Treating Osteoporosis: What works for you?

Hello @dazlin

I see that you are dealing with low bone loss and I was wondering if you are seeing an endocrinologist?

A lot of us who have low bone density also have problems with our parathyroid (different than the thyroid). A special blood test will check the parathyroid hormone levels and can help your doctor understand the loss of bone density. If this hasn't been checked yet, I would encourage you to talk with your doctor about that. Also, have your blood calcium levels been checked?

Keep posting and let us know how you are doing.

Teresa

Hi teresa, thank you for your reply...yes I see an endo, and she has taken bloodwork. Im not sure if the parathyroid was checked. I don't know the medical term on bloodwork or I would look at my blood test results. Calcium and D, and other tests have been done. Also 24 hr urine to see if I'm spilling calcium. All looked good. I have mgus, which may be a contributor. Im surprised I'm this far along in osteoporosis because I've always worked out, very active, and included calcium. They toss it off as age related, and the fact that I'm petite, and on the thin side...??? I will let Drs know I needed to stop Actonel, and if the sweats continue, I assume they'll do another bloodwork. Trying to wait till my next appt in june..with hopes symptoms will subside by then, being off the med.

Teresa, I just checked the parathyroid tests, PTH , and all were in normal range, taken over a year ago.

Does anyone think progesterone creams help improve osteoporosis? I'm just not sure if it's doing anything...but I'm including a helpful diet, and activity. I'm thinking..to quit the cream. I started this in January, when I took myself off Actonel due to side effects. Please share your thoughts....most internet sites say it's helpful, and some say, it's not.

For reasons best known to the medical community, there is no specialty called "Osteoporosis." On behalf of a friend who is losing calcium dramatically and cannot survive such a condition, who is in great pain, who has fallen five times in the last couple of weeks, and who has been told there's nothing that can be done for her, I am writing to ask for the name of a specialist from any field who can help, or for trials occurring to treat her condition. She is a lovely, middle-age lady who needs help from someone, somewhere. If more information is needed, please let me know.

@trishanna My friend had osteoporosis and Dr .endocrinologist did blood work On her he tested her hormones Vitamin levels and found she had a severe diffency in Vi t D3 he put her on 5000 units ,plus calcium and magnesium told her start weight training 2lbs then increase it, swimming, exercise .Check with your Dr. Hope this helps

I have been on prolia injections for 2 yrs with little improvement. My last injection caused a reaction of severe hip pain an severe cramping in my calves. So I think I will discontinue. Don't know what else to do? Any suggestions?

@lioness. Thanks for your reply. I'm going to ask her about her Vit D - very important for all of us but I wasn't aware there was a link to calcium and osteoporosis. My friend is in such pain - from her vertebrae, her intestinal tract (IBS), her shoulder. I think she was working when she lifted something too heavy, but doctors can't seem to decide if she broke her vertebrae or not. Add insurance problems and no money, and it's just tragic. I will push about Vit D - I take 2000 a day.

@gailb Id like to ask about CB D cream I ordered some but am unsure if you use it just when you have the pain or should it be more on a regular basis ? Since you have used it can you us some guidelines?Thanks

@trishanna didn't the Dr.take an xray?That will tell if she has a fractured vertebra Our bodies need minerals of all kinds magnesium Vi t D3calcium does she take a vitamin ,mineral?