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Grover’s Disease

Skin Health | Last Active: Jul 31 6:35am | Replies (110)

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@ginaspindle

This is my first time posting. I am a 69 year old woman. I have had Grovers Disease for two and a half years. It began a few days after I had my second Moderna vaccine. The rash is on my back only and barely visible. BTW, I had a punch biopsy to confirm that I do, in fact, have Grover’s. My case is different as my skin burns and is hot to the touch. I have seen an excellent dermatologist and neurologist. I have had extensive blood work done and three MRI’s on my back. Bloodwork is good and nothing on the MRI’s. I tried the cilantro smoothies daily for a year to no avail. My pain is the worst late afternoon and into evening. I need to lay on a ColPac mat that I keep in my freezer when I watch TV at night. I have been getting dupixent shots twice a month for three months. I use calcipotriene cream. I have clobetasol spray, however my doctor says it is not good to use often. The calcipotriene cream is the only thing that soothes the pain. My neurologist put me on gambepentin which did nothing, so I stopped. Three weeks ago I had a nerve block and that did not help, but made the burn even worse. If anyone has any suggestions for me, I would appreciate any and all help.

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Replies to "This is my first time posting. I am a 69 year old woman. I have had..."

Wow sounds a lot like my situation. Glad u stopped the gabapentin it makes you lose your memory

The calcipotriene may cause burning too like steroids do .
I’m doing the cilantro too it takes heavy metals out of your body which may be from the Covid and shingrix vaccines I got. I’ve tried every cream you can imagine. Averno restorative skin therapy body wash and moisturizer help for me

Seems like the symptoms and the helps differ among all of us. Some of the Rx
meds create more issues. Perhaps it might be helpful to go through the many posts at this site and try more simple suggestions .

I have these exact same symptoms including hot to the touch skin and burning that worsens in the late afternoon. I have no solutions just commiserating. Has the dupixent helped?