Ulcerative colitis, gastritis, GERD, reflux

Posted by barens2 @barens2, May 11, 2017

Hi all, first post here.

I was diagnosed with Ulcerative Colitis in 2009, and I had been able to keep it under control with Liadla and Canada. Fast forward 4 years to 2013, I started to get some horrible esophagus spasms/GERD/indigestion...you name it. I tried just about everything over the counter, natural remedies, and even a few prescription drugs, until my doctor finally prescribed me 80mg's of Nexium, which eventually worked. I was able to reduce that amount to 40 mg's a day, even tried a few times going down to 20 mg's a day(over the counter) of nexium.

After a setback with UC, I am now on Humira, Uceris, still on Lialda and Canasa, along with trying different probiotics and glutamine.

Within the past few months, I've been getting a very sour or metallic taste in my mouth. After an endoscopy, 2 months ago, my doctor said there was some mild gastritis going on.

Now, within the past week or two, the bad taste seems to be getting worse and much more consistent, with some minor burning in my throat, along with discomfort in my upper stomach. I can feel things going downhill, and I'm sure my doctor is going to double my nexium intake. Ever since I started the Nexium, my weight has been dropping considerable, and I've had a difficult time putting it back on.

Not sure what to expect in response, I guess, for a long time, I've been worried about the affects of Nexium long term, but at this point, not sure I have a choice.

Was wondering if surgery were an alternative, what's out there, and does surgery eventually eliminate the need for these PPI drugs?

Thanks

Interested in more discussions like this? Go to the Inflammatory Bowel Disease (IBD) Support Group.

Profile picture for mikejjb123 @mikejjb123

It seems I am always cold. Yes have Gastritis and Gerd. Crazy sitting with sweatshirt and long pants when 90 plus outside. Yes, can turn down ac but doesn't matter. Ideas? thanks

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My husband had a bout of feeling so cold he couldn't even warm up in the bathtub. His temperature was normal, but he said he just felt awful, and cold despite being under an electric blanket later. We took him to a walk-in where his blood work showed his white count was very high. He was hospitalized for sepsis, but they couldn't locate the area of infection. He was given antibiotics, and watched closely in the ER. Later an endoscopy identified an infected area they felt had precipitated the sepsis. I'm glad we took him to see a doctor.

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Profile picture for mikejjb123 @mikejjb123

It seems I am always cold. Yes have Gastritis and Gerd. Crazy sitting with sweatshirt and long pants when 90 plus outside. Yes, can turn down ac but doesn't matter. Ideas? thanks

Jump to this post

Feeling cold is also a symptom of low thyroid hormones. I know my dose is off when I get cold and fatigued.

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Profile picture for mikejjb123 @mikejjb123

It seems I am always cold. Yes have Gastritis and Gerd. Crazy sitting with sweatshirt and long pants when 90 plus outside. Yes, can turn down ac but doesn't matter. Ideas? thanks

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Hi, are you taking a Vit D supplement?

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Profile picture for ani04 @ani04

Hi, are you taking a Vit D supplement?

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thanks. NO just a 1 a day vitamin.

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Profile picture for SusanEllen66 @SusanEllen66

@mikejjb123 when I have had gastritis, my stomach hurt and felt cold inside. It a strange feeling indeed. Are you taking medication for the gastritis? It’s an inflammation of the stomach lining that causes all that but I can’t remember if the doctor gave me an antibiotic or something else for it…

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HI and thanks! I am taking Dexilant 30 mg 2 times a day.

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Profile picture for SusanEllen66 @SusanEllen66

@mikejjb123 when I have had gastritis, my stomach hurt and felt cold inside. It a strange feeling indeed. Are you taking medication for the gastritis? It’s an inflammation of the stomach lining that causes all that but I can’t remember if the doctor gave me an antibiotic or something else for it…

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Thanks! I take dexilant 30 mg 2 x a day.

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Profile picture for mikejjb123 @mikejjb123

thanks. NO just a 1 a day vitamin.

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The most likely cause to chills / feeling very cold publicised is an infection , is your body temp also elevated at times ?
Wishing you wellness . 🙌

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Profile picture for ani04 @ani04

The most likely cause to chills / feeling very cold publicised is an infection , is your body temp also elevated at times ?
Wishing you wellness . 🙌

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I sweat a lot at night! thanks

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Profile picture for mikejjb123 @mikejjb123

It seems I am always cold. Yes have Gastritis and Gerd. Crazy sitting with sweatshirt and long pants when 90 plus outside. Yes, can turn down ac but doesn't matter. Ideas? thanks

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What is your weight and body fat, the lower my weight from cancer the more easily I get cold. My body fat is non existent which is an issue for insulation. I'm 130 plus of just hydrated muscle. You need a proper combo

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Profile picture for mikejjb123 @mikejjb123

It seems I am always cold. Yes have Gastritis and Gerd. Crazy sitting with sweatshirt and long pants when 90 plus outside. Yes, can turn down ac but doesn't matter. Ideas? thanks

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When this happened to me I sat with a heating pad against my stomach.

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