Shingrix and peripheral neuropathy

Within days of having Shingles 5 years ago, I got neuropathy in my feet. After getting the 1st Shingles vaccine last July, my gait considerably worsened and I had to start using trekking poles to go on a short walk. I told my Neurologist about it and she told me to get the 2nd Shingrix vaccine, which I did last December. I am sorry that I did, as I developed PN in my hands! Worse then the pain was the tender/sensitive fingertips, making any activity with my fingertips painful. We need our hands for everything, cooking, putting shades up, bathing, shampooing, etc, etc For some odd wonderful reason the sensitivity has lessened. I had to have someone come cook for me for awhile. The intense pain is nearly gone, thank goodness, though occasionally, I awaken with severe pain in my left thumb, which only lasts for about 10-15 minutes. The 4 plus hours of pain nearly did me in. I tried a quarter to a half of the 100 mg capsule of Gabapentin, but was so hung over for 24 hours, I could barely function. What worked for the intense pain was a Shingles cream, by Dermachange, that I bought online. The general Neurologist, after hearing my whole history, did not think it related to the Shingrix vaccine. He thought that the PN had progressed. However, I think that I understood the Neurophysiologist who did the testing, say that PN can develop from vaccines, and that it usually happens in about 3 weeks. I will check with him before getting the flu
Covid vaccine in the fall. I had had a lot of vaccines in a short period of time, 2-3 years, 5 Covid, 2 flu, 2 Shingrix!

The vaccine is known to cause Gilliam Barre syndrome/GBS (rare but it happens). It also is known to trigger other underlying conditions, including nerve disorders. This has been confirmed by my own doctor and my pharmacist. I had the first (of 2) doses a week ago and it triggered the worst case of sciatica ever. I am in so much pain, and I've been advised not to take the second dose (due in 2 months). I am also very afraid that this sciatica pain will radiate outward to the rest of my body which will then be diagnosed as GBS. I know 2 people who had the first shot and one now has sciatica, and the other is very sick. This is a terrible vaccine. It replaces a previous version that was very dangerous.

Within a week of getting Shingrix #1 in July at my local Safeway pharmacy, I too developed numbness in both feet. It is most severe in the soles/bottom of my feet. Saw my doctor about the numbness but did not think to mention the recent Shringrix shot when he asked me if there were any changes/events in my life. He drew blood and I learned that I had low levels of vitamins D3 and B12. I have been taking additional supplements for over 3 months. I was hoping the numbness might be because of the vitamin deficiencies but there has been no improvement in my feet.

Thank you for this post. Could you please let us know what the neurophysiologist recommends about the flu vaccine after you check with him? I'm trying to decide if the flu vaccine will be safe for me after I developed sensory and motor peripheral neuropathy due to the Covid vaccine.

I started getting numbness in my toes shortly after my 2nd shingrex vaccine. Has not gone away so far after 4 months

yes, I too began to have neuropathy in my hands and feet shortly after getting the Shingrix shot. I am extremely health conscious and try to do everything to stay healthy. This is very discouraging. Is this temporary? Or will it get worse?

To expand a bit, the neuropathy involves my feet and legs. It wakes me at night and it feels like creepy/crawly things under my skin. My legs ache and are painful. As soon as I get out of bed and on my feet, all the symptoms disappear. I am taking two medications now, Gabapentin and Amitriptyline, in order to help with the very disordered sleep. I was awakening every 90 minutes all night prior to the medications. The Gabapentin has reduced the creepy/crawly sensations under the skin of my calves. I will not get the 2nd shot of Shingrix. I also understand shot #1 and #2 are exactly alike and that the first shot gives 85% immunity. Is any place gathering this information to have it reported to the CDC?