Invasive ductal carcinoma (IDC): Anyone else?
I have rec’d 4 chemo + 16 radiation treatments for invasive. Has lumpectomie 1st....then one week later...
Dissection 17 lymph nodes & 3 tumors removed tumors
Got clean margin.
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Why does every nurse, technician, and doctor smile and ask, "How are you today?"
Obviously they know how I am. I find their inane question very irritating, and usually answer, "I'm probably feeling like every other woman with breast cancer." They really do not understand or really want to know how I feel. Their question is extremely generic and trite, which tells me they really don't think of me as a person.
There is a thread from a long time ago about this very thing, but my memory is failing me about the title and I can’t find it.
I did tell people a few times that I was “really crappy, but thanks for asking”. Now I can think back at the shocked faces and laugh.
Do you have a treatment plan yet?
And when they ask, I reply « not great » and suddenly there is Silence… I am avoiding people because I don’t want to lie and answer « fine » and at the same time, I don’t want to share with everyone this problem. Others have their own challenges- don’t want to pile on their pain ( sickness/breast cancer, death of loved ones) . I don’t want to hear that it will be ok, It’s not and it won’t be.
I am not saying « why me? » just angry at aging, sickness - not rosy picture.
I think many of us go through anger, I probably have had more mental exhaustion than anger although there has been a range of emotions over the years.
Truly I think the worst time was waiting for……..everything. Even if if I only waited a few days for a treatment plan or a test result, the waiting is the hardest part. As soon as I started treatments the emotions settled down quite a bit for me. I hope that works the same for you.
Do you have a really good friend who will just let you rant away for a while?
No, not a rosy picture to be aging and facing down a breast cancer diagnosis among other barbs life throws at us.
It can be irritating when health care providers in the oncology setting seem perky and rosy; common courtesy towards strangers has met its challenge in this depressing and dull fog arena. I answer honestly, which varies but I do thank them for asking and also ask how they are doing.
It must be very challenging to face oncology clients everyday and burnout is high in all healthcare settling. As irritating as it can be at times, I am grateful that I am not met with a doom and gloom personality. And I am grateful for their service. It is one of those issues that needs a coping mechanism. Mine is to assume that common courtesy, like elevator talk ( the weather) is maybe the best alternative.
This space, however, is a good place to bring our anger, disappointments, fears and also our good news ( under the circumstances) and joys. We are all in a really tough spot here and ALL emotions are valid and welcome!
I would agree that oncology personnel have challenging jobs; however, those who have never faced cancer are a bit too over-the-top chipper. A simple "Good Morning and my name" would seem more appropriate. Now I have reached the point when asked, "How are you today", I just don't answer.
Thanks for acknowledging that All emotions are valid. Being told to « rant away « isn’t supportive…
I am and have been for long time a patient at Mayo and always find the staff to be gentle, caring. I am sure that they know that my « not great » reply is just normal and not directed at them personally. Btw, I was an hospice care volunteer and it’s just my turn to be angry. Finally, a place where I can express my emotions instead of suppressing them - ready to burst. Sincerely All the best to everyone. I will sign out .
When I said rant away, I didn’t really mean endlessly. I am sorry I wasn’t clearer. Sometimes when things are really tough and I am really angry (rare but it happens) just railing for a few minutes kind of re-sets me a bit and once I have listened to myself, I can stop and reason through exactly what and who I am angry about.
I truly was trying to be supportive, and I do hope other members comments were helpful as well.
I rant. Breast cancer is not fair! I had just retired!! I had just reconnected with my first love!!! We moved to a beautiful new condo in a vacation paradise!!!! I was diagnosed with cancer! I am a nice person! I volunteer! I rarely curse! My kids tell me I’m a good mom, my grandkids adore me. My body gave me cancer! No fair!! Sucks! Ok thanks for reading, I feel a wee bit better now. Ranting (without hurting another) can let some of the pressure out and make room for more positive thoughts. It’s worth a try
Even “good” morning can feel challenging when you are showing up for BC appointments. But a name … that sounds personal.
Fantasy Dream Team :
“ Hi I’m ( insert name) and I’m here to facilitate your appointment today. Is there anything I should know to make you more comfortable? “
Would be nice.