← Return to I am newly Diagnosed with MGUS.

Discussion

I am newly Diagnosed with MGUS.

Blood Cancers & Disorders | Last Active: Feb 6 5:38am | Replies (61)

Comment receiving replies
@loribmt

Good morning, @karenkeeler Having a new diagnosis of a blood condition is very frightening. Sometimes there is no rhyme or reason as to why or how we ended up with the disease. I felt I lived my entire life trying to avoid cancer. I ate super healthy foods, didn’t have any bad vices, exercised, lived positively…never expected a blood cancer. My hematologists and transplant doctor all said I would drive myself to distraction trying to figure out the cause. There are random mutations that can take place from a stray gamma ray, or whatever. But that is in the past and now you start from this new point in your life. Knowledge is power and it gives you the ability to face any challenges head on. Many people have this condition and have full and happy lives.

Monoclonal Gammopathy of Undetermined Significance (MGUS) is a mouthful and is the name given to the finding of an abnormal protein in the blood. It can cause some issues over time but for many people it never progresses.
https://www.healthline.com/health/how-serious-is-mgus
My fellow mentor, @gingerw gave a wonderful reply to another new, frightened member recently diagnosed with MGUS, @alicat01 in this comment earlier in this same discussion group:
https://connect.mayoclinic.org/comment/899929/
There are many more conversations with members who have MGUS in varying stages. You can find those by just typing in MGUS in the search bar above. A number of discussions will be popping up for you.

There are 3 types of MGUS so it’s important to know the specific type of your disease. Some put you in little higher risk for progressing. It’s important for your doctors to test your blood regularly for any changes. Are you working with a hematologist?

Jump to this post


Replies to "Good morning, @karenkeeler Having a new diagnosis of a blood condition is very frightening. Sometimes there..."

I was diagnosed few years ago with MGUS also.
I go to a hematologist/oncologist for labs every 6 mos.
As long as my results stay as they are, I’m doing well and having no issues.
Just need to do bloodwork when they order it.