Hi Teresa....that was submitted to Connect long time ago. Maybe Colleen can find and resurrect it if you think worthwhile.! The Mayo Dx back in Nov 2013, was Myotonic Dystrophy type 2. Not sure when submitted to Connect. I see you joined before me in 2016, so maybe you have seen it. I have been known to play practical jokes on some of my doctors and therapists! But they unknowingly set them selves up for it! Strange, I never thought of my self as a practical joker! gailfaith

@gailfaith Hi Gail: I found an earlier post about MD - it appears as if the MD was connected to a shot for your knee - is that correct? Teresa

Hi Teresa,,,Yes. Before my first TKR he was alternating between cortisone and Synvisc injections into my L knee to hold off surgery as long as possible. My appts with him were always on a Friday. One Friday, he injected cortisone and I was fine for the weekend as usual, but woke up Monday morning weak. I did nothing all week, except to sit in the sun to read. By Friday I was OK again. I mentioned it to him at my next appt and he said, "we'll never give you a big shot of cortisone". Two years later I had the R knee replaced and two months after that very successful surgery, ( I got 132 degrees of bend in less than 2-3 weeks without pain.) I went for a post surgical check and he noticed fluid in the knee and removed it However he left that job for his resident who couldn 't do the aspiration and I said to get the Dr in here. He came in and preformed the aspiration, but apparently switched a prepared syringe and injected cortisone. Not being able to see what was going on, I just left and again was fine for the weekend but woke up Mon morning very weak. It was then I realized he had injected cortisone. I though OK by Friday I will be fine again but this time the damage was permanent. All my doctors said I could get worse, but never better, but no one put a name to my weakness. After I moved to retirement community in 2010, and all the doctors there said the same thing, I decided to fly to Mayo with my service dog from PA. After many tests and a biopsy, they said I had Myotonic Dystrophy type 2. I started weekly PT when I got home and will be in PT as long as I can get to my therapist. Even though I now no longer have a car a friend-RN has committed herself to getting me to my weekly appts. I had hoped to get a therapist who would "stand on me" to get me to work hard in PT, but I got a therapist and we get along so good, I work hard in PT just to see his smile! We have a lot in common so we understand each other pretty well. One of things I do is a lot of walking and have measured about 95 different route on the campus. So now each week, he writes what how far he wants me to walk each day. He will put down something like 0.5 miles and I will pick something from 0.50 to 0.5999. One day I wrote on a piece of paper maybe 10 different distances within the requested distance and I asked him which one did he think I would pick and without looking at the paper he said "I KNOW you.....you'd pick 0.59999999! " We have a ball together.

Hi Teresa,
Here's more about @gailfaith's story:

- Myotonic Dystrophy type 2 https://connect.mayoclinic.org/discussion/myotonic-dystrophy-type-2/
- Muscular Dystrophy & Diverticulitis https://connect.mayoclinic.org/discussion/muscular-dystrophy-diverticulitis/

She is fascinating, tenacious and I think perhaps a wee bit of a humorous imp. 🙂