Sudden onset of Vertigo

Posted by trish0323 @trish0323, Aug 1, 2023

Hi,

I’m new here.
I am 54 years old, I have RA, it came on during a divorce about 12 years ago. The RA is very well controlled with Enbrel however, in Feb 2023 I had a suddenly onset of Vertigo, three PT sessions relieved my symptoms completely. I’ve had it 2 more times since then, 2-3 months apart. Again PT worked to get me back to good.
The most recent onset was just two weeks ago, I only had time for two PT sessions prior to flying out of state to visit my son and Grandson. The two sessions got me to a good place and it was “almost” non-existent, until yesterday ( I flew home Sunday 7/30 )
Has anyone else experienced this?
My obgyn mentioned hearing about some getting Vertigo after having Covid. I had Covid that first Christmas and not since, it would be weird to me if the two were related with so much time in between. You never know…..
My Rheumatologist didn’t seem concerned as the PT was effective and
my MRI which was normal.

Thanks for any input you can provide.

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Vertigo is one of the symptoms of long covid (I have long covid), but so are many, many things.

If it resolved with PT, how did they explain it to you, and did they provide a diagnosis or teach you what to do if it recurred?

Since it recurred and resolved with PT, I’m wondering if you may have had benign paroxysmal positional vertigo (BPPV). It’s one of the most common things to cause vertigo when particles in your inner ear get displaced. It’s treated with specific movements that either a physician or PT would know (or you can sometimes do it on your own at home if you know how to do it), but sometimes it can recur.

This happened to me (I don’t believe it was covid related; it could happen to anyone), and I followed the instructions on this page to see if it was BPPV, and to my surprise, it was! But if you’re already established with a PT, you could talk to them since they already know your situation: https://my.clevelandclinic.org/health/diseases/11858-benign-paroxysmal-positional-vertigo-bppv

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It sounds like you have recurring BPPV. I learned exercises to do at home so I don't go to PT for it. There are even maneuvers online. I sit up looking straight ahead, turn my head to the right, and quickly fall on the bed to the left, leaving my face kind of facing the ceiling. Hold until dizziness stops. Sit up quickly looking straight ahead. Hold until dizziness stops. Then the other side.

Flying can affect the ears, so I wonder if that exacerbated things.

There are other kinds of vertigo. We are allowed to have more than one!

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@windyshores

It sounds like you have recurring BPPV. I learned exercises to do at home so I don't go to PT for it. There are even maneuvers online. I sit up looking straight ahead, turn my head to the right, and quickly fall on the bed to the left, leaving my face kind of facing the ceiling. Hold until dizziness stops. Sit up quickly looking straight ahead. Hold until dizziness stops. Then the other side.

Flying can affect the ears, so I wonder if that exacerbated things.

There are other kinds of vertigo. We are allowed to have more than one!

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Yep, that's what I did too. I was so relieved that the maneuvers worked for me on the second time, and then it happened a week later... But so far it hasn't happened again, fingers x'd!

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@emo

Yep, that's what I did too. I was so relieved that the maneuvers worked for me on the second time, and then it happened a week later... But so far it hasn't happened again, fingers x'd!

Jump to this post

Yeah for me it takes days to make the effect stick. I get better, then bad again, then a little more better, then a little less bad again 🙂 Good luck!

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The very first time it hit, I did the maneuvers at home for a week with no resolve, exactly what was explained above, turning and quick drop to the side and then up again, I then went to PT.
When it hit the second time, I didn’t attempt it on my own, I went right to PT.

It just seems so odd to hit so randomly out of the blue, I had Covid years ago.
And mine was/is an inner ear (crystals) issue, yea me !!

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@windyshores

It sounds like you have recurring BPPV. I learned exercises to do at home so I don't go to PT for it. There are even maneuvers online. I sit up looking straight ahead, turn my head to the right, and quickly fall on the bed to the left, leaving my face kind of facing the ceiling. Hold until dizziness stops. Sit up quickly looking straight ahead. Hold until dizziness stops. Then the other side.

Flying can affect the ears, so I wonder if that exacerbated things.

There are other kinds of vertigo. We are allowed to have more than one!

Jump to this post

Yes, I wondered about flying because your ears take a hit when doing so, but I had zero symptoms when I arrived or for the next 8 days but who knows, I am afraid it’s going to be a condition that I will now always have, on and off, which sucks!!

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@emo

Vertigo is one of the symptoms of long covid (I have long covid), but so are many, many things.

If it resolved with PT, how did they explain it to you, and did they provide a diagnosis or teach you what to do if it recurred?

Since it recurred and resolved with PT, I’m wondering if you may have had benign paroxysmal positional vertigo (BPPV). It’s one of the most common things to cause vertigo when particles in your inner ear get displaced. It’s treated with specific movements that either a physician or PT would know (or you can sometimes do it on your own at home if you know how to do it), but sometimes it can recur.

This happened to me (I don’t believe it was covid related; it could happen to anyone), and I followed the instructions on this page to see if it was BPPV, and to my surprise, it was! But if you’re already established with a PT, you could talk to them since they already know your situation: https://my.clevelandclinic.org/health/diseases/11858-benign-paroxysmal-positional-vertigo-bppv

Jump to this post

That’s exactly what the P.T says I have, that’s why it only takes a couple PT visits to get them back to a good place. They have no idea why it suddenly started.

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@trish0323

That’s exactly what the P.T says I have, that’s why it only takes a couple PT visits to get them back to a good place. They have no idea why it suddenly started.

Jump to this post

I think it can just happen somewhat randomly—anything that can dislodge the particles, and there are a bunch of different factors that could make it more likely to happen (everything from age to sinus infections). But it seems when it happens again, it can be more likely to re-occur.

I read a blog post online by a PT (I don’t know that I’d be able to find it again; otherwise I’d send it to you), and she was writing that immediately after it resolves (up to 2 weeks?), she recommends her patients try to stay upright as much as they can and avoid sudden head movements or activities that can dislodge the particles again. Basically, no sudden movements moving your head one way and bouncing up and down (some workouts, roller coasters, flying, shaking your head vigorously) or lying down suddenly.

Also, I read vitamin D and calcium supplementation may help people absorb the dislodged crystals more quickly, especially if either is low, if any of that helps at all.

I hope it gets better!

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@trish0323 not to minimize your suffering but BPPV is more treatable than a lot of other sources of vertigo and dizziness. I hope you can eventually feel empowered with the maneuvers if they prove more helpful in the future.

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Very true.
I was just trying to see what others experienced, what worked, and didn’t work, and what they found to be the cause.
Doesn’t seem to be anything different than what I’ve already known.

Thanks !!

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