone or crazy. Thanks to everyone out there. Love to all
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5 ReactionsI just saw another doc for a third opinion about all the pain I’m having in my SI joint. He thinks it’s from all the surgical hardware that was put in me from the doc that did all the fusions. I’m getting an injection to see if that is the case. If it is they have to remove some of it.
Thank you for responding. I wonder if that’s what caused neuropathy in both of my feet as well like it caused yours sitting on nerves. I have a lot of hardware. That would be the answer I am looking for, for causing the neuropathy. I am so sorry to hear you have been through so much too. I hope you get some relief. You definitely are not alone. I am 52 and have been dealing with neuropathy in both feet for a couple of years now. I have also been dealing with severe chronic pain in my SI for well over a decade. It is on a level of torture pain. It’s awful.
I wish you the best of luck and hope you start to feel better.
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2 Reactions@charlie807
My wife swears about the Mayo Clinic 3 week program for pain management. She has 13 screws from back surgery multiple times and is fused from the neck to most of back. Obviously, constant pain without remedy is difficult for anyone, but Mayo's Pain program did help her tremendously.
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3 ReactionsI’m glad your wife is getting pain relief. I wish I had positive things to say about Mayo pain clinic but I don’t. The orthopedic doc from Mayo referred me to their pain clinic for a pain stimulator. That clinic denied me from going there because I was a patient a few months ago at my local pain clinic. That’s fine it worked out anyways because I got a third opinion from another doc other than the Mayo doc and he told me that the pain stimulator will not work with my type of pain. Which two other doctors concurred this. He also said he thinks it’s the hardware causing all my pain. Good thing I got another opinion. I’m grateful now that the pain clinic denied me. Had they not I wouldn’t have explored another opinion of a doctor and got to the source of all my pain,
@eddiestella1
The Mayo Pain clinic 3 week program has to do with pain management. To my knowledge, their is no instrument nor medication involved. The object as I understand, is to mange your pain, and keep your pain to a minimum without the need for continued distress. Mayo and other hospitals may have injections and instruments for temporary pain relief, but the purpose of this program is long lasting relief . This program is intended for a large group of selected patients, and not one on one with a doctor for personal care for a specific reason. It is for all those who suffer with pain abnormalities for all sorts of various pain issues.
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1 ReactionIn response to @ collegeprof I decided to try the stimulator, and at first it seemed like it might work, but it doesn't help anymore. The trial works better then the implanted one. My cousin also agrees, I barely charge it, takes to long, they say charge it 20 mins a day, still to hard. I hope you find out the cause and get relief. Hugs too you both @charlie807
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1 ReactionThank you for explaining that. I was approved for one portion of the pain clinic. I think it focuses on psychological etc. maybe what you’re talking about is what I got approved for and I told them no. I at the time wanted to go there for the stimulator and their pain clinic that does that denied me from going there.
I’m sorry the stimulator doesn’t work for you. That seems to be the problem that I have been treading. That the trail works but the permanent one doesn’t work well.
I was told before and most recent that it won’t work for my pain. The only doc that felt like it might work is the Mayo doc. There for I have no interest in getting one put in.
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