Occipital Neuralgia

Posted by jmb73 @jmb73, Sep 11, 2019

I have been having headaches on one side of my head and have recently been diagnosed with occipital neuralgia. They recommend a nerve bloc but I wonder anyone else has this and how they handle it.. I don't want a nerve bloc. The headaches are usually mild but occasionally the pain wakes me up. They got worse after I had my Gamma surgery. Any ideas would be appreciated. Thank you.

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windyshores | @windyshores | Jul 20, 2023

In reply to @irr4et "It felt like it had scalded my nerves. I have had Fibromyalgia 22 Yrs and I’ve..." + (show)

The lidocaine IS what caused the intensity of pain. My doc just won't recognize it. I wrote about this above.

I am sensitive to meds, foods, chemicals so perhaps that explains it.

foxylloyd | @foxylloyd | Jul 21, 2023

In reply to @irr4et "You said ur pain is mild so I would do nothing except con’t with PT and..." + (show)

My pain is severe and agonizing

foxylloyd | @foxylloyd | Jul 21, 2023

According to my studies I am opioid intolerant.

irr4et | @irr4et | Jul 21, 2023

In reply to @foxylloyd "My pain is severe and agonizing" + (show)

I am sorry - i was mistaken re my my mild pain comment. I just got u confused with someone else.

windyshores | @windyshores | Jul 21, 2023

In reply to @irr4et "I am sorry - i was mistaken re my my mild pain comment. I just got..." + (show)

@irr4et that's okay! It's not a contest 🙂

foxylloyd | @foxylloyd | Jul 22, 2023

In reply to @irr4et "I am sorry - i was mistaken re my my mild pain comment. I just got..." + (show)

My pain is intense and agonizing twenty four hours a day and I’m severely sleep deprived and sweating profusely and soaking wet from nerve damage which also causes excessive itching and I’m scratching off all my skin.

windyshores | @windyshores | Jul 22, 2023

In reply to @foxylloyd "My pain is intense and agonizing twenty four hours a day and I’m severely sleep deprived..." + (show)

@foxylloyd is anyone helping you? What docs do you see and what meds have been tried? Other modalities? I am so sorry.

foxylloyd | @foxylloyd | Jul 22, 2023

I have a doctors that take care of me but all I really take is Norco which makes my pain worse because fibromyalgia and peripheral neuropathy patients are opioids intolerant. And Lyrica and Baclofin and Cymbalta and a few others

irr4et | @irr4et | Jul 22, 2023

How awful for you! My heart hurts for you! I too have Baclophen on hand prn. My dr offered me Cymbalta but I have not tried it yet. I take Lyrica three times a day.
Would you recommend Cymbalta? How are u doing on it?
Has your dr discussed Mast Cell releases with you? Mast Cells release Histamine when we eat a food our body is intolerant of. Histamine makes me then red all over for an hr, then the painful itching starts. As soon as I feel a Mast Cell release getting started I take an Allegra 24 hr caplet. That prevents Mast Cell releases. So we need to stay on 24 Hr Non-drowsy Allegra all the time.