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Long COVID and gluten sensitivity

Post-COVID Recovery & COVID-19 | Last Active: Jul 23 3:21pm | Replies (59)

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@manon118

We are in similar situation with my 13 yr old. Had covid in march 2022 and unsure if he caught it again but he is now severely intolerant to gluten with celiac testing negative. He gets stomach aches but also significant lethargy , weakness and headaches about 30 min after eating gluten . He also gets some vague shortness of breath and asthma like symptoms. For about 2 months this year he had anemia and low white blood cells but that has resolved although his symptoms are persisting. He has been tired, not himself, irritable and not able to gain weight . I am really worried. Doctors dont seem to know what is going on either.

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Replies to "We are in similar situation with my 13 yr old. Had covid in march 2022 and..."

That is scary. Not being able to eat what peers are is also emotionally isolating. If you haven't tried this, you could check with a nutritionist about an elimination diet to see if he is sensitive to any other foods. I was likely gluten intolerant for decades before it morphed into celiac, after I caught H1N1 flu 14 years ago. My pre-celiac symptoms were mostly bloating, rashes, reflux, fatigue, and neurologic problems . As with celiac, one needs to be gluten free, and gluten is hidden in so many things. If you have not, you might try things that are labeled gluten free for awhile, to see if he is getting cross contamination. I got a new toaster and cutting board after celiac; a small crumb of bread can cause an autoimmune reaction. The National Celiac Assoc site has info on gluten free foods, places to eat, and such for celiac and gluten intolerant people. The findmeglutenfree app also has places to eat. About 30-40% of people have the HLA-DQ2 and/or DQ8 gene, and in ~2% of them it triggers celiac, the majority of whom are undiagnosed.